Hi - many of you know Jill, well after I showed her the website on the forum, she has run with it. Now that there are only three weeks until her surgery - I thought I'd say hello! I think this is a fabulous platform for patients and parents. Jill has gained so much from all of your great replies and advice. Thank you so much! Our hospital also has a family website that we have taken advantage of for friends and family to send well wishes. Once she has the surgery we will be able to post a quick note right at the hospital onto her website so our friends will know her up to the minute condition. I love reading all your posts. I will try to answer any questions once I get the hang of this site! Barb
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I have one curve in the upper right part of my back, and the degree is 42 or so. Thank you for keeping me in your prayers.Surgery: June 4th, 2004
Main curve: 44 degrees
Location of Curve: Upper Right Part of Back
Surgery Type: Posterior
T4-T12
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We'll be sending our best speedy recovery cyber vibes your way on June 4. Let us know if you have any other questions.Carmell
mom to Kara, idiopathic scoliosis, Blake 19, GERD and Braydon 14, VACTERL, GERD, DGE, VEPTR #137, thoracic insufficiency, rib anomalies, congenital scoliosis, missing coccyx, fatty filum/TC, anal stenosis, horseshoe kidney, dbl ureter in left kidney, ureterocele, kidney reflux, neurogenic bladder, bilateral hip dysplasia, right leg/foot dyplasia, tibial torsion, clubfoot with 8 toes, pes cavus, single umblilical artery, etc. http://carmellb-ivil.tripod.com/myfamily/
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Yeah, actually I am excited. I can not wait to have a straight (straighter) spine, and I can't wait to get rid of my brace! I am not too nervous either. I have been doing track to keep in shape and I am mentally prepared. I understand that it will be painful but I am prepared for the worst. Thanks for asking.Surgery: June 4th, 2004
Main curve: 44 degrees
Location of Curve: Upper Right Part of Back
Surgery Type: Posterior
T4-T12
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Carmell's Website
What a wonderful family you have and what a fabulous website. I am so glad I visited it. Your kids are great and Braydon is a real trooper. Your family and his surgeries give me strength to get through Jill's surgery. Thank you for sharing your family, your stories, and your lives with us! BarbJill's Mom - Surgery, Children's Memorial Hospital - June 4th, 2004
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Barb - thanks for your kind words. I appreciate them very much.
We'll be thinking of you and Jill on June 4. I'm sure she will do fine. It's those first few days post-op that she'll think she's been run over by a Mack truck, but, if she can stay focused on the outcome, everyday you'll see improvement. I'm glad she (and you) understand that this isn't a little procedure. It is HUGE! Knowing as much about what to expect is good - sugar-coating isn't healthy, IMHO. I'm just glad that we can share experiences. I learn so much from all the members of this board and the other lists I belong to. Good luck (again) and know we'll be sending our best your way!Carmell
mom to Kara, idiopathic scoliosis, Blake 19, GERD and Braydon 14, VACTERL, GERD, DGE, VEPTR #137, thoracic insufficiency, rib anomalies, congenital scoliosis, missing coccyx, fatty filum/TC, anal stenosis, horseshoe kidney, dbl ureter in left kidney, ureterocele, kidney reflux, neurogenic bladder, bilateral hip dysplasia, right leg/foot dyplasia, tibial torsion, clubfoot with 8 toes, pes cavus, single umblilical artery, etc. http://carmellb-ivil.tripod.com/myfamily/
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