It's so good to hear from you again, Rohrer. I am so sorry about your pain, but it's good to know the SI joint injections helped. Ah, yes, thrush... I developed a bad case of it back in college when I kept getting strep throat and tonsilitis, over and over, so was on antibiotics. They can kill everything and allow thrush to thrive... My throat/mouth looked so white!
Regarding your feet... mine do that too. I sleep with a small (baby sized) pillow down to rest my heels on (plus a pillow under my knees) and hope for the best with the sheets. They sell something that I've wondered about-- not sure if they work or are comfortable or not, called night splints. I know I saw one that kept your heel elevated a tad to prevent pressure, plus is a little longer than your toes, to keep the sheet from touching them. Here is one I found on amazon, but is not the one I'd seen before. I don't know if spending that much is worth trying it out or not. I'm ok with my pillow and try to keep my toes pointed straight up so nothing touches the tops of them (90º angle). http://www.amazon.com/Pro-Tec-Night-...t+for+sleeping
I still have swelling and need to have an ultrasound. From what I've read, this is something that happens with CMT (for some) because the muscles aren't working well enough to send the blood flow back "upstream" and so it leaks and pools. They are still swollen in the morning and often my big toes are numb when I first get up. Better get that done!
All the best--Susie
Regarding your feet... mine do that too. I sleep with a small (baby sized) pillow down to rest my heels on (plus a pillow under my knees) and hope for the best with the sheets. They sell something that I've wondered about-- not sure if they work or are comfortable or not, called night splints. I know I saw one that kept your heel elevated a tad to prevent pressure, plus is a little longer than your toes, to keep the sheet from touching them. Here is one I found on amazon, but is not the one I'd seen before. I don't know if spending that much is worth trying it out or not. I'm ok with my pillow and try to keep my toes pointed straight up so nothing touches the tops of them (90º angle). http://www.amazon.com/Pro-Tec-Night-...t+for+sleeping
I still have swelling and need to have an ultrasound. From what I've read, this is something that happens with CMT (for some) because the muscles aren't working well enough to send the blood flow back "upstream" and so it leaks and pools. They are still swollen in the morning and often my big toes are numb when I first get up. Better get that done!
All the best--Susie
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