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View Full Version : I Am A Boy With Scoliosis.. i hate it so much... i don't know what to do anymore :(



Amin2646
09-05-2005, 11:39 PM
To sum everyhting up... It has taken over my whole life.... I have scoliosis in my lower spine, the lumbar, i believe is what it's called... but thankfully it is kind of in the middle and my spine goes back to position when it ends at my pelvis. My curve last time i was checked up, was 22-23 degrees... i was diagnosed in 8th grade with a 15 degree curve... i am now 16 and in 10th grade... i have lost weight and now i can feel my scoliosis<--- this is where my problem begins... From the very day that i found out that i had scoliosis i started always touching it and i just kept feeling the curve..i still do that... I'm so scared that i am going to have to get surgery, my doctor said that i dont need a brace.. b/c i hips are inline.... But i am still deathly scared.. I go through so much stuff wondering... WHY ME WHY DID THIS HAPPEN TO ME! I dont understand! I always look at everyone else and just wonder "what is it like to have a straight spine" ... if i could just feel how that felt... gosh i dont know what i would do :( I really dont want surgery, i probably wont have it... i just want to be normal... can anyone see where i am coming from (especially another guy?) I just UGH! i dont want this anymore... my next appointment is i think the 15 or 16th of this month. I JUST WANT FOR ONCE TO SIT BACK IN A CHAIR FULLY WITHOUT MY SPINE POPPING OUT ON ONE SIDE!... why me... why does this have to take over my life.... why why why... I WANT TO BE NORMAL.....enough... this makes me sad :( Please someone repsond...

-Amin-

PS: i am sorry if i sound so desperate, but i feel that i can express myself about my scoliosis on here hoping that people just like me will understand :(

rincotato
09-06-2005, 06:13 AM
I COMPLETELY UNDERSTAND, hi i'm a 15year old girl with scoliosis, i think i have a double major curve which is really noticeable to me and i bet to everyone else, i definately don't look normal anyway.I find myself looking at others too and thinking 'why can't i just have a normal spine, i'll never know what that feels like!' then i find myself getting jealous of ppl who have normal backs, which sounnds completely stupi, but i can't help the way i feel. i just want to be normal too! I feel as though i'm going through this on my own because even when i try to explain to others (which isn't very often) about how i'm feeling about scoliosis, they just can't understand, but why would they??because they have normal spines. I knwo what u mean about sitting in chairs too, i find it har to even get comfortable in bed! I don't have a brace and I don't think my back is bad enouhg to need surgery, but sometimes i feel like i just want surgery to make my appearance better and more acceptable to me. But i probably won't have surgery because it seems like too drastic a rick to take if i don't acutally need surgery.

I feel exactly the way you do and you don't sound desperate, even if u did it doesn't matter, because i feel exactly the same way, even though i'm not another guy i can still relate to you. And forums like these i find help u express what ur feeling to ppl who can actually understand you :)

AuraFlarez
09-06-2005, 10:11 AM
I'm a guy with scoliosis, also. You're lucky you don't need a brace, yet. (although, you probably will need one in the future.) My scoliosis doesn't show as much, anymore. (it never did show too much) Ever since I got my brace, I've gone out much less. I can't walk one step without getting stares, in public. If you think your scoliosis shows too much, imagine how I feel with a brace... It's supposed to be "low profile" but it actually sticks a whole lot out of my back. I'm 15, going into 10th grade. I'm willing to bet my brace will ruin the rest of my highschool years. I just got shoulder straps for my brace and I hate them already. They are too obvious, even under my shirt. We all wish our spines were straight. Sometimes, I just want surgery to kill my scoliosis so I won't be such a social outcast. Girls have it much easier in bracing, they stop growing much sooner than guys do, which means they can forget about the brace and scoliosis. Enjoy your time out of the brace while you still can, man...

rincotato
09-06-2005, 02:24 PM
I'm a girl with scoliosis and i don't have a brace and don't think i'm going to get one. But we really don't have it much easier, all of us whether male or female have issues with scoliosis, for me it's body issues. My scoliosis IS noticeable already without a brace and it sucks! We're all in the same crappy boat or hating scoliosis. I feel like you, sometimes i just want surgery to correct my scoliosis and improve my appearance. Are you going to have any kind of surgery???

rincotato
09-06-2005, 02:25 PM
...and believe me, we can never forget about scoliosis, it's always going to be there and i'm always going to hate it.

