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Just read through your thread here and wanted to say how impressed and thankful for everything you have shared. Praying for a speedy recovery for you, you will get there.
Stay strong!
-C
Mom to son with new straight spine 8/15/2013 T16, L16
Pre op T65, L?
diagnosed 2/21/13 T55, L42
I wonder if you need more blood? I'm thankful that I was given more, when I was too dizzy to walk, it made a big difference to how I felt by the next day.
Remember that every day you will have tiny improvements. Sleep as much as you can and the healing will just happen.
I remember the "backpack" feeling. It passes, Spyros. You're probably carrying a lot of swelling in your back in these early days.
You've had a bad day but don't despair - it will get much better. Quickly, I hope.
Surgery March 3, 2009 at almost 58, now 63.
Dr. Askin, Brisbane, Australia
T4-Pelvis, Posterior only
Osteotomies and Laminectomies
Was 68 degrees, now 22 and pain free
I think you are amazing to be posting, but we are happy to hear from. You will be amazed how each week gets better and better.
Karen
Surgery-Jan. 5, 2011-Dr. Lenke
Fusion T-4-sacrum-2 cages/5 osteotomies
70 degree thoracolumbar corrected to 25
Rib Hump-GONE!
Age-60 at the time of surgery
Now 66
Avid Golfer & Tap Dancer
Retired Kdgn. Teacher
See photobucket link for:
Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
Before and After Picture of back 1/7/11
tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right. http://s1119.photobucket.com/albums/k630/pottoff2/
The whole situation was very strange and dificult for me.
It is strange.....but you will adapt in time. Remember that your body has just had a huge shock and major surgery takes time to heal.....take things one day at a time....
Walking is a good thing....walking short amounts often will help with everything.
Ed
49 yr old male, now 63, the new 64...
Pre surgery curves T70,L70
ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
Dr Brett Menmuir St Marys Hospital Reno,Nevada
You are an amazing guy! I am sure that each day will get a little bit better! I cannot believe that you posted the day after surgery!!!!! I am sure that you are a strong guy and that when your body adjusts to all that has happened, you'll be feeling so much better!
Sending good thoughts your way!
Susan
Adult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis
2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
2018: Removal L4,5 screw
2021: Removal T1 screw & rod
hi Spyros
hope you feel better every day...of course you hurt...they cut
you open and pulled your body this way and that.... major shocks to system!
and i really hope they do more to relieve your pain...
you are amazing...lots of guts and courage!
the pain right after these surgeries seems to be universal...
know and believe it will get less as the days pass...
keeping you in thoughts and prayers...
Congrats on your quick progress! You will get through this very difficult period before you know it. Enjoy your new, straight back and new-found height!
Evelyn
age 48
80* thoracolumbar; 40* thoracic
Reduced to ~16* thoracolumbar; ~0* thoracic
Surgery 3/14/12 with Dr. Lenke in St. Louis, T4 to S1 with pelvic fixation
Broken rods 12/1/19; scheduled for revision fusion L1-L3-4 with Dr. Lenke 2/4/2020
Not "confused" anymore, but don't know how to change my username.
It sounds like they haven't got your pain under control. When my pain was under control, I felt nothing. The fact you're feeling nerves pulling, sounds to me like you need more pain killers. I'm sorry you're having all this pain. I also recommend you speak to your doctor. Get that pain under control and you will feel much better. It's the doctor's and the hospital's job, to ensure you don't have this kind of pain.
If your pain was under control you wouldn't be feeling headaches, but the fact you are, tells me your doctor should know. For all I know, I may have had headaches too, but the painkillers should knock out the pain.
It's still very early days and many of us still have pain at this stage. It sometimes takes a while to get the pain under control. Thinking of you and sending hugs from Australia.
Surgery March 3, 2009 at almost 58, now 63.
Dr. Askin, Brisbane, Australia
T4-Pelvis, Posterior only
Osteotomies and Laminectomies
Was 68 degrees, now 22 and pain free
I agree with the advice above that your pain is not well-controlled. You have no need to experience this much pain right now, and it is not good for your healing to suffer so much pain.
I would make sure your doctor knows about the headaches. You should ask if you had any dural tear. I suffered extreme headaches daily for 4 weeks straight after my surgery, starting at around one week post-op. It ended up being from severe muscular tension in my neck. I found a wonderful physical therapist who relieved the tension and the headaches went away immediately.
I would also ask your doctor to check a blood count. It really sounds like you need more blood, what with the dizziness and vomiting. Or it could be due to the pain medicine.
Hang in there, get that pain under control, try to drink plenty of fluids, and soon you will turn the first corner.
Gayle, age 50
Oct 2010 fusion T8-sacrum w/ pelvic fixation
Feb 2012 lumbar revision for broken rods @ L2-3-4
Sept 2015 major lumbar A/P revision for broken rods @ L5-S1
mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
2010 VBS Dr Luhmann Shriners St Louis
2017 curves stable/skeletely mature
I am hoping you are getting your pain under control.
Sally
Diagnosed with severe lumbar scoliosis at age 65.
Posterior Fusion L2-S1 on 12/4/2007. age 67
Anterior Fusion L3-L4,L4-L5,L5-S1 on 12/19/2007
Additional bone removed to decompress right side of L3-L4 & L4-L5 on 4/19/2010
New England Baptist Hospital, Boston, MA
Dr. Frank F. Rands735.photobucket.com/albums/ww360/butterflyfive/
"In God We Trust" Happy moments, praise God. Difficult moments, seek God. Quiet moments, worship God. Painful moments, trust God. Every moment, thank God.
How are you doing? Hope doctors got your pain under control and you are back home, at a beautiful island of Corfu. I''ve been to this island and several others - Greece is such a beautiful country!
I am stronger than scoliosis, and won't let it rule my life!
45 years old - diagnosed at age 7
A/P surgery on March 5/7, 2013 - UCSF
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