Setting the Record Straight

[LindaRacine]

Yes - definitely.

Like i said above - my specialist is a scoliosis specialist .. well respected one at that.

Guess we'll never know for sure.

[mamamax]

I know - that's about all that really matters

[mariaf]

Mamamax,

If you want folks to stop doubting/questioning you (and I assume you do), may I suggest that you be more open and less mysterious.

My son's specialist is Dr. Randal Betz.

Linda shared her doctor's name, as have countless others here in various posts. Why wouldn't we?

I truly doubt anyone here would look your doctor up, and call him to have a discussion on this (even if they did, I'm sure he has folks to screen his calls, no?).

[mamamax]

Mamamax,

If you want folks to stop doubting/questioning you (and I assume you do), may I suggest that you be more open and less mysterious.

My son's specialist is Dr. Randal Betz.

Linda shared her doctor's name, as have countless others here in various posts. Why wouldn't we?

I truly doubt anyone here would look your doctor up, and call him to have a discussion on this (even if they did, I'm sure he has folks to screen his calls, no?).

Here’s the thing (well a few things) …

#1 I’ve made some great pals here (and been learning quite a lot about non surgical treatments for scoliosis) – some I correspond with off forum .. it is for them, myself, and others that I stay.

#2 Not everyone doubts me. Those who doubt me now – always will, regardless of what I say or do - regarding those, no I have no great concern in convincing them to change their minds (they are as entitled to their own opinions as i am mine).

#3 I’ve previously posted information about my doctor/brace provider (openly without being asked for the information). The result of that was like I said above (posts 133 – 137 & 139), some interesting phone calls to my providers office (by the doubters). Some of those calls were disruptive to those who manage the office – and a poor representation of most members here.

#4 Many choose not to publicly post their personal information (including the public listing of their orthopedic specialists’ names) – I have come to learn the value of that – and now belong to that camp.

#5 Linda indicated she wanted me to post my specialist’s name so that she could have a conversation with him regarding a reference he and I discussed in the course of my treatment. I suggested that if she feels the need to discuss the value of said reference with an orthopedic scoliosis specialist – that she consult her own. He may agree – he may not (not all specialists agree).

#6 My orthopedic specialist does not need to receive phone calls from Linda regarding the value of a reference he and I discussed in the course of my treatment (nor do i desire/require her as someone included in my personal treatment program by way of her communication with my doctor).

#7 My specialist's name does not need to be published here providing opportunity for repeat performance of item #3 above.

#8 I have no need of the name of Linda’s specialist and her posting it, does not change the way I view our relationship.

So – that’s about all there is to that.

If anyone wants or feels they need more details than this – just PM me and I’ll be glad to reply.

[mariaf]

OR it could be, as Linda mentioned, that he is not a scoliosis specialist.

Guess we'll never know.

[concerned dad]

Now, let me get this straight…..

Linda Asks

While we're on the topic, would you post who your orthopaedic specialist is?

Mamamax replies

What would be the point?

Linda replies

A discussion with him on the topic.

And, as discussed on a recent thread, Linda just called MissEmmyF’s doctor on the phone. EDIT: Linda did not call the doctor, she is personally acquainted with the doctor and emailed him, it was the doctor who called her back as clarified below.)
I dunno, maybe it’s just me, but that seems WAY WAY WAY out of line. I’m with Mamamax on this a zillion percent.

I too choose to keep private the name of my daughter’s doctor (discussed in last paragraph here). It wouldn’t be too hard to guess who he is, and if anybody does, I sure would NOT want anyone calling him up to discuss issues batted around on this forum.

Does anyone doubt there is a spectrum of opinions among SRS members concerning the issues we discuss here? The one thing I have learned is that there is little consensus. All you have to do is read Lori Dolans Equipoise paper to convince yourself of that FACT. My personal experience talking to 4 doctors has convinced me that there is disagreement on many aspects of scoliosis.

Linda, you want Mamamax’s doctors name so you can have "a discussion with him on the topic?" I have the highest respect for you and all you do here. You are the voice of sanity on many controversial topics. But, in my opinion, that is just plain wrong.

[LindaRacine]

Now, let me get this straight…..


I dunno, maybe it’s just me, but that seems WAY WAY WAY out of line. I’m with Mamamax on this a zillion percent.

I too choose to keep private the name of my daughter’s doctor (discussed in last paragraph here). It wouldn’t be too hard to guess who he is, and if anybody does, I sure would NOT want anyone calling him up to discuss issues batted around on this forum.

Does anyone doubt there is a spectrum of opinions among SRS members concerning the issues we discuss here? The one thing I have learned is that there is little consensus. All you have to do is read Lori Dolans Equipoise paper to convince yourself of that FACT. My personal experience talking to 4 doctors has convinced me that there is disagreement on many aspects of scoliosis.

Linda, you want Mamamax’s doctors name so you can have "a discussion with him on the topic?" I have the highest respect for you and all you do here. You are the voice of sanity on many controversial topics. But, in my opinion, that is just plain wrong.

Hi CD...

First, I didn't call him. He called me, after I sent an email asking for his thoughts on which patients might benefit from Schroth. I have a lot of respect for Dr. Mendelow, so was honestly interested in getting the info. I didn't mention anyone's name to him.

If someone is stating that a specialist believes something, I honestly want to know the details. It's how I disseminate info elsewhere. Sorry if you feel I crossed the line. And, by the way, I would not have contacted Dr. Mendelow if I didn't already known him.

