Originally posted by mamamax
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Can Chiropractic care cause scoliosis to get worse?
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Sharon, mother of identical twin girls with scoliosis
No island of sanity.
Question: What do you call alternative medicine that works?
Answer: Medicine
"We are all African."
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Mamamax,
Have you gotten any curve correction with your brace? Is it comfortable and relieve pain? Did you get it from a Chiropractor or an MD? Just wondering about your treatment program. Do you know how long they expect you to wear it? Do they have you do Physical Therapy with it? These are all questions I will be asking about on Thursday. Sorry to put you on the spot.Be happy!
We don't know what tomorrow brings,
but we are alive today!
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Originally posted by rohrer01 View PostOops.
Mamamax,
They don't want us talking about Spinecor except on another thread as per the moderator Linda Racine. You can private message me.
Thanks!
--LindaNever argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
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Surgery 2/10/93 A/P fusion T4-L3
Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
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I thought you only wanted official published information on this brace as there was apparently some heated debate going on at the time. Anyway, I read mamamax's story on the other thread. Sorry if I misunderstood.Be happy!
We don't know what tomorrow brings,
but we are alive today!
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Originally posted by rohrer01 View PostMamamax,
Have you gotten any curve correction with your brace? Is it comfortable and relieve pain? Did you get it from a Chiropractor or an MD? Just wondering about your treatment program. Do you know how long they expect you to wear it? Do they have you do Physical Therapy with it? These are all questions I will be asking about on Thursday. Sorry to put you on the spot.
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Originally posted by mamamax View PostPlease share a reference I can read (other than your opinion)?
You understand that the inventors admit Spinecor for adults has different objectives than in children. They do not claim the brace will permanently alter the natural history of scoliosis in adults. They claim it might help with pain. They chose a two-year protocol as the first experimental design. These researchers are neither clairvoyant nor magical. That number is pulled out of a hat... there is not a single piece of credible evidence pointing to two years being appropriate as opposed to one or three or 25 for the objectives in adult treatment (or kids for that matter but let's not get into that). Not a single piece.
You say you are in touch with that guy in Canada and I do believe his story of pain relief with the brace. For folks not familiar, he is a young adult who is subsurgical IIRC and wears the brace for pain relief. You say he isn't wearing it forever. How long did he wear it initially and has he ever gone back to wearing after stopping? Are you saying he wore it for some time and now he is completely pain free without the brace for any length of time? If so the world needs to know about that.Last edited by Pooka1; 04-07-2010, 06:09 AM.Sharon, mother of identical twin girls with scoliosis
No island of sanity.
Question: What do you call alternative medicine that works?
Answer: Medicine
"We are all African."
Comment
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Sharon - I suggest you pick up the phone and have a conversation with Rivard and/or Colliard. Sharon Dunn's email address is all over the Internet - you could also write her. Adult bracing (in general) is not something we have many studies on ... it is a rather new concept (though if you research Scoliosis Journal my providers do have an adult study there). All we have really at this point, are "reports" from those like myself who are engaged in it. I'm not interested in becoming an authority on the subject - I'm interested in a treatment that will keep me out of the "needs surgery" category. If you really want to become more of an authority on the subject I suggest some conversation with others who are more qualified to provide you with the information you seek - that would be far more productive than a "debate" between you and I - though probably not nearly as entertaining ;-)
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Originally posted by mamamax View PostIf you really want to become more of an authority on the subject I suggest some conversation with others who are more qualified to provide you with the information you seek - that would be far more productive than a "debate" between you and I - though probably not nearly as entertaining ;-)
Your pain relief has taken you off the surgery table and that is great. Spinecor seems very valuable for that in adults if the progression doesn't get to a point where surgery is required for health reasons.
If you ask them, they will admit they pulled the two years out of a hat or got it from a random number generator or had a guy at a carnival guess it. It very obviously has no foothold in reality or evidence.Sharon, mother of identical twin girls with scoliosis
No island of sanity.
Question: What do you call alternative medicine that works?
Answer: Medicine
"We are all African."
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Originally posted by Pooka1 View PostY
If you ask them, they will admit they pulled the two years out of a hat or got it from a random number generator or had a guy at a carnival guess it. It very obviously has no foothold in reality or evidence.
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Originally posted by mamamax View PostReally?
THINK. Just think. Please.Sharon, mother of identical twin girls with scoliosis
No island of sanity.
Question: What do you call alternative medicine that works?
Answer: Medicine
"We are all African."
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mamamax
I wish the rules of this forum were: please post only if you have personal experience with the treatment, know something about the treatment, or have some value to add. Then we could get rid of all the unbiased and what I consider unhelpful opinions.
