Linda, Carmell, Allison and all,
I am learning at an exponential rate here folks...
First of all, I must say that all of my interactions with Sarah have been information guided and non emotional, just trying to give her the best information I can and talk to her about what might or might not be done. The same with filling in her dad, though we talk sometimes behind the closed door and admittedly, share some frustration about this new diagnosis. That said, it is minor in comparison to what some other patients have to deal with for sure.....
We talked about the brace a bit and how it would be used to keep her from progressing and also how it would not correct the rib hump or curve. She had the wind knocked out of her sails last night.
Sarah is a strong kid, does well in school, involved in theatre, speech tournaments, piano and for age 13 has a strong sense of who she is. She does not follow the norm, dressing in the latest fashion. She often will wear Beatles tshirts, The Doors, Marilyn Monroe or her fender Tshirt , jeans,with her fake pearls and converse sneakers. I bring this up only to give a picture that she is not afraid to be who she is and follow her own creative muse. But....she is just 13 and the realization that this is her new body shape, got her pretty upset.
But my husband and I spoke about how to best keep this in perspective. Sarah says she noticed her thickened waist a year ago and just thought she was "fatter" on that side. (She is a petite little thing at just 5' right now) We thought, she has gone to PE, sleep overs etc, and no one has noticed among her friends. And furthermore, what if they do notice!
So my husband and I talked and thought about how best to take the spotlight off her and help her to realize that this is not "who" she is...that, like linda said, there are worse things than being assymetrical.
And by the end of the night, Sarah and I made a committment to getting stronger and start doing pilates 3 times a week together. We are going to buy her a yoga mat today and a new pilates DVD too.
It may be time for a monthly trip to Scottish Rite hospital to volunteer, or to our local soup kitchen. Sarah has been involved with animals and dog groups, raising over $500 for a canine service dog organization this fall by designing and selling tshirts. It is probably time to make this sort of thing more a part of our daily lives.
I am still going to call the doctor at Scottish Rite Hospital in regard to why not brace now? Maybe the doctor did tell me yesterday, but I have been processing so much info, and I took the call at work so I may have not heard that part correctly...who knows!
Thanks for letting me ramble here, Sarah agreed with me this morning that she is really an assymetrical kind of kid,
Cheryl
I am learning at an exponential rate here folks...
First of all, I must say that all of my interactions with Sarah have been information guided and non emotional, just trying to give her the best information I can and talk to her about what might or might not be done. The same with filling in her dad, though we talk sometimes behind the closed door and admittedly, share some frustration about this new diagnosis. That said, it is minor in comparison to what some other patients have to deal with for sure.....
We talked about the brace a bit and how it would be used to keep her from progressing and also how it would not correct the rib hump or curve. She had the wind knocked out of her sails last night.
Sarah is a strong kid, does well in school, involved in theatre, speech tournaments, piano and for age 13 has a strong sense of who she is. She does not follow the norm, dressing in the latest fashion. She often will wear Beatles tshirts, The Doors, Marilyn Monroe or her fender Tshirt , jeans,with her fake pearls and converse sneakers. I bring this up only to give a picture that she is not afraid to be who she is and follow her own creative muse. But....she is just 13 and the realization that this is her new body shape, got her pretty upset.
But my husband and I spoke about how to best keep this in perspective. Sarah says she noticed her thickened waist a year ago and just thought she was "fatter" on that side. (She is a petite little thing at just 5' right now) We thought, she has gone to PE, sleep overs etc, and no one has noticed among her friends. And furthermore, what if they do notice!
So my husband and I talked and thought about how best to take the spotlight off her and help her to realize that this is not "who" she is...that, like linda said, there are worse things than being assymetrical.
And by the end of the night, Sarah and I made a committment to getting stronger and start doing pilates 3 times a week together. We are going to buy her a yoga mat today and a new pilates DVD too.
It may be time for a monthly trip to Scottish Rite hospital to volunteer, or to our local soup kitchen. Sarah has been involved with animals and dog groups, raising over $500 for a canine service dog organization this fall by designing and selling tshirts. It is probably time to make this sort of thing more a part of our daily lives.
I am still going to call the doctor at Scottish Rite Hospital in regard to why not brace now? Maybe the doctor did tell me yesterday, but I have been processing so much info, and I took the call at work so I may have not heard that part correctly...who knows!
Thanks for letting me ramble here, Sarah agreed with me this morning that she is really an assymetrical kind of kid,
Cheryl
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