Originally posted by Ballet Mom
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Spinecor Brace for Adults
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Originally posted by Pooka1 View PostThe people interested in evidence hopefully stay and that is what matters.1993, Age 13, 53* Right T Curve w/ Left L compensatory
2010, Age 30, 63* or 68* (depending on the doc) Right T Curve w/ Left L compensatory
http://livingtwisted.wordpress.com/
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Originally posted by mehera View PostPersonally I think what matters is that everyone who needs help gets it. If they are driven off before they can learn anything how is that a good thing? There is a way to have a healthy debate without completely demoralizing people.
There are some here who are demonstrably NOT interested in facts and evidence. I suggest they will never get the help they need.Sharon, mother of identical twin girls with scoliosis
No island of sanity.
Question: What do you call alternative medicine that works?
Answer: Medicine
"We are all African."
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i don't know that anyone is "anti manufacturing"
i just want to know who is who and what, if anything, they stand to gain if they post here...or if they work making money off those suffering with scoli...
i think people like to know if someone has a hidden agenda going on...
like being a manufacturer of rods or braces, or being a surgeon...
that isn't "anti" anything..just a desire for full disclosure...
jess
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Originally posted by jrnyc View Posti don't know that anyone is "anti manufacturing"
i just want to know who is who and what, if anything, they stand to gain if they post here...or if they work making money off those suffering with scoli...
i think people like to know if someone has a hidden agenda going on...
like being a manufacturer of rods or braces, or being a surgeon...
that isn't "anti" anything..just a desire for full disclosure...
jessSharon, mother of identical twin girls with scoliosis
No island of sanity.
Question: What do you call alternative medicine that works?
Answer: Medicine
"We are all African."
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Originally posted by jrnyc View Posti don't know that anyone is "anti manufacturing"
i just want to know who is who and what, if anything, they stand to gain if they post here...or if they work making money off those suffering with scoli...
i think people like to know if someone has a hidden agenda going on...
like being a manufacturer of rods or braces, or being a surgeon...
that isn't "anti" anything..just a desire for full disclosure...
jess
I had assumed that this site was probably funded by medical device companies because they were funding so many other scoliosis sites.
I now wonder about whether surgeons are funding it, for the most part, because it was my daughter's original surgeon who sent us to this site. So perhaps they have set it up to help patients become comfortable with having surgery. Which is fine, but if there is such a motive, it should be out in the open so others aren't just drummed off of the site unceremoniously for searching out information on conservative treatments.
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i have never felt "drummed off" for searching for conservative treatments...i have not chosen surgery...yet...or have chosen it and changed my mind repeatedly...but have never felt pressured NOT to search for less than surgical solutions...
and i was not referred here by a surgeon...i found this site when searching scoli info on the internet...
that may not be your experience on this site.....but it has been my experience...
jess
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Originally posted by Ballet Mom View PostI had assumed that this site was probably funded by medical device companies because they were funding so many other scoliosis sites.
I now wonder about whether surgeons are funding it, for the most part, because it was my daughter's original surgeon who sent us to this site. So perhaps they have set it up to help patients become comfortable with having surgery. Which is fine, but if there is such a motive, it should be out in the open so others aren't just drummed off of the site unceremoniously for searching out information on conservative treatments.
Please don't ASS-U-ME that surgeons are funding it either. Especially since you are basing that assumption solely on the fact that a surgeon mentioned it.
Just out of curiosity, since you seem to be spending a lot of time wondering about who funds this site - Have you ever wondered if the folks at Spinecor are funding it since the President of NSF has such close ties to that brace?
Or are they exempt from the assumptions and speculation that medical device companies and surgeons were subjected to??Last edited by mariaf; 12-30-2010, 06:54 AM.mariaf305@yahoo.com
Mom to David, age 17, braced June 2000 to March 2004
Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)
https://www.facebook.com/groups/ScoliosisTethering/
http://pediatricspinefoundation.org/
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Originally posted by mariaf View PostFirst of all, one should never assume, as you did about medical device companies funding this site, which I believe we have determined they do not.
Please don't ASS-U-ME that surgeons are funding it either. Especially since you are basing that assumption solely on the fact that a surgeon mentioned it.
Just out of curiosity, since you seem to be spending a lot of time wondering about who funds this site - Have you ever wondered if the folks at Spinecor are funding it since the President of NSF has such close ties to that brace?
Or are they exempt from the assumptions and speculation that medical device companies and surgeons were subjected to??
I'm not ASSUMING that doctors are funding it either. That's why I asked the question...and am noticeably still waiting for an answer. People can make their own assumptions based on whether an answer appears or not. It's a valid question, especially when this site allows the dynamics on it that are allowed.
I agree with hdugger on the Spinecor funding of this site. It is hard for me to believe. I agree they should get their money back, and tort damages for the intentional infliction of emotional distress for the poor people who have been harassed for trying to participate in the non-surgical portions of this site.
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Originally posted by Ballet Mom View PostIt's a valid question, especially when this site allows the dynamics on it that are allowed.mariaf305@yahoo.com
Mom to David, age 17, braced June 2000 to March 2004
Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)
https://www.facebook.com/groups/ScoliosisTethering/
http://pediatricspinefoundation.org/
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Originally posted by Ballet Mom View PostI agree with hdugger on the Spinecor funding of this site. It is hard for me to believe.mariaf305@yahoo.com
Mom to David, age 17, braced June 2000 to March 2004
Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)
https://www.facebook.com/groups/ScoliosisTethering/
http://pediatricspinefoundation.org/
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I'm not conceding a damn thing about being on someone's, anyone's payroll until I actually get paid. (smiley face)Sharon, mother of identical twin girls with scoliosis
No island of sanity.
Question: What do you call alternative medicine that works?
Answer: Medicine
"We are all African."
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