AuraFlarez
09-06-2005, 03:58 PM
Nope, no surgery yet... just bracing. The brace hasn't even helped me, so I might have surgery...

rincotato
09-06-2005, 04:46 PM
sometimes i wish i could have surgery, but it seems to drastic a measure when i don't think i'm at the point of needing it, i just kinda want it. Good luck with everything then whatever u decide to do :)

Amin2646
09-07-2005, 01:10 AM
The docotor said i have only two choices ... watch or surgery, at this point we are just watching.. as long as my curve stays under 30 degrees we wont have to worry about anything. Currently it's at about 21/22 so hopefully it wont go anymore. They also said when they looked at my Xray that the growth line thing around my pelvis is formed, which from what they said, means that i am just about done growing. So i pray that i am done growing... i am 5'9 and happy with my height... and if i get the news that my scoliosis wont get worse... i dont even know how i would feel.. it would be like a 3 million pound weight being lifted from my shoulders.... well until that news... i am still stuck....im just glad that i come here and talk to people with the same issues... it really helps :)

flowerpower
09-07-2005, 02:56 PM
Just wanted to make a suggestion to you guys since you all seem to be teens. There is a website for teens with scoliosis www.spinekids.com - lots of girls (and quite a few boys) all dealing with the issues you are all facing. I have to say one thing to AuraFlarez: I know exactly how you feel - I wore a brace (Milwaukee) when I was 12 till about 16-17. I remember how traumatized I was at first to go to school and dealing with the stares and rumors about "what happened" to me, some people even made really mean comments about me being "handicapped". However, I was determined to "fight back" and not let it stop me from being a teenager. Yes, I was self-conscious but I realized that if I didn't make a big deal out of it everyone else would get over it, too. I played sports all through high school and yes, I even had boyfriends while braced! I know how important the teen years are, I have a 14 year old son who is facing surgery in December. I know he feels his life will be on hold for a while but I am doing my best to help him adapt to his situation also. This forum and also the spinekids site are great ways to help you deal with all this as there are lots of people who understand you!

Take Care,

Renee

AuraFlarez
09-07-2005, 07:23 PM
That makes me feel better, flowerpower, thanks. That's good to hear, amin. 21/22 degrees isn't noticeable at all. Unless you bend over, which I doubt people will care about. Since you're done growing so early, it gives me some hope... maybe I won't have to wear my brace after 10th grade. My doctor hasn't even said a thing about how much growth I have left. That probably means I still have plenty of growing to do.

suzyjay
09-07-2005, 08:29 PM
21/22 is not noticable at all! :D unless u bend over! mine is 18/18 and no1 notices it! :)

ScolioGirl
09-07-2005, 09:46 PM
Amin -

I understand what it's like to feel different and to want to be normal for a while. But the thing that you've got to remember is that people don't look that hard at you. Really. They probably could only tell you have scoli if they knew what to look for, especially because your curve is pretty mild.

Also, scoliosis doesn't have to take over your every day life :D. You don't wear a brace yet, hopefully never will, and surgery is definitely a very remote possiblity. Try not to worry. I was diagnosed with scoli a while ago and had 19* and 13* curves, I forgot them 99% of the time and lived a perfectly normal life, and I'm so glad I did. Now I think about scoli every day when I put on the brace, go to school taking visits to the nurse for pain, taking my pills, trying to schedule surgery, whatever. And I'm very glad I didn't have to do this - all the scoli worries about progression(not so much now that my curves have tipped surgery level), more worries, general anxiety, things like that - every day for the two and a half years my curves were stable.

Also, I'd really like to recommend Spinekids.com (http://www.spinekids.com). That forum is extremely active and has mostly kids who are extremely supportive. They've helped me so much through all this, I think I'd be a mess without them :).

