can anyone using the spinecore brace give me information like has it help or what degree it has decreased if any thank you karen
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Hi Karen,
I just discovered that my daughter is having scoliosis and the cob angle is 35degree at the thoracic and 24degree at the lumba. I was introduced to SpineCore by the Doctor. She has worn it for a week and she seems comfortable now. The last checked by the supplier, on the brace, her lumba was 0 degree (not xray). I'm not sure whether this brace will help to stabilise or reverse the curve. But this is the best alternative that we can find so far compared to Boston. She is 12 years old and have not got her mense. her curve started at thoracic 5 to 7, but not sure at the lumba side. I hope this info help. Regards
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spinecore
Hello!
I was surprised to read your posts about the Spinecore Brace. I thought it was pulled from the market, ONLY because something to do with the funding. I had heard it was an effective tool for slowing/stopping the curve. What state do you live in? Pat
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Pat,
Who told you that the SpineCor brace was pulled from the market ? As far as I know, they're very doing well - I hope they're not going bankrupt ? If you pull up their website and look at case studies and scientific studies you will see that the results speak for themselves. The thing that worries me - in my own particular situation - is that the brace is relatively new and doesn't have an established following as do the Boston and Milwaukee braces. However, many people who have worn Milwaukee and Boston have gone on to require spine surgery. The SpineCor concept is very appealing - it looks like a very comfortable brace and some people have had miraculous results with it. My daughter is only four and a half, I don't know if she would be a candidate for such a brace. It's something I'll definitely look into as she gets older. Adolescent children with curves below 30 degrees have had very good results - so it's something to consider. Here's the website:
http://www.spinecorporation.com/English/index.htm
CeliaLast edited by Celia; 05-20-2005, 07:37 PM.
Canadian eh
Daughter, Deirdre born Oct 2000. Diagnosed with 60 degree curve at the age of 19 months. Serial casting by Dr. Hedden at Sick Kid's Hospital. Currently being treated by Dr. Rivard and Dr. Coillard in Montreal with the Spinecor brace and curve is holding at "2" degrees. Next appointment 2008
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[QUOTE=Celia Vogel]Pat,
Who told you that the SpineCor brace was pulled from the market ? http://www.spinecorporation.com/English/index.htm
As i understand the american firm who used to make it has sold it to a small british firm (see their website), the owner of which is very enthousiastically promoting it now on both sides of the ocean.
Published results seem extremely good, but it is very hard to work out why the idea is not really catching on yet, and i would love to hear from other people with either good or bad experiences (because of my daughter of 11 who has a 29 degree T 12 scoliosis, currently in hard brace, which is correcting it to 21 degree, not sure whetther that is "good enough")
gerbo
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First off all I would like to apologies for my bad English.
I am mother of girl born 11.04.1996., diagnosed lumbar scoliosis 21 d. according to COBB.
Rigid TLSO brace recommended, I was wondering if SpineCor brace would be better for her.
I would like to get in contact with treated patient, their experience, opinion.
Thank You in advance for any answer!
Ljubica Jagodić
Croatia
Originally posted by June RusdonHi Karen,
I just discovered that my daughter is having scoliosis and the cob angle is 35degree at the thoracic and 24degree at the lumba. I was introduced to SpineCore by the Doctor. She has worn it for a week and she seems comfortable now. The last checked by the supplier, on the brace, her lumba was 0 degree (not xray). I'm not sure whether this brace will help to stabilise or reverse the curve. But this is the best alternative that we can find so far compared to Boston. She is 12 years old and have not got her mense. her curve started at thoracic 5 to 7, but not sure at the lumba side. I hope this info help. Regards
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"As i understand the american firm who used to make it has sold it to a small british firm (see their website), the owner of which is very enthousiastically promoting it now on both sides of the ocean."
As far as enthusiatically promoting it on both sides of the ocean, I don't believe that this is the case. Our hospital was conducting a study on the effectiveness of the SpineCor brace a few years ago when the British Co. abruptly pulled all funding for the study. This seems to have been the case at many centres across North America. All children who were being treated with the SpineCor brace were suddenly left without a supplier.
Celia
Canadian eh
Daughter, Deirdre born Oct 2000. Diagnosed with 60 degree curve at the age of 19 months. Serial casting by Dr. Hedden at Sick Kid's Hospital. Currently being treated by Dr. Rivard and Dr. Coillard in Montreal with the Spinecor brace and curve is holding at "2" degrees. Next appointment 2008
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[QUOTE=Celia Vogel]"As i understand the american firm who used to make it has sold it to a small british firm (see their website), the owner of which is very enthousiastically promoting it now on both sides of the ocean."
