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Thread: East Coast Surgeon Recommendation for Young Adult

  1. #1
    Join Date
    Mar 2009
    Posts
    2

    East Coast Surgeon Recommendation for Young Adult

    Hi, I'm a 22 year old female who was diagnosed with scoliosis when I was 5. My curve is about 55 degrees and I'm ready to have surgery. Does anyone have any recommendations of surgeons on the East Coast of the US who have had surgery in the past 3 years? I would love to hear from other young adults or parents of young adults about their recent surgery experiences.

    I am considering fusion and tethering as well.

    Thank you
    Last edited by dr mom; 01-09-2020 at 09:24 PM.

  2. #2
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    7,107
    Hi...

    Welcome to the forum. I'm not sure you'll find a lot of other young adults on here, but you never know.

    VBT on adults is still very rare. The only surgeons I've heard even considering it are Baron Lonner (https://www.mountsinai.org/profiles/baron-s-lonner) and Darryl Antonacci (https://www.spineandscoliosis.com/me...SAAEgLMF_D_BwE).

    --Linda
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation

  3. #3
    Join Date
    Oct 2019
    Location
    Washington state
    Posts
    51
    Is your curve thoracic or lumbar?
    Feb 2003 - Diagnosed C (35) T (45) L (25)
    Dec 2003 - T2-T12 Fusion correcting to C (8), T (14), L (20)
    Oct 2019 - Lumbar curve progressed to 40
    Nov 2019 - Thoracic curve progressed to 31
    ??? 2020 - T10-S1 Fusion with SI fixation

  4. #4
    Join Date
    Mar 2009
    Posts
    2
    thoracic, between my shoulder blades. my left ribs are all smushed together bc of it and it can be painful to breathe and stretch sometimes.

  5. #5
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    4,087
    Where are you located? I ask because if you go out of state, out of network, insurance companies used to only pay 50%. Scoliosis surgeries are not cheap.

    If you think your going to do surgery, now is the time to go with a plan where you can select your own doctors and surgeons. I would do this before you see anyone.

    Cheap medical policies mean large co-pays. A few years ago, I had a cheap plan, and I had a neck MRI done and the co-pay was $1800 in 2013. Always check your co-pays!!!!

    When I did my scoliosis surgeries in 2008, I purchased the best insurance I could find (in 1998). My Co-pay on $2 million dollars worth of surgeries was $1000. Thoracic posterior surgeries will be much cheaper if there are no serious issues.

    Adult scoliosis surgery is not an emergency, so you do have time to get all your ducks in a row.

    Here is the SRS Physician locater...
    https://www.srs.org/find/disclaimer.php

    Ed
    49 yr old male, now 61, the new 61...
    Pre surgery curves T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

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