Amin2646
09-08-2005, 12:04 AM
Thank you all for your kind words and awesome support. It's so good to come here and be able to talk about my problems and have people help me deal with it. I know i probably won't have to have a brace or get surgery, but i think my conflict is more with myself... before i found out i had it... i never even bothered with my back... now it's literally every other minute... what can i do to get my mind off of it and not touch it so much... :confused:

-Amin-

MrTubbs
09-08-2005, 02:49 PM
Hi Amin, was ment to post yesterday but have been flat out resting, It would be nice to have a big screen on the ceiling so that i can read the long posts lying down :) , anyway Amin you seem to know alot about the degree of misalignment with your spine, and your still young, not meaning to sound patronising at all as my scoliosis was never diagnosed until I was about 30! and I've sufferd since about 5 or 6 years of age classified as chronic low back pain even though it would move to my neck shoulders stomach ribs top mid and base of spine with sciatica in legs, heavey migrains. All these things I have learnt to live with even depression (now cured), and have learnt masses about doctors drugs, nutrition, and excercise. Now that i'm 37 and have no chance of surgury as I'm in the UK and very poor and waiting lists are a joke, AND I reckon I'm to old for surgury because the surgury is very expensive and lengthy and I wouldnt be able to earn enough back to pay for it, comes down to economics. So learn as much as you can from these forums Amin as I will (this my 1st post) as I don't know a thing about degrees and disc numbers yet maybe you can help me, although I have self helped myself for very long time. I have learned many skills to make life a little easier with these pains, I will do my best to learn more & help out anyway I can in these forums, It realy helps the mind to know theres a whole bunch of us with something we can identify with. My best self help book with over 20years experience is " The Ultimate Back Book " by Dr-Ali www.dr-ali.co.uk helped me to understand so many things i was doing wrong, dehydrating, bad diet, coffee addiction, bad posture. I learnt safe yogic exercises saving hundreds in Ostiopath fees!, drug free pain killing massage oils, I can completely reset my spine myself now using that book, even breathing exerices and meditation, this realy helps with anxiety, confusion, moodswings, depression, frustration, and wanting to harm yourself and others. When things arn't so painful I have managed to be a dj producer and mix my own records design & run a bunch of websites etc etc so you can have a good go at things. Your post reminded me of the confusion and depression I was going through growing up tryin to work it all out, anyway I'm glad you found this place as I am, I'll try not to go on so long next post ok haha bye for now, my website is for all, all contents are free www.ka05.com

As for degrees of misalignment, All I know is my left shoulder drops down alot lower than the right one, I always seem to sleep on left side, I do my best to correct this, One theory from Dr-Ali says Scoliosis is more than likely caused by some kind of traumatic experience at a young age, mine was Meningitus-B.
Please excuse my bad spalling I'm also dixlexic. :D

ScolioGirl
09-08-2005, 07:58 PM
Amin -

I don't know how you can stop thinking about it... :confused: maybe try to be more at peace with it? Wanting to stop is the first step, though, so congrats. maybe if you start to think about scoli try to move on to another activity that will distract you...anyway, good luck.

rincotato
09-09-2005, 03:30 PM
but what if your scolisosis IS noticeable like mine? whether i bend over or not. and sometimes it doesn't even matter whether other ppl notice it or not, but its the fact that's its all i see when i look in the mirror, i notice it all the time! :(

