Hello, We are new members....great site to gather info and wisdom.
We were just given the news last Thursday that our daughter "C" who just turned 14 has a severe case. Numbers are T39.8 and L43.9 No prior indication until she complained about her back hurting a couple of months ago. We mistook it, that her heavy backpack was the cause. Three weeks ago, we had her at the emergency room with what we thought was a partial collapsed lung. After an x-ray, they said it was inflammation around the lung lining and sent us home with some anti inflammatory meds. It was a week after, when our daughter noticed in the mirror her hips were slightly out of balance. Off to a Pediatric Ortho who gave us the news last week. Shock is an understatement. They have us scheduled this Monday for the brace fitting. The prescription is TLSO, so we believe it will be the Boston brace. The Ped Ortho Surgeon says she just has to wear it at night and after 6 months they will see if it held the progression.
Our questions, among many, are: first, is "just at night" the right thing instead of 22hrs (the Dr. says they try and spare the kids the extra stress of being "different" at school). Is this because he knows that with her high numbers we are inevitably looking at surgery so why add undue effects to her self esteem? She hasn’t started her Menarche and the Dr. says that from looking at her growth plate she has about another 2 yrs of growing. Second question; do they wait until they stop growing to do the surgery or go ahead if after 6 to 12 months they are over 50 with their numbers?
Sorry for such a lengthy post. We are trying to take it all in and our heads are just spinning.
We were just given the news last Thursday that our daughter "C" who just turned 14 has a severe case. Numbers are T39.8 and L43.9 No prior indication until she complained about her back hurting a couple of months ago. We mistook it, that her heavy backpack was the cause. Three weeks ago, we had her at the emergency room with what we thought was a partial collapsed lung. After an x-ray, they said it was inflammation around the lung lining and sent us home with some anti inflammatory meds. It was a week after, when our daughter noticed in the mirror her hips were slightly out of balance. Off to a Pediatric Ortho who gave us the news last week. Shock is an understatement. They have us scheduled this Monday for the brace fitting. The prescription is TLSO, so we believe it will be the Boston brace. The Ped Ortho Surgeon says she just has to wear it at night and after 6 months they will see if it held the progression.
Our questions, among many, are: first, is "just at night" the right thing instead of 22hrs (the Dr. says they try and spare the kids the extra stress of being "different" at school). Is this because he knows that with her high numbers we are inevitably looking at surgery so why add undue effects to her self esteem? She hasn’t started her Menarche and the Dr. says that from looking at her growth plate she has about another 2 yrs of growing. Second question; do they wait until they stop growing to do the surgery or go ahead if after 6 to 12 months they are over 50 with their numbers?
Sorry for such a lengthy post. We are trying to take it all in and our heads are just spinning.
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