. Our hospital was conducting a study on the effectiveness of the SpineCor brace a few years ago when the British Co. abruptly pulled all funding for the study.
Hi Celia ;although I really am not in the business of "defending" the current company, I do wonder whether the funding would have stopped when the previous company pulled out. I am also aware that the current manufacturer is only a very small business, so i would be surprised if he would be able to fund research all over the globe.
If research was conducted in "your hospital" have you any insight in what kind of results were being achieved?
best wishes
gerbo (UK)
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Gerbo,
I hope I'm not creating an international incident or bad press against the current company. This forum is a discussion place for parents and people who suffer from scoliosis. The information I gave you is based on hearsay evidence - i.e., what the orthotist told me. If Biothorex is a small company then it makes sense that funding would have stopped. Unfortunately, I have no insights into preliminary studies at our hospital. I do know that anyone who progressed more than 6 degrees were prescribed a rigid brace.
Celia
Canadian eh
Daughter, Deirdre born Oct 2000. Diagnosed with 60 degree curve at the age of 19 months. Serial casting by Dr. Hedden at Sick Kid's Hospital. Currently being treated by Dr. Rivard and Dr. Coillard in Montreal with the Spinecor brace and curve is holding at "2" degrees. Next appointment 2008
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[QUOTE=Celia Vogel]Gerbo,
I hope I'm not creating an international incident or bad press against the current company.
Not through me, that's for sure, and free exchange of information can only help us all.
did read your story about your daughter and how much she improved, very impressed, are you still in contact with dr Mehta, and how is your daughter doing?
Which was the hospital doing the trial?
best wishes
gerbo
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Gerbo,
I'm all for the free exchange of information. I was thinking that maybe you can contact any of the following centres in the U.K. and see what kind of results they have obtained so far with the SpineCor brace, if you find out anything please let us all know. I've also provided a list of U.S. centres that are currently prescribing the SpineCor if anyone in the U.S. is interested in contacting them to obtain results. If you find anything, please post the results
UNITED KINGDOM
DISTRIBUTOR
Healthcare UK Ltd
Springwood House
Foxwood Way, Foxwood Industrial Park
Chesterfield S41 9RN
United Kingdom
Contact: Mr. Andrew J. Mills
Phone: + 44 (0) 1246 454682
Fax: + 44 (0) 1246 269042
e-mail: a.mills@healthcare.uk.net
web: www.heatlhcare.uk.net
SHEFFIELD
HOSPITAL, ORTHOPAEDIC SURGEON AND ORTHOTIST
The Sheffield Children's Hospital
Western Bank
Sheffield, S10 2TH
United Kingdom
Consultants:
Mr. D L Douglas FRCS
Mr. A C Howard FRCS
Mr. A A Cole FRCS
Tel: +44 (0) 114 271 7000
CAMBRIDGE
HOSPITAL, ORTHOPAEDIC SURGEON AND ORTHOTIST
Addenbrooke's Hospital NHS Trust
Hills Road
Cambridge CB2 2QQ
Contact: Mr D Conlan FRCS (Orthopaedic Surgeon)
Tel: +44 (0) 1223 216854
Secretary: Rita
Nuffield Hospital Cambridge
4 Trumpington Road
Cambridge CB2 2AF
Contact: Andrew J Mills
Tel: +44 (0) 1246 454682
e-mail: a.mills@healthcare.uk.net
Secretary: Helen Wainwright
e-mail: h.wainwright@healthcare.uk.net
MIDDLESBROUGH
HOSPITAL, ORTHOPAEDIC SURGEON AND ORTHOTIST
James Cook University Hospital
Marton Road
Middlesbrough
TS4 3BW
Contact: Mr S Papastefanou FRCS (Orthopaedic Surgeon)