djsmom
09-09-2005, 03:32 PM
I was diagnosed in the 7th grade and immediately sent to an Army hospital. (My dad was a retired staff sergeant so the Army would pay for everything) We had to take a bus for three hours to Ft. Leonard Wood then take an Air-Evac plane to Fitzsimmons, Colorado. There the doctors decided to "invent" a new brace-combination Milwaukee and I don't know what. It was huge, bulky and very hot. It covered right under my neck with huge bars, chin plate, and casting down over my hips practically riding into my upper thighs. Thank God I was skinny then! Anyway, I decided early on that this wasn't going to slow me down. I entered a beauty pageant at school (I did get to take my brace off for that) and was the first incoming freshman to ever win. That helped my confidence level. I tried out for the Flag Corps and made it. I loved it and even helped with choregraphy. Granted, there were those that were mean, but I chose to ignore it. That was their problem and I wasn't going to let it be mine. I even tried ice skating and skidded on my back like a turtle on it's shell. I laughed my --- off. Every three months I had to fly to Fitzsimmons and stay a week at that hospital. I missed school events and had lots of make up work but enjoyed the daily outings my mom and I took around Denver. (you had a bracelet, stayed in the hospital, but basically had outside privileges unless they had something scheduled, which wasn't alot of the time) If you don't let it, it WON"T rule your life. I now carry 30 pounds too much and am trying to diet and exercise because my back feels so much better w/out the weight and I hate being a size 12; regardless if I've yo-yo'd to a size 6 or 12 my husband lets me know he thinks I'm sexy. There will be a girl who has a good heart and will like/love you with or without that brace. Even at 38 I still have my days where I see girls in bikinis and with beautiful straight spines and even curved waists (something I never had even at my skinniest!) and wish that my back wasn't messed up. Then I have to remember to thank God that I'm not in a wheelchair, or don't have severe burns or left without a limb or something like that. Take care of yourself and keep your muscles strong and limber. The better you feel, the more that will be reflected in your personality and people won't care as much as you think they will.

Sorry, I rattled, but I remembered thinking that way and being soooo depressed when first diagnosed. I wanted to let you know it will get better. On a different note...by my junior year I decided the curves stopped, the brace isn't doing a damn thing and I threw it in the trash. I had my mom take me to a chiropractor and through adjustments and spinal traction he actually improved my curve a few degrees. That had NEVER happened. Remember, there are always alternative treatments. Massages and hot tubs are awesome for your back and weight lifting and stretching can do lots for your posture and self esteem. I wish you a world of luck and most of all health and happiness!!!

DiakosUCF
09-11-2005, 12:04 AM
Hey there guys and gals, I too know what you are going through. Now 26 and have been dealing with the problem for the last 10+ years. Was always a fat kid growing up and got picked on throughout grade school for that, as I got older I lost weight and my "hump" became apparent. I developed kyphoscoliosis, 50 degress forward, ie. hump, and 15 to the right, which I only found out a few months ago after ignoring things for so long. Being a big guy my spine took quite a beating carrying the weight ontop of the scoliosis. My shoulders and hips are both off, right side both lower. Right leg and right arms both seem a bit longer then the left. Having a very noticably lower right shoulder is just one aspect, when I lean over or bend all the way over a very very very visible hump shows. Once I lost the weight the kids had something else to pick on me about...woohoo. Around 17 or so I finally said screw it!! Got confident in who I am and those few problems are what makes me me...been good ever since :) Only suggestion to you younger folk is definately get it treated while its still just a small problem. People may look and say things but who cares. I never got it treated and neither did my folks and I'm kicking myself for it now. Terrible pain with every step, lower back and shoulder pain all day everyday and some good shooting pains down my left leg. Basically saying, wear the brace and be proud of the way you look, make the problem who you are and not some terrible thing that has happened to you. People dont care about those things, I may see it and feel bad but your friends will see the real you and not the brace or the hump...dont let it run your life!!! Just take care of it, a few years of little stupid ass kids saying things or a lifetime of pain...its your call.

By the way, I do agree with the above post. I too do alot of weightlifting and alot of stretching to keep everything loose. Muscles tightness plays a huge role in the pain! Definately can say feeling better about yourself show through to everyone around you...and that is the person they are seeing!!

suzyjay
09-11-2005, 12:25 PM
Theres another great site called Spinekids.com!
Theres heaps of boys and girls there with scoli! i <3 that place and u shud too! :D check it out

marmyte
09-24-2005, 08:18 PM
...there is a positive way of viewing all of this.

i'm 18, i live in the UK and i'm 10 weeks post op from anterior surgery. health is such a sensitive issue, especially when it affects the way we look, but i think that in the politest sense, a reality check is in order.

