Hi Everyone,
I came aboard last year after Andrew (15) was diagnosed with Scheuermanns Kyphosis. I have not been on much, but have had the pleasure of befriending Melissa and Cheryl. As you all know the whole process can be overwhelming. I still wake sometimes with the hope that this is all a bad dream. Doesnt take long for the reality to sink in though. We did travel to see Orthos at Shriners and Dupont. I was hoping to see Dr. Betz but was told he does not see patients anymore. I understand that he is involved with a new procedure called stapling. I am a little afraid to inquire about it though since I think we need to stay the course with Spincor.
So decided to go to Montreal to see Rivard/Coillard since no one in the Northeast would try the Spinecor brace on a kyphosis patient.I talked to everyone I could in the tri-state area.! Andrew started with a 78 degree curve. ( for kyphosis, 40 is normal). He was just measured in August at 43 degree!!! Dr. Rivard was great. Basically, he told Andrew that he had to wear a brace, but he was very good with him.
Drs. Rivard and Ciollard are very pleased, but remind us that stablization does not occur for at least 2 years. So we are half way there. He does look like he holds himself straighter until he bends over. When he bends over the kyphosis is still quite evident but Dr. Rivard has hope that with stablization this will improve.
Well anyway,
I just wanted to thank all of you who responded and helped us make this decision. I am not an expert by any means but could help with little issues like snaps that wont work or how to deal with schools and people who tease.
Thanks again to everyone.
Gwen
PS CherylP I have a new phone and need your number. Hope to talk to you soon!!!
I came aboard last year after Andrew (15) was diagnosed with Scheuermanns Kyphosis. I have not been on much, but have had the pleasure of befriending Melissa and Cheryl. As you all know the whole process can be overwhelming. I still wake sometimes with the hope that this is all a bad dream. Doesnt take long for the reality to sink in though. We did travel to see Orthos at Shriners and Dupont. I was hoping to see Dr. Betz but was told he does not see patients anymore. I understand that he is involved with a new procedure called stapling. I am a little afraid to inquire about it though since I think we need to stay the course with Spincor.
So decided to go to Montreal to see Rivard/Coillard since no one in the Northeast would try the Spinecor brace on a kyphosis patient.I talked to everyone I could in the tri-state area.! Andrew started with a 78 degree curve. ( for kyphosis, 40 is normal). He was just measured in August at 43 degree!!! Dr. Rivard was great. Basically, he told Andrew that he had to wear a brace, but he was very good with him.
Drs. Rivard and Ciollard are very pleased, but remind us that stablization does not occur for at least 2 years. So we are half way there. He does look like he holds himself straighter until he bends over. When he bends over the kyphosis is still quite evident but Dr. Rivard has hope that with stablization this will improve.
Well anyway,
I just wanted to thank all of you who responded and helped us make this decision. I am not an expert by any means but could help with little issues like snaps that wont work or how to deal with schools and people who tease.
Thanks again to everyone.
Gwen
PS CherylP I have a new phone and need your number. Hope to talk to you soon!!!
Comment