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My dilemma...HELP! :)

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  • #16
    I am so glad for you
    Melissa

    Fused from C2 - sacrum 7/2011

    April 21, 2020- another broken rod surgery

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    • #17
      You confirmed my feeling about the decision to have surgery. You need that positive frame of mind that knows the benefits outweigh the loss of flexibility. You need all your questions answered and have confidence in your surgeon. I'm so glad you've found that, and that it's going to happen quickly (because the waiting's worse than the surgery, in my opinion!)

      Hope you get a great correction and it sounds like you will, and have a smooth recovery. We'll be looking forward to hearing how you go. Best wishes!
      Surgery March 3, 2009 at almost 58, now 63.
      Dr. Askin, Brisbane, Australia
      T4-Pelvis, Posterior only
      Osteotomies and Laminectomies
      Was 68 degrees, now 22 and pain free

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      • #18
        Congratulations on your decision--that's really the hardest part! Your surgery date will be here before you know it. Good luck!
        __________________________________________
        Debbe - 50 yrs old

        Milwalkee Brace 1976 - 79
        Told by Dr. my curve would never progress

        Surgery 10/15/08 in NYC by Dr. Michael Neuwirth
        Pre-Surgury Thorasic: 66 degrees
        Pre-Surgery Lumbar: 66 degrees

        Post-Surgery Thorasic: 34 degrees
        Post-Surgery Lumbar: 22 degrees

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        • #19
          Back at home recovering!

          Hello lovely forum friends! So sorry it's taken me this long to let you know how I'm doing. My surgery went really well and I am now back home recovering!

          I will upload my before and after pics/X-Rays etc later so you can see what a great job Mr Tucker has done.

          The week in hospital was pretty tough - mainly down to sickness and bad constipation caused from the strong painkillers, on top of the normal pain that is inevitable after this surgery, so I was pleased to be back home with all my creature comforts around me and my Mum and Dad to look after me!

          Until today, I have had little energy to do anything but I think I've turned a corner today and things are hopefully going to be good from here on!

          Anyway just wanted to let you know I was OK and thank you all for your support again!

          Lots of love

          xxxx
          Vic
          30 yr old, Adolescent Idiopathic Scoliosis, Dbl compensatory curve, diagnosed age 14
          Rt Thoracic approx 60 degrees
          Lft Lumbar approx 60 degrees
          Proposed 2 stage A/P fusion T4-L4 or L5 (TBC)
          Consultant - Stewart Tucker, RNOH
          Seeking Second opinion - James Wilson Macdonald, Manor Hospital, Oxford
          Love my friends, family, the island of Mallorca, and eating great food!
          My Pre-Surgery X-Rays
          (Front Xray) http://i48.tinypic.com/mvlusw.jpg
          (Side Xray) http://i48.tinypic.com/s2f6na.jpg

          Comment


          • #20
            Vic,
            I'm glad you're doing well. You've got the roughest time behind you. Keep walking!
            Karen

            Surgery-Jan. 5, 2011-Dr. Lenke
            Fusion T-4-sacrum-2 cages/5 osteotomies
            70 degree thoracolumbar corrected to 25
            Rib Hump-GONE!
            Age-60 at the time of surgery
            Now 66
            Avid Golfer & Tap Dancer
            Retired Kdgn. Teacher

            See photobucket link for:
            Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
            Before and After Picture of back 1/7/11
            tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
            http://s1119.photobucket.com/albums/k630/pottoff2/

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            • #21
              So great to hear another scoli sister come out on the other side doing great!! Congratulations Vic! Your story is another one that gives me courage for my surgery on Jan 3. When your up to it, it would be so great to hear more details..when your feeling stronger! God bless and will be thinking and praying for you...xoxo
              38 yo with 71* left thoracolumbar curve from untreated AIS dx'd @ age 10. Surgery on for Jan 3, 2013 with Dr.'s Robertson and http://i30.photobucket.com/albums/c3...ps321159d8.jpg. Spinal Fusion with instrumentation from T2-L4.