Regards,
Linda

[CHRIS WBS]

Now, let me get this straight…..

Linda Asks


Mamamax replies


Linda replies


And, as discussed on a recent thread, Linda just called MissEmmyF’s doctor on the phone.

I dunno, maybe it’s just me, but that seems WAY WAY WAY out of line. I’m with Mamamax on this a zillion percent.

I too choose to keep private the name of my daughter’s doctor (discussed in last paragraph here). It wouldn’t be too hard to guess who he is, and if anybody does, I sure would NOT want anyone calling him up to discuss issues batted around on this forum.

Does anyone doubt there is a spectrum of opinions among SRS members concerning the issues we discuss here? The one thing I have learned is that there is little consensus. All you have to do is read Lori Dolans Equipoise paper to convince yourself of that FACT. My personal experience talking to 4 doctors has convinced me that there is disagreement on many aspects of scoliosis.

Linda, you want Mamamax’s doctors name so you can have "a discussion with him on the topic?" I have the highest respect for you and all you do here. You are the voice of sanity on many controversial topics. But, in my opinion, that is just plain wrong.

I am in total agreement with you on this, CD. BTW, when I returned to the forum after my surgery to report on my outcome, there was a PM in my mail box from a member suggesting that my doctor had been contacted regarding a statement I had made. What an invasion of privacy! Mamamax, you are very wise.

[mariaf]

Hi CD,

Before I read Linda's most recent post above, I was going to say that I thought we were talking about two different things:

1. Someone sharing a doctor's name; and

2. Another member contacting said doctor to discuss things on this forum, etc.

I could not agree with you more that #2 is waaaaay out of line...period.

But I was also going to say (which Linda confirmed) that I doubted anyone would actually DO that. For example, just because I share the fact that Dr. Betz is my son's doctor does not mean that I expect, or would condone, someone calling him to discuss what I post here - and again, I could not imagine anyone here doing that, unless perhaps they already knew him and wanted to discuss something in general without mentioning names, sources of info, etc.

Hi Sharon,

I just wanted to sat that I DO understand what you are saying - and I know that a lot of us here, when we question a post (NOT necessarily mamamax's - but posts in general, sometimes by a brand new member), are not trying to tell people how to think or what to do, but rather we are raising questions to get more information so that nobody here is ever mislead or given false hope (perhaps by someone looking to profit from a parent's desperation to find a non-surgical fix for their child's scoliosis, etc.). AGAIN, I am talking in generalities, NOT about any particular member.

I, for one, appreciate candor. And as much as emotional support and encouragment are important, as a parent I would be even MORE concerned with getting the FACTS when I'm deciding how to handle my child's medical condition. How could anything be more important than that?

[CHRIS WBS]

But I was also going to say (which Linda confirmed) that I doubted anyone would actually DO that.

Naive assumption on your part, Maria.

[mariaf]

If you say so.

However, in all the time I've been here this is the first time I have ever read anything on the topic of someone's doctor receiving an unsolicited phone call. And none of us have any PROOF that it has occurred, even once.

I'm not saying it isn't possible - anything is possible - and anyone can look up any doctor's number and call them I suppose (whehter or not their name is mentioned here or not) - but I doubt folks are dialing as I type this.

[mamamax]

If you say so.

However, in all the time I've been here this is the first time I have ever read anything on the topic of someone's doctor receiving an unsolicited phone call. And none of us have any PROOF that it has occurred, even once.

I'm not saying it isn't possible - anything is possible - and anyone can look up any doctor's number and call them I suppose (whehter or not their name is mentioned here or not) - but I doubt folks are dialing as I type this.

Again, Naive assumption on your part, Maria.

[mamamax]

I am in total agreement with you on this, CD. BTW, when I returned to the forum after my surgery to report on my outcome, there was a PM in my mail box from a member suggesting that my doctor had been contacted regarding a statement I had made. What an invasion of privacy! Mamamax, you are very wise.

Thank you Chris .. invasion of privacy indeed!

[mamamax]

Now, let me get this straight…..

Linda Asks


Mamamax replies


Linda replies


And, as discussed on a recent thread, Linda just called MissEmmyF’s doctor on the phone. EDIT: Linda did not call the doctor, she is personally acquainted with the doctor and emailed him, it was the doctor who called her back as clarified below.)
I dunno, maybe it’s just me, but that seems WAY WAY WAY out of line. I’m with Mamamax on this a zillion percent.

I too choose to keep private the name of my daughter’s doctor (discussed in last paragraph here). It wouldn’t be too hard to guess who he is, and if anybody does, I sure would NOT want anyone calling him up to discuss issues batted around on this forum.

Does anyone doubt there is a spectrum of opinions among SRS members concerning the issues we discuss here? The one thing I have learned is that there is little consensus. All you have to do is read Lori Dolans Equipoise paper to convince yourself of that FACT. My personal experience talking to 4 doctors has convinced me that there is disagreement on many aspects of scoliosis.

Linda, you want Mamamax’s doctors name so you can have "a discussion with him on the topic?" I have the highest respect for you and all you do here. You are the voice of sanity on many controversial topics. But, in my opinion, that is just plain wrong.

Yes - exactly. Thank you CD

[mamamax]

Just to clarify the situation in the other thread - this happened to a brand new member SLS (not MissEmmyF) the day after her joining. She has not returned since.

Reference:
127/128/129/130/136 Clear Institute vs Schroth Method
http://www.scoliosis.org/forum/showt...?t=8632&page=9