i know exactly how some of you feel: i was diagnosed at 14 and it felt like the world had collapsed on my head. however, none of my friends knew i had scoliosis until i told them (granted i didn't have to wear my brace to school) but looking back at photos of myself 4 years ago, i had a noticeable lateral shift, plus no waist on my left hand side due to my curvature (lumbar curve was about 45* at diagnosis and around 50* immediately before surgery)

personal history aside (just to prove that this isn't me telling you to buck your ideas up, i do know it's a difficult concept to get your head around initially) but it gets easier, plus when you think about it, how much of your life does high school take up? alright it's five days a week now and that's your current life, but ultimately, what people think of you at school doesn't last forever. the bigger portion of your life is what you choose to make it in future. the career you can have, the people you surround yourself with and the vast majority of your life taking place outside of school

what i'm saying is, although it's tough now and seems neverending, having a brace to contain or correct a curve at this stage may be thoroughly worth it. any opportunity to avoid surgery should in my opinion be cherished (and some of you have recognised this) so i think that with the support of your families, close friends and communities online, you can work your way through your teenage years, persevere with treatment and come out of the experience stronger and with your life ahead of you which you can enjoy

so please, try and look at this experience positively (which unfortunately it's taken me a long time to do) and remember that it's a short term tribulation for what is hopefully a long term gain...and i hope what i've said isn't misconstrued as an attack, i'm just trying to relate my experience and help others find their way through :)

LilSkittlehunni
09-24-2005, 11:20 PM
like most of these guys have said, try to have a big happy positive outlook on it, even though it may seem SOOOO unfair and u feel so different. i got a boston brace in february, and i just recently got out of it because it didnt work for me, so now in november im having surgey. i have a really big rib hump on my right side, and whenever i used look into the mirror i'd get a sick feeling. i felt really deformed and stupid looking. but now it really dosnt bother me that much, cause if sumone has a problem with the way i look, they can go ahead and laugh. i really do not care. spinekids.com helped me realize that (a great website!).
i really hope you feel better about all this, and that everything goes super good 4 u!
§BrIaNn§

UArkGina
09-26-2005, 12:12 AM
:) My name is Gina and I have just joined this forum... I've never posted here before. I am 20 years old and I was diagnosed with scoliosis at age 11. I had an S curve in my spine, 64 degrees to the left and 39 degrees on the lower spine to the right. I had a "rib hump"- the hump resulting from my spine pushing my rib cage backwards. The doctors told me that if I didn't have surgery, I could ultimately become crippled or die from the chronic pneumonia that I was experiencing due to my lung position.

I had a major 12 hour surgery done by Dr. Richard McCarthy out of Little Rock, Arkansas, while I was in grade 6. (Some of you may have seen the show "Extreme Surgery" on the Discovery Channel- that was him). I had 2 Herrington rods placed in my spine, and I am fused from the C3 in the neck to the L2 in the lower back. I spent a week in the hospital and it was about a month before I could go back to school full days.

I was just reading through some of your posts and noticed the fear and apprehension. I just wanted to say: Please, dont worry! Scoliosis may bother you now, but it is not the be and end all. I have led a full and awesome life and am now in university studying to be a nurse and in a wonderful relationship with someone who has asked me to marry him- rods or not! I have had some back pain, but it has never been strong enough to take over my spirit. If I can do nothing else on this forum, I just wanted to write my story in for support. I didn't have much when I was going through this, and wanted to lend a helping hand. Now, all of my friends see my scar and they compliment me on my bravery... in a way I feel as if this experience shaped me.. literally! When the doctor straightened me out, I went from a height of 5'1'' to 5'4''! I have been able to play some sports and even be on my high school pom squad.

I know my life living with scoliosis is a lot easier than for some of you, but I too have experienced tons of pain. Before my surgery, there wasn't a night or day that I could go through without excrutiating pain. I went to school and was made fun of constantly... especially if anyone saw the scar on my back and around my chest wall. I was so upset about it for such a long time, but I realized that life is precious and I was just thankful to come off the surgery table. I just wanted to offer my support and praise to all of you who are being so brave not only to go through this, but to reach out to others who are also suffering- it helps!!

Good luck and God Bless....
Gina

thesatindoll
09-27-2005, 02:07 PM
Hey I know how you feel!!

I hate having scoliosis. I have a back brace AND I'm having surgery! My surgery is in Nov/Dec...we thought it would be in June so I couldn't do things liek the Spanish Exchange and the School Play because my surgery might happen at that time.

