I had Harrington rods and fusions when I was 12, at Syracuse University Hospital. My pain started in my hips when I was 16, I first when to a normal Dr. and they thought it was possibly ovarian cysts and the like so I went through trials with that with no luck. Then I went up to see my orthopedic dr, and he couldn't find anything wrong either, my xrays are perfect. So I went back every year complaining about hip pain, hip pain turned to combination hip and knee pain (right side) when I was about 20. I went back still nothing showed on my xray and every-time I went in I had no evidence of physical pain (go figure) which happens every time I walk into a hospital so no one ever takes me seriously.
Fast forward, just before my 23rd birthday, the pain has gotten so intense that couldn't even stand to complete my shift and work, I stand for maybe an hour at most then I would be in excruciating pain for the next 8 hrs, then I couldn't lay down when I got home because my knee, hip and back hurt so much that being in anything other than a sitting position was excruciating. even sitting was extremely painful, but it was the most comfortable I could get. I slept sitting most nights, so I left work because of this and being coupled with my social anxiety getting sever to the point I was afraid to leave my house.
I kept up on some exercises, like the ball, lifting some light weights to try and keep the fat off because I know being heavy puts strain on my back, but that too got to painful to complete. It seemed like every-time I reached a weight goal I was taken 20lbs back because I had to take so much time off because of my pain.
I went back again and they did xrays again, and nothing showed, I had a choice between physical therapy or an epidural. I chose physical therapy, which was a bad idea because my anxiety was really bad and left after about a month of it. It didn't do anything at all anyways and I was going 3-4 times a week, on top of trying to exercise at home.
I can't walk for more than 45 minutes now, and I don't really want to go back to hear the same results over and over and no one will help. I applied for disability because (TMI ALERT) I can barely twist far enough to wipe my a**, let alone work and my a** isn't big. They told me in the disability office that I only had 75% of my twisting mobility but I was fine, fine my a**! They denied me disability even though I can't stand to work, it sucks because I am only 24, who would have thought I would have been disabled at 24. NOT ME! I had big plans and I still do and this really gets in my way! I take my dog for a walk and I'm out of commission for the whole day and part of the next.
This is kind of a post to get things rolling here and to talk to people who might be in my situation.
What have any of you done to alleviate pain? I feel like nothing works and I often give up hope of ever being pain free.
Fast forward, just before my 23rd birthday, the pain has gotten so intense that couldn't even stand to complete my shift and work, I stand for maybe an hour at most then I would be in excruciating pain for the next 8 hrs, then I couldn't lay down when I got home because my knee, hip and back hurt so much that being in anything other than a sitting position was excruciating. even sitting was extremely painful, but it was the most comfortable I could get. I slept sitting most nights, so I left work because of this and being coupled with my social anxiety getting sever to the point I was afraid to leave my house.
I kept up on some exercises, like the ball, lifting some light weights to try and keep the fat off because I know being heavy puts strain on my back, but that too got to painful to complete. It seemed like every-time I reached a weight goal I was taken 20lbs back because I had to take so much time off because of my pain.
I went back again and they did xrays again, and nothing showed, I had a choice between physical therapy or an epidural. I chose physical therapy, which was a bad idea because my anxiety was really bad and left after about a month of it. It didn't do anything at all anyways and I was going 3-4 times a week, on top of trying to exercise at home.
I can't walk for more than 45 minutes now, and I don't really want to go back to hear the same results over and over and no one will help. I applied for disability because (TMI ALERT) I can barely twist far enough to wipe my a**, let alone work and my a** isn't big. They told me in the disability office that I only had 75% of my twisting mobility but I was fine, fine my a**! They denied me disability even though I can't stand to work, it sucks because I am only 24, who would have thought I would have been disabled at 24. NOT ME! I had big plans and I still do and this really gets in my way! I take my dog for a walk and I'm out of commission for the whole day and part of the next.
This is kind of a post to get things rolling here and to talk to people who might be in my situation.
What have any of you done to alleviate pain? I feel like nothing works and I often give up hope of ever being pain free.
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