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Hi Sharon,
I am glad you got the news you wanted to hear today.
Please remember that people post here to learn, share opinions, and offer insight..........what good would a forum be if everyone just posted "that's great" all of the time - nobody would bother to post.........obviously support is important too, but most of us come here to learn and hear of others experiences too.
Best of luck with the surgery!
-Cara
I disagree with your analysis of why I see things the way I do.
Also, Pam's experiences are not necessarily relevant to other people. She needs to learn that.
Thanks for the good wishes.
sharon
Sharon, mother of identical twin girls with scoliosis
No island of sanity.
Question: What do you call alternative medicine that works? Answer: Medicine
Nicole had a very large rotation by the time we had the surgery. He said that the method that they would use to de-rotate and correct was a good one but that the downside was that it would take long and she would lose blood. I am sure many of the kids aren't rotated as much. I was so hoping that he was wrong and that she wouldn't need the blood transfusions. But she did. But I was glad that I was mentally prepared for that.
Melissa
From Bucks County, Pa., USA
Mom to Matthew,19, Jessica, 17, and Nicole, 14
Nicole had surgery with Dr. Dormans on 9/12/07 at Children's Hospital of Phila. She is fused T-2 - L-3
Nicole had a very large rotation by the time we had the surgery. He said that the method that they would use to de-rotate and correct was a good one but that the downside was that it would take long and she would lose blood. I am sure many of the kids aren't rotated as much. I was so hoping that he was wrong and that she wouldn't need the blood transfusions. But she did. But I was glad that I was mentally prepared for that.
Well, blood transfusion is very very very safe these days. That's why he doesn't have kids self donate very often. Her fusion isn't that long and given that only 30% of these types of patients need transfusions, I'm betting she won't need one.
I got four units when I bled out with my ruptured ectopic and didn't contract anything. There's one data point!
I asked about the correction for the rib hump. S definitely has one. He said it would be very much improved but not perfect.
I asked about rib removal given they grow back within 2-3 months and he said it was rarely done any more.
S is very flexible and we are getting this early. I hope she gets a very good correction after going through this.
sharon
Sharon, mother of identical twin girls with scoliosis
No island of sanity.
Question: What do you call alternative medicine that works? Answer: Medicine
I'm glad your daughters appointment went well and I hope that her upcoming surgery goes well and recovery is smooth.
Everyone who's joined these group forums has valuable information to offer through their own personal experiences.
I don't visit here often but when I do I tend to share my personal experiences and take at face value others' experiences as well. I realize I am playing devils advocate but keep in mind that the advice Pam has given are just her experiences and though her situation may not be exactly as your daugthers it is still valuable.
Regardless of how great or horrible someones surgery turned out it's important to hear and keep in mind both good and bad experiences. While your doc may recommend or suggest one thing it's always a good idea to have a second, third or even fourth opinon. And while your doc may say one thing someone elses doc may say something else. The only thing I'm saying here is that it never hurts to have options and from what I can tell Pam is only trying to give you alternatives to keep in mind just in case.
Pam is very knowledgeable about scoliosis and various treatments because she's lived her life with scoliosis and has recently had fusion surgery so to me her experiences are invaluable.
I sincerely hope all goes exactly as your surgeon has said it would go otherwise I'm afraid your headed straight for disappointment should anything go awry. Please keep your eyes and ears open for any what if's in never hurts to be mentally prepared for the worst while being optimistic and hoping for the best.
Amanda
Amanda
Mom to Lorena 7 yrs old
Diagnosed 8/2005 ~ 26 Degree Curve
Progressed to 42 Degrees by Dec 05
Milwakee Brace 1/16/06 - 6/26/06
Vertebral Stapling on 6/26/06 @ Shriners in Philadelphia
26 Degree Post Op Curve
Last X-Rays December 07 ~ 26 Degree Curve
Email: domingo_amandapompa@msn.com
Website: www.vertebralstapling.com
YouTube Video: http://www.youtube.com/watch?v=n6GmX3K7FIs
I guess we are going to have to agree to disagree both on how Pam comes across and her apparent intentions.
I do not assume Pam's fusion surgery as an adult is necessarily relevant to my daughter's surgery and I don't understand why others might.
In re doctor's telling patients different things, how are us lay folks ever supposed to come to a bottom line on what is better or worse? Pam routinely concludes that if another surgeon does anything different than her surgeon, that other surgeon can't possibly be a specialist in this surgery. She has now implied that a few times. How comical is that? Given that our surgeon is in fact an expert on this, it is beyond comical. Her mistake on that, her inability to read for comprehension when misquoting folks, inter alia, necessarily undermines my opinion of her other statements.
ETA: I find the implication that I wouldn't get an expert in pediatric orthopedic surgery for AIS insulting. Pam has implied that a few times. Who would fail to get the appropriate expert for their child? It's like accusing me of being an incompetent parent. And she does it blithely. I'd like to see how blithe she is if someone impugns her parenting. You would see some hypocrisy there I bet.
In re being disappointed if anything goes awry, I think EVERYONE would feel that way, not just me. I know the risks. All I can do is get the best care for my daughter I can find. That's all anyone can do.
