Originally posted by hdugger
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Last edited by mamamax; 12-31-2010, 04:43 PM.
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Originally posted by mamamax View PostI guess that is in the perfect world that does not exist. Things are changing and changing rapidly however and SOSORT shifting to results oriented methods will be a major player as time goes by.
(BTW, and completely parenthetically, we're also working on getting dual Italian/American citizenship, through my grandfather. So, maybe we'll visit the clinic as citizens.)
Hope all is well with you and yours.
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Originally posted by Ballet Mom View PostDo you know what percentage of those donations coming from private individuals are from orthopedic surgeons?
Just curious.Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
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Surgery 2/10/93 A/P fusion T4-L3
Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
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Originally posted by LindaRacine View PostI have no clue as to reality, but I'd be shocked if it was anything substantial. Scoliosis specialists who are charitable tend to give their money to the Scoliosis Research Society. You might ask Joe O'Brien, President of the NSF.
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Originally posted by Ballet Mom View PostThank you Linda. I hope you know that I am not accusing you of anything. I was curious as to the organization itself, because I know that organizations are swayed by their major donors who carry lots of clout. Especially non-profits.Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
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Surgery 2/10/93 A/P fusion T4-L3
Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
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The group of posters here is in no sense an "organization." NSF is an organization that has no connection to the posters which is obviously a random set of bunnies who either have scoliosis or have a relative with scolisois. The one exception is we are lucky to have a muscle physiology rsearcher here and we briefly had a CLEAR chiro.
The set of donors is not identical to the set of posters. The donors have no contact with the posters to my knowledge which completely accounts for why none of the posters nor even Linda knows who they heck the donors are. It is IRRELEVANT in the extreme who the donors are in terms of what gets posted here. Obviously.
There is no connection between what is advocated by the donors and what is posted in the forum except by chance. Very obviously.
"I wouldn't want to belong to any club that would have me as a member." -- Groucho Marx.Sharon, mother of identical twin girls with scoliosis
No island of sanity.
Question: What do you call alternative medicine that works?
Answer: Medicine
"We are all African."
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Donors
I was invited to donate by the Scoliosis Association and I did--- to help keep the forum going.Original scoliosis surgery 1956 T-4 to L-2 ~100 degree thoracic (triple)curves at age 14. NO hardware-lost correction.
Anterior/posterior revision T-4 to Sacrum in 2002, age 60, by Dr. Boachie-Adjei @Hospital for Special Surgery, NY = 50% correction
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Originally posted by Karen Ocker View PostI was invited to donate by the Scoliosis Association and I did--- to help keep the forum going.
Suggestions otherwise are imaginary. Further, there is not one rational reason to even suspect they could possibly be true. None. The opinions on this forum are all over the map. It's a moving target. The evidence, when extant, is not so scattered but some posters do not feel tethered to the evidence or lack thereof.
And I just want to say there is not one scintilla of evidence Joe O'Brien tries to control the post content of this site. Not one. Moreover he has handled at least one situation that I know of with utmost fairness and as against apparent interest. This is to his great credit.Sharon, mother of identical twin girls with scoliosis
No island of sanity.
Question: What do you call alternative medicine that works?
Answer: Medicine
"We are all African."
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For the record, the Scoliosis Association is a different non-profit. The National Scoliosis Foundation is the owner of this forum.Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
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Surgery 2/10/93 A/P fusion T4-L3
Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
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Originally posted by LindaRacine View PostFor the record, the Scoliosis Association is a different non-profit. The National Scoliosis Foundation is the owner of this forum.
I stand corrected.Original scoliosis surgery 1956 T-4 to L-2 ~100 degree thoracic (triple)curves at age 14. NO hardware-lost correction.
Anterior/posterior revision T-4 to Sacrum in 2002, age 60, by Dr. Boachie-Adjei @Hospital for Special Surgery, NY = 50% correction
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I need to know the outcomes in someone around 20 or 30 years old with a significant reduction coeficiente ((degrees lying down -degrees standing up)/ degrees standing up)*100), over 30% before the treatment. It’s really very important for me to know that. I’m seriously evaluating the Spincor for my daughter. It’s not an easy decision because we’ll have to travel to another country.
Thanks in advance.
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Originally posted by darrin90I want to wear the SpineCor Brace, but I live in Norway and there are basically no treatment centers located in my country. Do I have to travel to Great Britain or some other country to get treated, or is it possible to take measurements and tests in Norway, and then send that info to a foreign treatment center, so that they can send the brace by DHL or Fedex? I'm a very busy man, living with daily pain, so a conservative treatment for my hypokyphosis and scoliosis would be preferable. Please reply!
You are very lucky to live in Norway!
1. Norway is the happiest country in the world.
http://www.msnbc.msn.com/id/41352791...nation_travel/
2. Norway is the most prosperous country in the world.
http://www.forbes.com/2011/01/19/nor...countries.html
What's the most prosperous country in the world? Norway. What's it got that the rest of the world doesn't? The biggest bump comes from having the world's highest per capita GDP of $53,000 a year. Norwegians have the second-highest level of satisfaction with their standards of living: 95% say they are satisfied with the freedom to choose the direction of their lives; an unparalleled 74% say other people can be trusted.
http://www.gallup.com/poll/114211/al...ns-common.aspx
I hope that cheered you up a little.Sharon, mother of identical twin girls with scoliosis
No island of sanity.
Question: What do you call alternative medicine that works?
Answer: Medicine
"We are all African."
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Darrin I believe that 40º is not a big curve, but if you think that is provoking the pain, if you reduce your curve, you'll reduce your pain. At least it sounds logic. If you have a flexible spine, then maybe that the Spincor keep an important reduction of the curve, but of course some other kind of solutions could help you. May be postural disciplines as Alexander, Eutonia or Feldenkrais or some treatments like Rolfing or Rpg, Myofascial release, Pnf..
Good luck and please let me know if you decide to use the Spinecor.
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Originally posted by darrin90I already worked with a physical therapist for 1 year with various excercises, but it didn't help much on my pain. The reason for this is that my pain is not muscle related, but its related to the curvature of my spine. The scoliosis in the coronal plane might not be the biggest problem, but my lack on cervical- thoracic- and lumbar- curves in the sagittal plane (I got hypokyphosis and my neck and lower back curves is to small to balance my back) is a huge problem, and ortopedic doctors tend to ignore this problem.
Has a surgeon ever told you that your pain might go away if you get a fusion that restores your kyphosis and lordosis?Sharon, mother of identical twin girls with scoliosis
No island of sanity.
Question: What do you call alternative medicine that works?
Answer: Medicine
"We are all African."
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