I've learnt to live with it...it's not the end of the world no matter how bad it feels..you won't always have it! And I love it when people try to hit me in the stomach and they injure their hand because they hit the brace!!! :p

Cloudy
07-07-2006, 11:21 PM
hey
im a 12 and a half year old girl and was diagnosed at 11 and a half i half had 2 braces and have a boston right now till im about next summer :( i will prabably need the surgury even after bracing. i want the sugury but im scared :o
Veronika

35-40T
55L

P.S. hpe ur doing better ;)

Ca2roline
07-19-2006, 04:44 PM
your not alone. A lot of people feel this way but you shouldnt fear surgery. A 22/23 degree curve is hardly anything. And since your in 10th grade it shouldnt worsen because within the next couple of years you will fully mature (as in your bones and stuff) and it will stop growing. Once your at that magical age, it will only worsen if it gets around 45 degrees, which i highly doubt would happen.

It seems like its your mind noticing the curve. Try pretending you dont have scoliosis for a little while, and youll realize after a while that its not as physically noticable. And trust me, the only one that notices it is

YOU.


finally, i know it sucks living with it and stuff, but in later years youll realize that its not really making your life miserable, its just how you handle it. After my surgery, i found inside of me that scoliosis isnt like haveing a giant zit on your forehead that everyone notices, or like haveing bad headlice that you dont want to tell a soul about (great ex. huh? :rolleyes: ). Its just a condition. Its not like having cancer, or AIDS, or having a brain tumor that keeps you on the edge all the time. Theres worse in life.

Dont let it control you, dont let it control your mind. It may take some time, but youll find later that you will be soooo much more comfortable with it, and much more open.


okay, enough words of wisdom from me :rolleyes: but i hope that does help :o

DiakosUCF
07-21-2006, 08:52 PM
Well here's my story and am hoping it helps. I am 27 years old and have kyphoscoliosis. Meaning I have a significant hump in my back along with the scoliosis caused from having Schuererman's disease. I only wished that I was diagnosed at a young age and giving the chance to wear a brace to correct thing but nothing was ever done about my problem until I was 24 so the damage had been done.

Growing up I had always been the fat kid in school so I got picked on quite a bit. The Schuerermans didnt kick in till highschool and the problem with being fat is that spinal problems like that are hard to detect. So I went through school as the fat kid with the big hump...didnt make things any better. Made sitting at desks uncomfortable, unable to put my back flat against the chair and still cant to this day.

Only thing you have to do is take a look inside yourself and overcome it all. Make friends with those that are good enough to be your friends. Its all about personality and self confidence. After highschool came college and I loved it. Good friends and amazing times, that whole personality counts thing does indeed go far with the ladies, remember that guys!! ;)

I was tired of being the fat kid and lost a good 75 pounds, 320 down to 245, have since put on quite a bit of muscle and am now at 260. One advantage of being a big guy is that the curve is not as noticable and of course there is all the healthy stuff that goes with working out.

Finally diagnosed with the kyphoscoliosis at 24 after I graduated, got a job, got insurance and decided to do something about the constant intense pain I was having! My curve has increased from 50 degrees back then to 70 now and am in need of surgery but still debating it.

In the end I have a good job, great woman, good friends and living life with a very crooked painful spine and, from what they tell me, about three inches shorter than I could be!! But who cares...its all good!!

Cant let this problem run your life! What doesnt kill us makes us stronger! Pain just lets your know youre still alive! Its all mind over matter! Laughter is the best medicine! That's all the sayings I got but you get the point. Goodnight :)

cia
07-25-2006, 11:14 AM
My 17 yr old son knows how you feel. He had surgery 2 years ago. He is getting ready to have surgery again in September. He feels the same way you do. Chad's mom.

