Well, folks, that is my diagnosis after my DNA testing. I feel it belongs here because scoliosis is one symptom of this disease. So I will use this thread to talk about CMT even though this is a scoliosis forum. There are those of us that have special issues relating to a CMT diagnosis that may have a direct impact on our scoliosis from pain to severity to what kinds of exercises to do and NOT to do (walking is a big NO NO believe it or not) to whether or not to have it surgically corrected.
I don't know what kind of CMT I have, yet. My appointment is next week. But if there are others out there suffering from the same thing, feel free to talk here.
The incidence of this disease is 1 in 2,500 people. It sounds like a long shot, but this is actually the most common neuromuscular disease out there.
The month of September is CMT awareness month, too. How ironic that I found out in September! LOL They have their own website so feel free to visit it. You can get there through the NIH website since I don't have their web address handy.
I will do my best to answer any questions. One question I have to find out for myself is whether or not my scoliosis is still classified as idiopathic since it really is secondary to CMT, just like my muscle wasting.
I will post more as I know more. I will still keep my timeline thread (I have some imaging CDs) alive during this. That thread has proven invaluable to me. But this one may prove invaluable to other CMT sufferers.
You all have a great day!
Rohrer01
I don't know what kind of CMT I have, yet. My appointment is next week. But if there are others out there suffering from the same thing, feel free to talk here.
The incidence of this disease is 1 in 2,500 people. It sounds like a long shot, but this is actually the most common neuromuscular disease out there.
The month of September is CMT awareness month, too. How ironic that I found out in September! LOL They have their own website so feel free to visit it. You can get there through the NIH website since I don't have their web address handy.
I will do my best to answer any questions. One question I have to find out for myself is whether or not my scoliosis is still classified as idiopathic since it really is secondary to CMT, just like my muscle wasting.
I will post more as I know more. I will still keep my timeline thread (I have some imaging CDs) alive during this. That thread has proven invaluable to me. But this one may prove invaluable to other CMT sufferers.
You all have a great day!
Rohrer01
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