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Information and Support
 
Scoliosis affects 2-3% of the population, or an estimated 6 million people in
the United States, and there is no cure.

Scoliosis impacts infants, adolescents, and adults worldwide with little
regard to race or socio-economic status. The primary age of onset for scoliosis is 10-15 years old, occurring equally among both genders. However, females are eight times more likely to progress to a curve magnitude that requires treatment.

Scoliosis can impact the quality of life with limited activity, pain, reduced
respiratory function, or diminished self-esteem.

The vast majority of people with this condition are not expected to require
treatment. The problem is we do not know who will get it, why they get it,
which will progress, or how far they will progress. Each year scoliosis
patients make more than 600,000 visits to private physician offices, and an
estimated 30,000 children are put into a brace for scoliosis, while 38,000
patients undergo spinal fusion surgery.

Despite physicians trying to treat this spinal deformity for centuries, 85% of
the cases are classified as idiopathic. Consequently, a scoliosis patient's
life is exacerbated by many unknowns, and treatments therefore that are often
ineffective, invasive, and/or costly. Scoliosis patients also have increased
health risks due to frequent x-ray exposure.

Scoliosis is a multifactorial disorder, which requires multidisciplinary
research and treatment.

You are not alone in your journey of living with scoliosis. There are many
common issues facing every scoliosis patient, yet your personal story and
experience with this spinal deformity is unique. Consequently, we believe that
Information and Support is essential to make the informed healthcare decisions that must be made along the way, but we also recognize and respect each person's individual needs.

 

 
Frequently asked questions
Some of the questions most often asked of the NSF
 
Ask A Question
If your question is not answered by the FAQ
 
Glossary of terms
A list of scoliosis-related terms and their meanings
 
Helpful Links
Some helpful links to other scoliosis-related sites