Hello
My son, Cole, is scheduled to have final fusion surgery with hardware July 24th and I would like to hear about surgery/hospitalization/recovery time info for other kids Cole's age-he is 13 yrs old. He is to be fused from T2-pelvis or right before. He was born with severe congenital scoliosis and has already had 9 back surgeries. He has had fusion twice b4 at 18 months and 3 1/2 yrs old but not so much on the spine plus some was cut out when he had a halo and rods inserted later on. One fusion was from T4-T10. Both times he had the fusion he had a torso cast on for approx 3 months but the Dr is not sure yet if he will have cast or brace or what yet. He said he will know alot more about details while in performing the surgery and can really see what is going on in there.
I am curious as to if kids his age have had to have the cast or a brace or anything to hold the curve for awhile after surgery? Also, what was the recovery time like once home from Hospital? We have been told he will be in the Hospital for 9-10 days with some of the first few days in ICU and incubated (on a vent). We have been thru surgeries many times before but none exactly like this plus he was much younger when had the fusions so I would wonder if this age things will be different. Will he be able to move around once home (to a point that is). Like how long until they moved more? Anything you can give me on info would help. Thanks!
Stacey
So Cal
Surgery at CHLA
My son, Cole, is scheduled to have final fusion surgery with hardware July 24th and I would like to hear about surgery/hospitalization/recovery time info for other kids Cole's age-he is 13 yrs old. He is to be fused from T2-pelvis or right before. He was born with severe congenital scoliosis and has already had 9 back surgeries. He has had fusion twice b4 at 18 months and 3 1/2 yrs old but not so much on the spine plus some was cut out when he had a halo and rods inserted later on. One fusion was from T4-T10. Both times he had the fusion he had a torso cast on for approx 3 months but the Dr is not sure yet if he will have cast or brace or what yet. He said he will know alot more about details while in performing the surgery and can really see what is going on in there.
I am curious as to if kids his age have had to have the cast or a brace or anything to hold the curve for awhile after surgery? Also, what was the recovery time like once home from Hospital? We have been told he will be in the Hospital for 9-10 days with some of the first few days in ICU and incubated (on a vent). We have been thru surgeries many times before but none exactly like this plus he was much younger when had the fusions so I would wonder if this age things will be different. Will he be able to move around once home (to a point that is). Like how long until they moved more? Anything you can give me on info would help. Thanks!
Stacey
So Cal
Surgery at CHLA
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