Tel: +44 (0) 1642 850850
SOUTHAMPTON
HOSPITAL, ORTHOPAEDIC SURGEON AND ORTHOTIST
Southampton General Hospital
Tremona Road
Southampton
SO16 6YD
Contact: Ian Berryman
Tel: +44 (0) 2380 777222
STOCKTON ON TEES
HOSPITAL, ORTHOPAEDIC SURGEON AND ORTHOTIST
North Tees & Hartlepool NHS Trust
University Hospital of North Tees
Hardwick
TS19 8PE
Contact: Richard Webb
Tel: +44 (0) 1642 617617
STOKE ON TRENT
HOSPITAL, ORTHOPAEDIC SURGEON AND ORTHOTIST
Hartshill Orthopaedic & Surgical Unit
North Staffordshire NHS Trust
Newcastle Road
Stoke on Trent
ST4 6QG
Contact: Mr El-Nasri Ahmed FRCS
Contact: Mrs Caroline Jackson (Orthotist)
Orthotic Dept Tel: +44 (0) 1782 553774
UNITED STATES
CALIFORNIA
STUDIO CITY
NON SURGICAL TREATMENT RESEARCH & BRACE CENTER
Pain Relief Center
Scoliosis Care Foundation
12215 Ventura Blvd
Suite 208
Studio City, CA 91604
Contact: Dr. Gary A Deutchman
Phone: (212) 360-7760
Email: scoliosiscenter@optonline.net
FLORIDA
PEMBROKE PINES
NON SURGICAL TREATMENT RESEARCH & BRACE CENTER
Pembroke Pines Chiropractic Center
186 S Flamingo Road
Pembroke Pines, FL 33027
Contact: Dr. Gary A Deutchman
Phone: (212) 360-7760
Email: scoliosiscenter@optonline.net
ILLINOIS
CHICAGO
HOSPITAL AND ORTHOPAEDIC SURGEON
Rush Presbyterian St-Luke Medical Center
1725 West Harrison Street,
Suite 440
Chicago, IL 60612
Contact: Dr. Christopher DeWald
e-mail: orthoscoli@aol.com
Contact: Ms. Nadine Trznadel, M.S.N., R.N.
Phone: (312) 942-6517
Fax: (312) 942-5185
e-mail: ntrznadel@rush.edu
MARYLAND
BALTIMORE
ORTHOTICS & PROSTHETICS CLINIC
Denison Orthotics, Inc.
220 West 28th Street
Baltimore, MD 21211
Contact: Mr. Harold E. Thompson
Contact: Mrs. Michele Koehler
Phone: (410) 235-9645
Fax: (410) 243-7043
e-mail: denison@erols.com
HOSPITAL AND ORTHOPAEDIC SURGEON
Johns Hopkins Medical Institute
Pediatric Orthopaedics
601 North Caroline Street, # 5253
Baltimore, MD 21287-0882
Contact: Dr. Paul D. Sponseller
Phone: (410) 955-3609
Fax: (410) 502-6816
e-mail: psponse@jhmi.edu
MICHIGAN
GRAND RAPIDS
HOSPITAL AND ORTHOPAEDIC SURGEON
Mary Free Bed Orthotics
235 Wealthy St. SE
Grand Rapids
MI 49503
Contact: Mr. Doug Richardson CO
e-mail: drichardson@mfbrc.com
Contact: Ms. Ellie Boomer CO
e-mail: eboomer@mfbrc.com
Phone: (616) 242-0315
Toll Free: (800) 474-0324
Fax: (616) 454-2624
Mary Free Bed Hospital & Rehabilitation Center
Outpatient Clinic
235 Wealthy St. SE
Grand Rapids
MI 49503
Contact: Norine Simmons, Clinic Nurse
e-mail: nsimmons@mfbrc.com
Phone: (800) 528-8989
Phone: (616) 242-0353
Fax: (616) 456-4850
Orthopaedic & Spine Specialist of West Michigan
750 East Beltline, NE
Grand Rapids
MI 49525
Contact: Dr Scott Russo MD
Phone: (616) 942-1313
Fax: (616) 942 6879
NEW YORK
NEW YORK
NON-SURGICAL TREATMENT RESEARCH & BRACE CENTER
SpineCor Treatment Provider:
Dr. Gary A. Deutchman
Located at the following center:
Park Avenue Neurology & Rehabilitation, PC
Chiropractic Care of New York, PLLC
Scoliosis Care Foundation
1085 Park Avenue
New York, NY 10128
Phone:212-360-7760
email: scoliosiscenter@optonline.net
SpineCor Treatment Provider:
Marc J. Lamantia, D.C., DACBN
Located at the following center:
Discover Treatments LLC
271 Nassau Blvd
Garden City South
NY 11530
New York
Phone: 212-360-7760
email: scoliosiscenter@optonline.net
HOSPITAL AND ORTHOPAEDIC SURGEON
Hospital for Special Surgery
523 East 72nd Street, 2nd floor
New York, NY 10021
Contact : Dr. Oheneba Boachie-Adjei
Phone : (212) 606-1948
Fax : (212) 794-2562
e-mail : boachie@hss.edu
PHYSICAL THERAPY CLINIC
Hospital for Special Surgery
Rehab Services
535 E 70th Street
New York, NY 10021-4892
Contact : Mrs. Charlene Hannon, P.T.
