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Leg pain debilitating - this does not seem right!

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  • #31
    Please let us know what you did, and how you're doing, Lynette. You've been on my mind and that of others here too, I'm sure. Hope to hear good news soon!

    {{{{{{{Lynette}}}}}}}}}

    (realizing this site badly needs a hug smilie!)
    Not all diagnosed (still having tests and consults) but so far:
    Ehler-Danlos (hyper-mobility) syndrome, 69 - somehow,
    main curve L Cobb 60, compensating T curve ~ 30
    Flat back, marked lumbar kyphosis (grade?) Spondilolisthesis - everyone gives this a different grade too. Cervical stenosis op'd 3-07, minimally invasive

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    • #32
      Ditto the above post, esp.the hugs. You have had more than your share, Lynette. Hope you're getting some relief from the leg pain. It's hard to keep that one day at a time perspective right now, I know. "This, too, shall pass", but I'm sure it seems like it's taking forever. Know that there are lots of us thinking of you and cheering you on.


      Anne in PA
      Age 58
      Diagnosed at age 14, untreated, no problem until age 50
      T4 to sacrum fusion
      63 thoracic now 35, 92 lumbar now 53
      Dr. Baron Lonner, 2/2/10
      Am pain-free, balanced, happy & an inch taller !

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