I wish you luck sounds like the pre op went well, but I really don't think anyone is trying to ATTACK, i think theyr just trying to help u but...thats my opinion, best of luck
Danielle 14 Freshwoman December 1st got no head the boston brace Pre Brace Curves:18C 25T 30L In brace curves: (1/23/08) 16C 20T 22L In brace Curves: (5/21/08) 19C 19T 15L We're Bringing CURVY BACK
I wish you luck sounds like the pre op went well, but I really don't think anyone is trying to ATTACK, i think they're just trying to help u but...thats my opinion, best of luck
I would liken it to the situation where most horses who are abused are abused not out of violent attacks by people but out of ignorance. Reckless ignorance.
Thanks for the good wishes.
sharon
Sharon, mother of identical twin girls with scoliosis
No island of sanity.
Question: What do you call alternative medicine that works? Answer: Medicine
I guess we are going to have to agree to disagree both on how Pam comes across and her apparent intentions.
I do not assume Pam's fusion surgery as an adult is necessarily relevant to my daughter's surgery and I don't understand why others might.
In re doctor's telling patients different things, how are us lay folks ever supposed to come to a bottom line on what is better or worse? Pam routinely concludes that if another surgeon does anything different than her surgeon, that other surgeon can't possibly be a specialist in this surgery. She has now implied that a few times. How comical is that? Given that our surgeon is in fact an expert on this, it is beyond comical. Her mistake on that, her inability to read for comprehension when misquoting folks, inter alia, necessarily undermines my opinion of her other statements.
ETA: I find the implication that I wouldn't get an expert in pediatric orthopedic surgery for AIS insulting. Pam has implied that a few times. Who would fail to get the appropriate expert for their child? It's like accusing me of being an incompetent parent. And she does it blithely. I'd like to see how blithe she is if someone impugns her parenting. You would see some hypocrisy there I bet.
In re being disappointed if anything goes awry, I think EVERYONE would feel that way, not just me. I know the risks. All I can do is get the best care for my daughter I can find. That's all anyone can do.
sharon
Oh, please. Editing, editing, editing ... add in some Latin after you Google to make sure you've got the proper phrase ...
*yawn.
And, say what you want about my parenting ... at almost 19 and 20, I have been known to refer to them by names that would implicate I'm a loose woman. (snicker)
BTW, I guess I did ok. My oldest defends your rights to say whatever you want, wherever you want, and I'm proud he does - whether or not I agree with you.
Oh, please. Editing, editing, editing ... add in some Latin after you Google to make sure you've got the proper phrase ...
*yawn.
I used the phrase "inter alia" in a research paper I published in 1993 in a peer-reviewed science journal based on some of my post doctoral research. So I've been familiar with the phrase at least that long.
In contrast, YOU just googled it to see what it meant. You wouldn't even know to italicize it or why to do so.
See how you project? See how transparent you are?
And people wonder why I think you are ignorant. I'm going to repost this exchange if it comes up again.
I would liken it to the situation where most horses who are abused are abused not out of violent attacks by people but out of ignorance.
Originally posted by Pooka1
That said, my horse benefits from "chiro." My horse has pain on certain regions of his topline associated with his recovery from an injury. The vet does some quick push motion and the pain is instantly removed. Now this is obviously either freeing an impinged nerve or otherwise deadening the pain response because you canNOT produce a pain response on that portion of his back after the vet does the voodoo that he do.
Was your paper about horses?
You know Sharon, Pam is here trying to help people prepare for a surgery which she knows about first hand - why are you here? Just to argue with anyone who shares an opinion or advice that isn't what you want to hear. Is this why you only got 1 opinion before major surgery for your daughter? Liked that one, so why listen to anything else?
I remember in the last thread you mistakenly quoted Maria, saying that you had already told her who the dr was, when you had not - she did not get angry at you, yet you cannot let go of Pam's misread and keep bringing it up all the time, even after she apologized.
The rest of us are here to learn from each other, if you don't want anyone's opinion here, why do you post? Maybe someone, including Pam, will make a point that could make a big difference in your daughter's surgery or recovery - but you think you already know all the answers - so Why do you post?
Cara, Mom to Nathan
Diagnosed 24 deg. in July 2007, progressed to 38 deg. by August 2007
Boston Back Brace 8/07 – 12/07
VBS 12/10/07 Boston Children's Hospital
Dr. Hresko
40 Degrees before VBS
11 Degrees now!! (2012)
You know Sharon, Pam is here trying to help people prepare for a surgery which she knows about first hand - why are you here? Just to argue with anyone who shares an opinion or advice that isn't what you want to hear. Is this why you only got 1 opinion before major surgery for your daughter? Liked that one, so why listen to anything else?
I remember in the last thread you mistakenly quoted Maria, saying that you had already told her who the dr was, when you had not - she did not get angry at you, yet you cannot let go of Pam's misread and keep bringing it up all the time, even after she apologized.
The rest of us are here to learn from each other, if you don't want anyone's opinion here, why do you post? Maybe someone, including Pam, will make a point that could make a big difference in your daughter's surgery or recovery - but you think you already know all the answers - so Why do you post?
all i can say, AMEN
Danielle 14 Freshwoman December 1st got no head the boston brace Pre Brace Curves:18C 25T 30L In brace curves: (1/23/08) 16C 20T 22L In brace Curves: (5/21/08) 19C 19T 15L We're Bringing CURVY BACK
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