Regarding SpineCor helping an adult, your post is great and I hope many people find it and reach out to you. And it looks like someone did yesterday. That is great. That is the purpose of a forum. People PM me all the time because they don't want to get into a conversation, share their experience, only to have someone on the forum provide negative comments to what they said. It discourages people from participating in the forum.
Regarding SpineCor for JIS, we have been very pleased with it. It clearly works. However, for older AIS children going through a growth spurt I don't know. I have my concerns.
So, let's all conclude without comments about Rivard and Coillard, the SpineCor brace has been effective to help some adults manage pain. And, let's all conclude that it has been effective to help JIS children not only stabilize the curve, but reduce the curve.
When my daughter was 7 and first diagnosed with scoliosis (23 degrees) and all the orthopedic surgeons were telling us to do nothing, I wish we would had started bracing with the SpineCor brace. Then my daughter increased to 36 and we are fighting to get it back down. She has been in the SpineCor for about 5 months and her 36 degree curve T5-T12 is now 23. Her largest curve is now T5-T9 and is 28 degrees. We are moving in the right direction. And my daughter has no problem wearing it all the time, and it has no impact on her activities, especially playing sports.
I would like to hear others share their stories here and experience with SpineCor without having others, who have no experience with it, and have serve no other value than to criticize the inventors and chiropractors who are providers of it. Our chiropractor has done a great job fitting the brace and helping my daughter reduce her curve.
So, to be clear, pediatric orthopedic surgeons from Childrens Hospital recommended the SpineCor brace, the initial fitting was with an orthotist at Children's Hospital, and the latest adjustments have all been done by our chiropractor. And we are very pleased. I have considered going to Montreal to meet with Rivard and/or Coillard to confirm we are getting maximum correction out of the brace.
Think about how many kids could be in a SpineCor brace who may have a 15-20 or 20-25 degree curve (23 degrees in our case) that could prevent the scoliosis curve from progressing and could lead a very normal active life while bracing. And since surgeons may not recommend bracing at this level, a SpineCor orthotist or SpineCor chiropractor may be the only place to get the brace.
Thanks
Michael
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Originally posted by michael1960 View Postmamamax
I wish the rules of this forum were: please post only if you have personal experience with the treatment, know something about the treatment, or have some value to add. Then we could get rid of all the unbiased and what I consider unhelpful opinions.
Regarding SpineCor helping an adult, your post is great and I hope many people find it and reach out to you. And it looks like someone did yesterday. That is great. That is the purpose of a forum. People PM me all the time because they don't want to get into a conversation, share their experience, only to have someone on the forum provide negative comments to what they said. It discourages people from participating in the forum.
Regarding SpineCor for JIS, we have been very pleased with it. It clearly works. However, for older AIS children going through a growth spurt I don't know. I have my concerns.
So, let's all conclude without comments about Rivard and Coillard, the SpineCor brace has been effective to help some adults manage pain. And, let's all conclude that it has been effective to help JIS children not only stabilize the curve, but reduce the curve.
When my daughter was 7 and first diagnosed with scoliosis (23 degrees) and all the orthopedic surgeons were telling us to do nothing, I wish we would had started bracing with the SpineCor brace. Then my daughter increased to 36 and we are fighting to get it back down. She has been in the SpineCor for about 5 months and her 36 degree curve T5-T12 is now 23. Her largest curve is now T5-T9 and is 28 degrees. We are moving in the right direction. And my daughter has no problem wearing it all the time, and it has no impact on her activities, especially playing sports.
I would like to hear others share their stories here and experience with SpineCor without having others, who have no experience with it, and have serve no other value than to criticize the inventors and chiropractors who are providers of it. Our chiropractor has done a great job fitting the brace and helping my daughter reduce her curve.
So, to be clear, pediatric orthopedic surgeons from Childrens Hospital recommended the SpineCor brace, the initial fitting was with an orthotist at Children's Hospital, and the latest adjustments have all been done by our chiropractor. And we are very pleased. I have considered going to Montreal to meet with Rivard and/or Coillard to confirm we are getting maximum correction out of the brace.
Think about how many kids could be in a SpineCor brace who may have a 15-20 or 20-25 degree curve (23 degrees in our case) that could prevent the scoliosis curve from progressing and could lead a very normal active life while bracing. And since surgeons may not recommend bracing at this level, a SpineCor orthotist or SpineCor chiropractor may be the only place to get the brace.
Thanks
Michael
Thank you so much for your comments. They have been very uplifting and like a breath of fresh air :-) Wishing you and your daughter all the very best in your journey.
Last edited by mamamax; 04-07-2010, 06:09 PM.
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