Phone : (212) 606-1213
Fax : (212) 535-0612
LONG ISLAND
ORTHOTICS & PROSTHETICS CLINIC
M. H. Mandelbaum Orthotic & Prosthetic Services, Inc.
Corporate Office
116 Oakland Avenue
Port Jefferson, NY 11777
Contact: Mr Steve Mullins (Orthotist)
Phone : (631) 473-8668
Fax : (631) 473-8691
Web : www.mhmoandp.com
HOSPITAL AND ORTHOPAEDIC SURGEON
Stony Brook University Hospital
Health Science Center
T18, Room 080
Stony Brook, NY, 11794-8181
Contact : Dr. Wesley V. Carrion
Phone : (631) 444-7693
Fax : (631) 444-8894
Health Science Center
T18, Room 020
Stony Brook, NY, 11794-8181
Contact : Dr. Susan S. Haralabatos
Phone : (631) 444-8061
Fax : (631) 444-7671
POUGHKEEPSIE
ORTHOTIC & PROSTHETICS CLINIC
Mid-Hudson Orthopedic Systems
70 Livingstone Street
Poughkeepsie, NY
12601
Contact: Mr Bob Zwissler
Phone: (845) 471 7777
Fax: (845) 471 0088
e-mail: bzwiss@att.net
PENNSYLVANIA
ERIE
ORTHOTICS & PROSTHETICS CLINIC
Presque Isle Orthopedic Lab
1225 Filmore Avenue
Erie, PA 16505
Contact : Mr. Jonathan Heifetz C.O.
Phone : (814) 838-2349
Toll Free : 1-800-438-2690
Fax : (814) 835-8042
email: pioll@aol.com
HOSPITAL AND ORTHOPAEDIC SURGEON
Shriners Hospital for Children
1645 West 8th Street
Erie, PA 16505
Contact : Dr. James O. Sanders
Phone : (800) 873-5437
Phone : (814) 875-8700
Fax : (814) 875-8778
e-mail : josanders@worldnet.ath.netLast edited by Celia; 05-26-2005, 06:11 AM.
Canadian eh
Daughter, Deirdre born Oct 2000. Diagnosed with 60 degree curve at the age of 19 months. Serial casting by Dr. Hedden at Sick Kid's Hospital. Currently being treated by Dr. Rivard and Dr. Coillard in Montreal with the Spinecor brace and curve is holding at "2" degrees. Next appointment 2008
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Dear Celia
Well, you are not half thorough, I like that. I'll think of a little questionaire to send to all consultants, asking for their objective/ subjective views/ experiences and see what we'll get back. I'll post this (the questionaire) once i am back from holiday next week
Best wishes
gerbo
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Gerbo,
Thanks for the nice words I'll see what I can come up with on my end - I won't be able to contact every centre though. Are you sending the questionnaire via e-mail ? I was thinking of just calling them on the phone.
Celia
Canadian eh
Daughter, Deirdre born Oct 2000. Diagnosed with 60 degree curve at the age of 19 months. Serial casting by Dr. Hedden at Sick Kid's Hospital. Currently being treated by Dr. Rivard and Dr. Coillard in Montreal with the Spinecor brace and curve is holding at "2" degrees. Next appointment 2008
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Gerbo/Lurkers,
I spoke to a few orthotists and I e-mailed a few others but I found that I got better responses by just talking to them directly. So... I found out that some centres are getting comparable results to published studies but others are failing miserably, this could be due to a learning curve problem. Very close follow-up is important, the straps have to be replaced/adjusted every three months. I got the impression that this was a major key to success. The type of curve treated is important, apparently long single curves do better than short or double curves. The brace is intended for small curves 30 degrees and under, although curves between 30 and 40 degrees have been treated with the brace. Studies that have been done to date have been on adolescent curves rather than juvenile curves - although it looks like studies in the juvenile group will be done at some point in the not too distant future. That's it in a nutshell.
Celia
Canadian eh
Daughter, Deirdre born Oct 2000. Diagnosed with 60 degree curve at the age of 19 months. Serial casting by Dr. Hedden at Sick Kid's Hospital. Currently being treated by Dr. Rivard and Dr. Coillard in Montreal with the Spinecor brace and curve is holding at "2" degrees. Next appointment 2008
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