My daughter is 10 years old. She has a neuromuscular disorder called Angelman Syndrome. After going through a recent growth spurt, she also has an increasingly serious spinal curve of 83%. She has worn a brace since the curve began to develop, but it has been ineffective, as Doctors predicted. Her Orthopedic Doctor/Surgeon says surgery is now necessary, before the curve worsens.
My daughter can not speak and has no comprehension of her condition or the prospect of surgery. She communicates only through her frequent smiles and the sparkling of her eyes.
My wife and I are looking for recommendations for Doctors/Surgeons and Hospitals that will offer the best treatment for her. We live in Charlotte, North Carolina, but will take her where ever she will receive the best care.
Any recommendations would be greatly welcomed.
Thank you,
Ron
My daughter can not speak and has no comprehension of her condition or the prospect of surgery. She communicates only through her frequent smiles and the sparkling of her eyes.
My wife and I are looking for recommendations for Doctors/Surgeons and Hospitals that will offer the best treatment for her. We live in Charlotte, North Carolina, but will take her where ever she will receive the best care.
Any recommendations would be greatly welcomed.
Thank you,
Ron
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