I have a severe scoliosis, prefusion level, but never had surgery. Is there some place where I can relate my experiences, coping with this problem on a daily basis? Any place where I can blog about it? Thanks
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three,
Welcome, if I've missed previous posts of yours. I started a thread just trying to upload my x-rays and called it "I have some imaging CD's". I basically tell my story (blog) about what I'm going through and I keep it on the same thread even though it has a weird title. Nearly my whole story with scoliosis is on there from my childhood until now (46).
It wasn't until recently (within the last two years) that I discovered my scoliosis isn't idiopathic. I talk about my problems with medications and my resistance to be on them vs. the necessity for quality of life.
I talk about the treatments that I do to keep the pain under control. My curve is also not quite at the surgical range, but is rapidly approaching at 46 up top and 38 lower thoracic and developing a lumbar curve. The 38o curve was negligible until the last five or six years, not even worth measuring.
So blog away. Some people respond to my posts and some don't. I hope that there are those that just read it and know that they're not alone with this and it CAN be debilitating at sub-surgical ranges.
So blog away! Use this thread or start another. Honestly, if I had known how much of my journey I would post on that thread I would have given it a better name. I was just so psyched that I finally got those pictures on there!
Best Wishes!
Rohrer01Be happy!
We don't know what tomorrow brings,
but we are alive today!
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