Originally posted by Confusedmom
View Post
But, this is really all reading the tea leaves. Linda, who actually sees patients, might have a truer take on it.
Originally posted by Confusedmom
View Post
This study tries to get to those real measures of the disease burden by using surveys to measure pain and quality of life, but we have no way of knowing how these surveys actually measure those things. Are they accurate? Are they reliable? Unless we can put a dipstick in people and read their quality of life measure, there's no way of calibrating these surveys to how people actually feel.
I *think* what all this means is that anecdote *is* the real measure. I think the accumulation of people's stories on this forum have more to say about the expected results of surgery then any study I've seen.
Comment