I had physio and some brief bracing as I recovered from paralytic polio (aged 11 - 55 years ago) when my scoliosis developed. Once I was in my 30s I sought help for pain in right hip and leg and back pain and was prescribed orthotics in my shoes and told to live with the scoliosis. I cannot walk without the orthotics as I don't have the muscles to support my feet, they collapse inward onto my ankles.
My scoliosis has never been assessed beyond x-rays every five years. The past 10 years the radiologists have recommend that I be referred for MRI and further assessment, but the recommendation has been brushed aside by the GP saying nothing can be done now and it won't get worse. But it is getting worse and has become quite visible in the past two-three years where it never was before.
I have an appt to see my GP and I am going to ask for a referral to someone who can advise on how to manage my combo of Ehlers-Danlos and scoliosis. But *who* do I ask to see? What specialty?
Thanks for any suggestions.
Deb
My scoliosis has never been assessed beyond x-rays every five years. The past 10 years the radiologists have recommend that I be referred for MRI and further assessment, but the recommendation has been brushed aside by the GP saying nothing can be done now and it won't get worse. But it is getting worse and has become quite visible in the past two-three years where it never was before.
I have an appt to see my GP and I am going to ask for a referral to someone who can advise on how to manage my combo of Ehlers-Danlos and scoliosis. But *who* do I ask to see? What specialty?
Thanks for any suggestions.
Deb
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