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Thread: I have to worst possible case of scoliosis ever

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  1. #1
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    Arrow I have to worst possible case of scoliosis ever

    my scoliosis is bad. my spine is actually rotating and can affect my heart and stomach and can lead to cardiac arrest. im so stressed

  2. #2
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    Who told you this?

    Are you sure you understood it correctly?

    The potential problems you mention are ONLY if you don't seek treatment for the curve/rotation and it gets worse, yes?
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
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    "We are all African."

  3. #3
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    yes i heard it correctly and i am currently wearing a TLSO brace

  4. #4
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    If you are getting treatment, why are you stressed?

    Won't treatment avoid those medical problems you are worried about?
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  5. #5
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    dancer,

    What *exactly* was said? I can hardly imagine a reputable doctor telling someone they "have the worst case of scoliosis ever". That's a pretty extreme, not to mention subjective, statement.

    Anyone with a progressing curve COULD potentially experience organ impingement, but it isn't guaranteed, or even all that common. While there's some debate about the exact point where organs are affected, it's generally seen in curves over 80 (sometimes sooner, sometimes later).

    I see you're under 18, but how old are you? Have you talked to your parents about this?

    It isn't accurate to generalize like you're doing, nor is it healthy. Instead of letting yourself get bogged down in an "end of the world" mentality, educate yourself. If they're bracing you still (vs. no surgical intervention), it can't be all THAT bad.

    Find out the specifics of your curve: Where is it located and what degree is your rotation and Cobb measurement?

    Who is your ortho, and does he specialize in scoliosis?

    Take a deep breath and calm down, hon. I'm quite certain it isn't as gloomy as you believe.

    Regards,
    Pam
    Fusion is NOT the end of the world.
    AIDS Walk Houston 2008 5K @ 33 days post op!


    41, dx'd JIS & Boston braced @ 10
    Pre-op 53, Post-op < 20
    Fused 2/5/08, T4-L1 ... Darrell S. Hanson, Houston


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  6. #6
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    dancer,

    I see you posted last month where you're 13, and say you have a 34.3 curve.

    Who measured that? Curves aren't recorded in tenths of degrees ... they can't possibly be measured that precisely. It's commonly accepted that curves can vary as much as five WHOLE degrees in different x-rays - or even the SAME x-ray measured by different doctors.

    A 34-35 curve isn't tremendously large. Also, almost all of us has some degree of rotation, so don't blow that out of proportion ... it isn't uncommon at ALL.

    I know it's scary, but you're only seeing the worst, Really, and I mean this in a good way, you're solidly *average*.

    Hang in there.

    Pam
    Fusion is NOT the end of the world.
    AIDS Walk Houston 2008 5K @ 33 days post op!


    41, dx'd JIS & Boston braced @ 10
    Pre-op 53, Post-op < 20
    Fused 2/5/08, T4-L1 ... Darrell S. Hanson, Houston


    VIEW MY X-RAYS
    EMAIL ME

  7. #7
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    Quote Originally Posted by txmarinemom View Post
    dancer,

    I see you posted last month where you're 13, and say you have a 34.3 curve.

    Who measured that? Curves aren't recorded in tenths of degrees ... they can't possibly be measured that precisely. It's commonly accepted that curves can vary as much as five WHOLE degrees in different x-rays - or even the SAME x-ray measured by different doctors.
    I agree. I wonder if there are any reputable surgeons who report degrees to the tenths. They know it is meaningless.

    I am worried you are getting paranormal treatments from a chiro. That's something you should be worrying about, not a mid-thirties curve.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

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