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              • #22
                Thank you! xxx

                Hi guys,

                Just wanted to share my blog with you all and say thank you for all your support...couldn't have got this far without you guys and this forum!

                http://victorialucycameron.blogspot.co.uk
                Vic
                30 yr old, Adolescent Idiopathic Scoliosis, Dbl compensatory curve, diagnosed age 14
                Rt Thoracic approx 60 degrees
                Lft Lumbar approx 60 degrees
                Proposed 2 stage A/P fusion T4-L4 or L5 (TBC)
                Consultant - Stewart Tucker, RNOH
                Seeking Second opinion - James Wilson Macdonald, Manor Hospital, Oxford
                Love my friends, family, the island of Mallorca, and eating great food!
                My Pre-Surgery X-Rays
                (Front Xray) http://i48.tinypic.com/mvlusw.jpg
                (Side Xray) http://i48.tinypic.com/s2f6na.jpg

                Comment


                • #23
                  Hello there!! I understand your situation very well and I can understand and respect wanting the surgery to "have a straight back". I am currently 38 yr old and had my fusion at 35 almost 36. I like you was advised of my condition earlier in life, however, unlike you i was I think 8-ish and only had one small 10/15% curve. My parents were advised from my family doc to "just watch it and do these excersises" to provent it from getting worse. I didnt do the excersises and we really didnt watch it. It wasnt until I was 20 when i was pregnant with my son, that I started having pain. After I had him I had moderate pain on and off...nothing HORRIBLE. But I was now very aware of my appearance. My spine was also twisted and now my curve turned into curveS and were in the 40's/50's. I was advised it would like you cont. to get worse. My one pant leg was always shorter, my waist was non exsistant and my hump was getting bigger. I hated looking at myself and trying on clothes, etc. From that point on, I monitored it....until my early 30s when i said ok, im getting older, either I do this or I dont and take my chances. I saw 3 docs....2 said a fusion into my S1 and the other, said skipS1 and L5....fuse to L4. Said that would make a BIG difference in the quality of my life, as I was still young and had children. That eventually, Id prob need the rest done....but not til much later. THAT was a chance i was willing to take. I did it for my self confidence, the pain that I had on and off(got worse and more consistance as i got older) and I knew the older I was, the more risk involved. I finally decided to in Jan 2009. I will be 100000% honest with you. THAT BY FAR was the HARDEST thing Ive ever had to deal with mentally & phsyically. The recovery is not fun and I didnt feel like myself until about a year later. HOWEVER i would do it again in a heart beat. I am completely pain free( i get stiff sometimes tho) AND I love my "new figure". I can wear fitted clothing and not look and feel weird or deformed. It truly did boost my confidence. I have had 0 issues thus far and hope that I can continue my life as I am. If you are asking what we think you should do.....if you have support and ALOT of people willing to help take care of you then DO IT!

                  If you have any questions, i woud LOVE to help! HOwever i hardly ever some to this site anymore....so you can email me @
                  lynnz74@att.net

                  best of luck to you!!! xxoo
                  Lynn
                  Lynn -30.... something
                  DxD @ 8 yrs old: 10* curve-no brace-no nothin'!
                  At age 26: Thorasic 48*/Lumbar 50*
                  At age 34: Thorasic 58*/Lumbar 60*
                  Posterior T5-L4 Fusion Jan 14th, 2009 w/Dr Tribus
                  UW Madison, WI Hospital
                  **AFTER: less than 10* Thorasic/15* Lumbar**

                  Comment


                  • #24
                    Hi Vic

                    Just want to say welcome....

                    Things get better and better every day. Your past the hardest part.....Congratulations!

                    When I opened your blog my first thought was that maybe you had your knees done and was on the wrong forum. (smiley face) Do they have knee forums?

                    Keep smiling, its part of recovery!

                    Hey Lynn
                    Its been a long time...... glad to hear that you are doing fine.
                    I can’t say I would do mine again in a heartbeat..... maybe 2 heartbeats.

                    Ed
                    49 yr old male, now 63, the new 64...
                    Pre surgery curves T70,L70
                    ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
                    Dr Brett Menmuir St Marys Hospital Reno,Nevada

                    Bending and twisting pics after full fusion
                    http://www.scoliosis.org/forum/showt...on.&highlight=

                    My x-rays
                    http://www.scoliosis.org/forum/attac...2&d=1228779214

                    http://www.scoliosis.org/forum/attac...3&d=1228779258

                    Comment


                    • #25
                      Hi Ed...haha, nope, no knee surgery...just like that pic. It's from my friend's wedding (i'm on the far left!).

                      Thanks for the welcome too!

                      Vic
                      x
                      Vic
                      30 yr old, Adolescent Idiopathic Scoliosis, Dbl compensatory curve, diagnosed age 14
                      Rt Thoracic approx 60 degrees
                      Lft Lumbar approx 60 degrees
                      Proposed 2 stage A/P fusion T4-L4 or L5 (TBC)
                      Consultant - Stewart Tucker, RNOH
                      Seeking Second opinion - James Wilson Macdonald, Manor Hospital, Oxford
                      Love my friends, family, the island of Mallorca, and eating great food!
                      My Pre-Surgery X-Rays
                      (Front Xray) http://i48.tinypic.com/mvlusw.jpg
                      (Side Xray) http://i48.tinypic.com/s2f6na.jpg

                      Comment

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