nancystreasures
11-12-2009, 08:26 PM
I am a mom & I have to say you kids are breaking my heart - my little boy is going to be 11 in Feb & his scoliosis has been severe & noticable ever since he started school at 4 yrs old - he is special needs -he has Smith Magenis Syndrome & wore a full upper body brace for his scoliosis for 3 years straight - his classmates called it his chest armor LOL (it didn't help so we stopped) - I feel especially sad because he does not know to have these feeling you kids have -but now I sit & think about how others may have looked at my son as a handicapped freak (I think that is what one of you called it) well he is not - yes he is special needs/handicapped & yes he has scoliosis, but his friends at school think he is the coolest little guy going - even the jr & high school kids still remember him & acknowledge him - you are only as happy & beautiful as you want to be - your friends will still be your friends if you let them but you have to love yourself first, don't be afraid to talk about your situation - you may be surprised how you may help someone else... sorry for the rant... you are beautiful ---
Ben should be having surgery in the spring 2010 -- I do hope you all do okay!!! Nancy

bracegirl
11-14-2009, 01:35 PM
Hey Everyone!
I totally know what you all are going through! I was diagnosed at age 11 and braced at age 12. I wore a brace for over 5 years, and let me say its not easy. Scoliosis sucks. Plain and simple. One thing I think really really helped me was support groups through my hospital. Most hospitals offer groups that meet and its great to talk to other patients face to face. This site and spinekids.com are great resources as well, but nothing can beat the face to face discussions you can have. As far as keeping your mind of scoliosis, I know its hard. Especially when braced. But an extra-curricular is a great thing. I was a coxswain for a rowing team (i steer the boat and give orders to the rowers). It was a great way for me to do a sport without harming my back. If you're under 5'2'', I'd definitely see if there is a crew team in your area. Coxing is a great thing for scoliosis patient (and what teenage girl doesn't like having 8 boys under her control??!!). And for you guys, there are female boats too! I am a huge advocate for finding something to do outside of school. Friends are so important and they make everything easier! Hope everything goes well for all you girls and guys!

JDM555
12-05-2009, 09:42 PM
You think you have it bad at 22 degrees? I'm sorry to say this, but get over it. It is the truth, don't just keep thinking about this scoliosis and how it is ruining your life, you're only a kid and you have your whole entire life ahead of you. What you're saying isn't a big deal imo, yes, you have scoliosis and yes you are unlucky, but there plenty of others who are much worse off than you.

For the record, I am a 19 year old male. I had a giant growth spurt at the age of 16.5. I was 5'7 and within 1 year I jumped up to 6'1-6'2. I was extremely skinny and that is when I noticed my scoliosis. I didn't think it was the end of the world, I didn't hate myself and keep complaining. I went to the doctor and figured out what I needed to do. My first doctor told me it was 15* and It was no big deal. I was busting my ASS at the gym daily and eating over 4000 Calories a day to get in shape and gain muscle because I didn't like how skinny I was. By the time I turned 18-19 I was 6'4 and 193 lbs. I felt my rib cage sticking out from my lower right back getting worse monthly. Turns out my first xray which the doctor thought it was 15* was 40*. And when I went to get another xray at 19, It was 53*.

So imagine this, I'm in your position, only 10x worse. I didn't get the chance to wear a brace. I am already ridiculously tall at 6'4 and I don't need any more height from my scoliosis. I don't have another choice except for surgery on my 53* LUMBAR curve. And I am in pain 24/7, I can't walk for over 10 minutes or sit for over 10 minutes without my back throbbing. It always feels so tight/tense, if I bend over, I feel like my spine is going to snap because it is so tight. AND to top it all off, all the months of hard work in the gym gaining my weight will be lost in recovery after my surgery which is in 12 days.

But am I hear yelling at myself or getting mad over why I had to have scoliosis and not just a normal spine? No, it's not going to help anything when you beat yourself up like that, just accept what is wrong and fix it the best you can. Not everyone is perfect.

Again, you have your WHOLE life ahead of you, just hope you don't need surgery and it stops progressing, but if you do end up having surgery, it's 100% ok, PLENTY of teenagers get this surgery and it is fine. No big deal. I hope you learn from my post and understand that scoliosis, which sucks, is still manageable and you can get over it. I wish you luck and I hope you enjoy life.

Snoopy
12-06-2009, 07:10 AM
JDM,

Are you replying to the person who originally started this thread? If so, you might want to know this person might not be on the forum anymore. The original post was from 2005!

