Originally posted by scolio1964
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Originally posted by scolio1964 View PostI think that he said that while pilates is good for anyone, girls who are flexible and do pilates, their scoliosis sometimes does worsen.Sharon, mother of identical twin girls with scoliosis
No island of sanity.
Question: What do you call alternative medicine that works?
Answer: Medicine
"We are all African."
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Originally posted by scolio1964 View PostTo Elisa: Was your son wearing a brace when his curve progressed? If so, what kind of brace was he wearing? Did he go 15 months between x-rays? What were his measurements before the 110 degree progression? Sorry for all the questions!
As far as the "pretty" ballerina feet - I put my daughter in ballet when she was 5 because I thought she would like it. I actually wasn't thinking of her just doing ballet, but it just happened that way. I never, ever thought she would stick with it as long as she has. She just loves it and I know this because her feet hurt all the time, but she keeps going back for more!! Her feet don't look bad... yet!!!
Ballet mom, our medical system is okay up here if you have 'normal' stuff wrong with you but if you have to see a specialist, especially a pediatric specialist, forget it, get in line and wait your turn. Or as hdhugger said, 'bleed to death in the waiting room' or something like that. Sad.Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
Halo Traction & 1st. surgery on March 22nd. 2011
Spinal Fusion on April 19th. 2011
Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon
http://tinyurl.com/Elias-Before
http://tinyurl.com/Elias-After
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Originally posted by Elisa View PostHis first set came back at 47* and was immediately referred to a spine specialist. Six months later his curve was around 75* and x-rays the other day showed he was at 110*. I don't know if anyone else around here has had such fast progression but he is one of the extremely unlucky ones who's curve just went mad.
What was the time between the 75* and the 110*?Sharon, mother of identical twin girls with scoliosis
No island of sanity.
Question: What do you call alternative medicine that works?
Answer: Medicine
"We are all African."
Comment
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Originally posted by Pooka1 View PostYes but the question is whether the rate at which these kids doing pilates progress is different than the rate at which kids sitting on the couch eating ice cream progress. Without a very large, very well-controlled case study, nobody can know the answer to that, not a surgeon nor a bunny.
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Originally posted by Pooka1 View PostWell that is 28* in 6 months or almost 5*/month which is very fast.
What was the time between the 75* and the 110*?Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
Halo Traction & 1st. surgery on March 22nd. 2011
Spinal Fusion on April 19th. 2011
Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon
http://tinyurl.com/Elias-Before
http://tinyurl.com/Elias-After
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Originally posted by scolio1964 View PostYou are right. I even spoke with her pilates teacher about it. I was trying to blame pilates because I felt like there had to be something or someone to blame. She explained that my daughter only does 1 hour of pilates a week and she didn't do it the whole month of December and didn't start it until October. She does ballet 5 days a week for about 20 hours a week and she's done that for a couple of years, minus the summer months. It's probably not the pilates that made her curve worse. There are so many things that it could be that I've just decided that if my daughter wants to continue with the pilates, that it's her choice. I don't want to take the things she loves away without REALLY knowing they were doing her harm in the first place. Unfortunately, we'll never know what made it worse, and if it stops or continutes progressing, we won't know what caused that either.Sharon, mother of identical twin girls with scoliosis
No island of sanity.
Question: What do you call alternative medicine that works?
Answer: Medicine
"We are all African."
Comment
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Originally posted by Elisa View PostThose were the only three sets of x-rays Pooka so I really don't know. But remember, it was the chiro who brought up his second set of x-rays and it was he who measured the 75* but you and Ed both felt that it 'looked' closer to 85* to 90* remember?
But I was just asking you how much time elapsed between the chiro radiographs and this week. Was it about four months?Sharon, mother of identical twin girls with scoliosis
No island of sanity.
Question: What do you call alternative medicine that works?
Answer: Medicine
"We are all African."
Comment
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Originally posted by Pooka1 View PostYes I agree. It is very hard to "know" much in this area because it is damn near impossible to "show" anything in a rigorous way. A research colleague of mine likes to say, "Everybody KNOWS it but nobody SHOWS it." He was talking about something in my field but it could equally apply to bracing and PT and ballet and pilates as it related to progression in AIS.
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Originally posted by Ballet Mom View PostYes, science certainly has its limitations!
Science is still the only game in town for knowing anything real.Sharon, mother of identical twin girls with scoliosis
No island of sanity.
Question: What do you call alternative medicine that works?
Answer: Medicine
"We are all African."
Comment
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Originally posted by scolio1964 View PostTo Elisa: I am so sorry about your son, but I am glad that he is on the emergency list. I hope that it doesn't take too long to have the surgery. I wish you the very best!!Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
Halo Traction & 1st. surgery on March 22nd. 2011
Spinal Fusion on April 19th. 2011
Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon
http://tinyurl.com/Elias-Before
http://tinyurl.com/Elias-After
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Originally posted by Pooka1 View PostYes that would make the progression rate >5* a month which would be the highest I have ever read about on this group or anywhere actually.
But I was just asking you how much time elapsed between the chiro radiographs and this week. Was it about four months?Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
Halo Traction & 1st. surgery on March 22nd. 2011
Spinal Fusion on April 19th. 2011
Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon
http://tinyurl.com/Elias-Before
http://tinyurl.com/Elias-After
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Originally posted by Elisa View PostThank you. Considering he's got a crazy curve happening he really isn't in much pain at all and does do all his daily stuff pretty well which is bloody amazing to me. I wish you all the best with your daughter too and it sounds as though you're keeping a close eye on her. This forum has been invaluable to me and I'm sure it will be to you also.
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Okay, I went back and scrolled through my original thread where I posted the x-ray pics and this is what I came up with.
First set of x-rays: Oct. 29/09 = 47*
Second set of x-rays: about six months later (Apr. 2010?) chiro guess = 75* you guys say 85*
Third set of x-rays: January 20th. 2011 = 110*
The only accurate measurement I have is from January 20th. and the other two are rough guesses b/c I'm relying on memory, chiro measurement and guesses. I do wish I had asked doctor K. for specifics but it was one of those things that I missed unfortunately. I was dropped the halo-bomb and my mind went blank.
Edit: I dunno, that seems like a bit too much time between the second and third set of x-rays. I'll think about it tomorrow, I'm too tired tonight.Last edited by Elisa; 01-23-2011, 12:19 AM.Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
Halo Traction & 1st. surgery on March 22nd. 2011
Spinal Fusion on April 19th. 2011
Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon
http://tinyurl.com/Elias-Before
http://tinyurl.com/Elias-After
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