Does anyone else recongnize the condition called Marfan's? Well, I believe if you haven't yet, you very well could!
After hearing that several of you have heard many times that the "average" Scoliosis patient is normally tall and thin...I recalled having Marfan's linked to my scoliosis about the time it was discovered when I was 13. In addition to my scoliosis bracing and treatment, I was sent to a Genetisist and tested for Marfan's...mostly because, as I recall, I had the perfect body type of someone with Marfan's, and having Scoliosis bumped up my chances.
I later learned that they go hand-in-hand. Luckily, I was not diagnosed with Marfan's in the end, but continue to carry characteristics of it....which I've noticed are some of the topics brought up frequently here on the forum, so some of you may want to be aware of this condition...
Characteristics to look for: Scoliosis (of course), long arm length (my arm-span is 4 1/2" longer than my height), being tall and thin (I weighed barely 100 lbs. at 14 with a height of 5' 4"), high flexibility, mild or high joint hyperextensibility (double-jointed), large palm and long fingers. Finally, an echocaridiogram is performed to indicate any heart mumurs or abnormalities, which is a symptom of Marfan's. (this being the only characteristic I did not have)...
So, I'd like to hear from others who may have had had an experience with Marfan's? or I'd be happy to add some info from my personal experience if any of you need to know more about Marfan's and it's link to Scoliosis...
After hearing that several of you have heard many times that the "average" Scoliosis patient is normally tall and thin...I recalled having Marfan's linked to my scoliosis about the time it was discovered when I was 13. In addition to my scoliosis bracing and treatment, I was sent to a Genetisist and tested for Marfan's...mostly because, as I recall, I had the perfect body type of someone with Marfan's, and having Scoliosis bumped up my chances.
I later learned that they go hand-in-hand. Luckily, I was not diagnosed with Marfan's in the end, but continue to carry characteristics of it....which I've noticed are some of the topics brought up frequently here on the forum, so some of you may want to be aware of this condition...
Characteristics to look for: Scoliosis (of course), long arm length (my arm-span is 4 1/2" longer than my height), being tall and thin (I weighed barely 100 lbs. at 14 with a height of 5' 4"), high flexibility, mild or high joint hyperextensibility (double-jointed), large palm and long fingers. Finally, an echocaridiogram is performed to indicate any heart mumurs or abnormalities, which is a symptom of Marfan's. (this being the only characteristic I did not have)...
So, I'd like to hear from others who may have had had an experience with Marfan's? or I'd be happy to add some info from my personal experience if any of you need to know more about Marfan's and it's link to Scoliosis...
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