Wow! Finally igot my account activated. I had to make another account to get in! lol! Well I have been reading for a while now and finally I can post!! so here goes my story!
My 11 year old daughter was very recently diagnosed with scoliosis. She was screened at school, and then we went to the pediatrician who did x-rays, and referred us to a specialist from Tulane. Well we saw the specalist 2 Thursdays ago. Originally the ped. said that the x-rays showed a 37 degree curve. So we went to the appt. expecting ot be braced. Well after the spec. did the cobb angle on it, her spine is actually almost an s shape and it has a 49 degree curve on the top and 37 degree curve on the bottom. Sorry I do nto know all the specific terms. So we were very shocked to say the least.
He looked at a previous x-ray and said that last year she barely had a 20 degree curve so it has progressed very fast. Upon examining her he saw a spot on her stomach that he questioned and asked if she had any other spots. I said she has a darker one on her back. He looked at it, and got a very different look on his face. He started asking all kinds of questions and looking at her x-rays very closely. He pointed out a gap in the bone at the very base of her spine. he said that along with the marks that she has is leading him to be believe that there is more to this than just scoliosis. So he scheduled an MRI that we did this past Thursday. They had ot put her to sleep for this. We get the reults this thursday. Well in the meantime he said that she definately needs surgery asap!! WOW!!! I just did not know what to think at that time. He said that it is not really just an option at this time b/c of how fast it is progressing. So her surgery is scheduled for MAy 12th. He told us to go home research it all. Write down any questions and bring them when we go back this thursday. At that time we will also discuss all the aspects of the surgery. He said he knows that it was alot to digest, so he did not want ot go into to much detail at the time.
So within a matter of three weeks (barely) we are diagnosed and scheduled to have surgery!!!
I am scared to death, and so is she! She has been so depressed since we have found out! She has always been a healthy active child who has been in karate and soccer. something that she will have to give up! Its just all to much for me to process.
I have learned soooooooo much from reading this board. I look forward ot hearing even more from you guys!!!
Sorry for all the rambling...I think I got in all the important details....lol!!!!
So any feedback, suggestions, anything appreciated!!!!!
My 11 year old daughter was very recently diagnosed with scoliosis. She was screened at school, and then we went to the pediatrician who did x-rays, and referred us to a specialist from Tulane. Well we saw the specalist 2 Thursdays ago. Originally the ped. said that the x-rays showed a 37 degree curve. So we went to the appt. expecting ot be braced. Well after the spec. did the cobb angle on it, her spine is actually almost an s shape and it has a 49 degree curve on the top and 37 degree curve on the bottom. Sorry I do nto know all the specific terms. So we were very shocked to say the least.
He looked at a previous x-ray and said that last year she barely had a 20 degree curve so it has progressed very fast. Upon examining her he saw a spot on her stomach that he questioned and asked if she had any other spots. I said she has a darker one on her back. He looked at it, and got a very different look on his face. He started asking all kinds of questions and looking at her x-rays very closely. He pointed out a gap in the bone at the very base of her spine. he said that along with the marks that she has is leading him to be believe that there is more to this than just scoliosis. So he scheduled an MRI that we did this past Thursday. They had ot put her to sleep for this. We get the reults this thursday. Well in the meantime he said that she definately needs surgery asap!! WOW!!! I just did not know what to think at that time. He said that it is not really just an option at this time b/c of how fast it is progressing. So her surgery is scheduled for MAy 12th. He told us to go home research it all. Write down any questions and bring them when we go back this thursday. At that time we will also discuss all the aspects of the surgery. He said he knows that it was alot to digest, so he did not want ot go into to much detail at the time.
So within a matter of three weeks (barely) we are diagnosed and scheduled to have surgery!!!
I am scared to death, and so is she! She has been so depressed since we have found out! She has always been a healthy active child who has been in karate and soccer. something that she will have to give up! Its just all to much for me to process.
I have learned soooooooo much from reading this board. I look forward ot hearing even more from you guys!!!
Sorry for all the rambling...I think I got in all the important details....lol!!!!
So any feedback, suggestions, anything appreciated!!!!!
Comment