greggo72,
Just wondering, did you try and call Shriner's to see Dr. Betz or Dr. D'Andrea? They might be able to push you up if you explain the situation. The care there is free, and those two are considered to be exceptional doctors. They are doing some really remarkable cutting edge stuff, so it's definitely worth having her seen there.
Also, you mentioned someone at HSS in New York? Was it by chance Dr. Boachie-Adjei? He is our surgeon. Our daughter is scheduled for surgery with him March 9th. He's supposed to be one of the best in the world.
My heart goes out to you guys! Best of luck to you.
Susanna
Just wondering, did you try and call Shriner's to see Dr. Betz or Dr. D'Andrea? They might be able to push you up if you explain the situation. The care there is free, and those two are considered to be exceptional doctors. They are doing some really remarkable cutting edge stuff, so it's definitely worth having her seen there.
Also, you mentioned someone at HSS in New York? Was it by chance Dr. Boachie-Adjei? He is our surgeon. Our daughter is scheduled for surgery with him March 9th. He's supposed to be one of the best in the world.
My heart goes out to you guys! Best of luck to you.
Susanna
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