JDM555
12-06-2009, 12:57 PM
JDM,

Are you are replying to the person who originally started this thread? If so, you might want to know this person might not be on the forum anymore. The original post was from 2005!


Yeah, I found out after I wrote a 6 page essay that someone revived a very old thread and was like....awesome. Oh well, maybe if another boy/girl reads it, it might help them I guess.

spinalfusion09
12-06-2009, 02:52 PM
hi there! Don't let this take over life dude! 22 degrees is nothing compared to some scoliosis cases. I just had fusion on the 30th of September 09 and yeah it was hard! I had a 60 degree curve in my thoracic spine and you thought your back popped out of the side. My rib hump was pretty evident when I bent down. I was self conscious about it. But thats how I was made, and it needed to be fixed. There's nothing you can do to change how you were made and that might seem hard to accept. I've had family members who have had cancer and my mom did blood work at a hospital when she was in college. I am very thankful for my health even though I wasn't perfect before and I'm not perfect now. It could be a lot worse ya know? At least its a skeletal disorder and if it does get worse it can be fixed and not something like leukemia. I'm 18 so I'm not that far off from your age. If you have any questions feel free to ask.
Maliha

spinalfusion09
12-06-2009, 03:00 PM
whoops I replied too haha

Snoopy
12-06-2009, 03:50 PM
That's okay JDM. It felt good to get that off your chest,though didn't it? ;)

Mary Lou

Hannamom
12-06-2009, 08:46 PM
What ever happened to Amin? He last posted in 2005. He'd be 20 years old now.

JDM555
12-13-2009, 02:41 AM
That's okay JDM. It felt good to get that off your chest,though didn't it? ;)

Mary Lou

Oh why yes it did. My surgery is in 3 days. Oh man I can't wait to get cut open like a piece of steak! Whenever I take off my shirt or something and girls ask me how I got that scar, I'll just say "I got in a fight with a shark, and I won" LOL.

Snoopy
12-13-2009, 07:04 AM
Oh why yes it did. My surgery is in 3 days. Oh man I can't wait to get cut open like a piece of steak! Whenever I take off my shirt or something and girls ask me how I got that scar, I'll just say "I got in a fight with a shark, and I won" LOL.

I am sitting her laughing my butt off at "I got in a fight with a shark....." My daughter has always worn a bikini and with the except of the first summer after surgery, that hasn't changed. She quickly learned that some people are rude and just blurt out "Geez! What happened to you?" and I told her, depending on whether or not the person was being rude or just curious, feel free to tell them whatever you want. For example, tell them, while wearing your brace (before surgery) that you were skiing and took this awesome jump and fell and broke your back. Or after surgery, TELL THEM A SHARK ATTACKED YOU! (I forgot to tell her the part about, and I won).

While standing in the ocean one time a little boy, about 10, came up to her and asked her what happened. As soon as she told me what happened, I immediately asked, "did you use the shark attack story?" She said, no, he was just curious little boy and I didn't want to scare him." Darn, it would have been so perfect!

Keep your sense of humor and you will go far. My daughter and I feel, why hide the scar? Whenever someone asks about it, she uses it as an opportunity to inform someone about Scoliosis. Good luck with your surgery.

Mary Lou

JDM555
12-13-2009, 11:23 PM
Haha yeah, I will definitely make up jokes out of my scar. I bet I will get a lot of weird looks or questions about the scar. I don't mind that at all. And it seems like "A shark attacked me" is awesome. It's definitely on the list of things to say when someone asks.

Thanks about my surgery, I hope it all goes well too. Like I said, I actually can't wait because I want to get fixed up already. I feel like a little kid counting down the days to go to Disneyland or something lol.
John

JenniferG
12-14-2009, 04:01 AM
I think you'll go great, with such a positive attitude. We'll be thinking of you and looking forward to your first posts!

JDM555
12-14-2009, 04:22 PM
I think you'll go great, with such a positive attitude. We'll be thinking of you and looking forward to your first posts!

Haha thank you and wish me luck. Surgery is in 2 days.In less than 48 hours I'll be in surgery.

Rosebud9
01-08-2010, 09:45 PM
Hi-
You sound just like me!! But i am a 10 year old girl and i was diagnosed when i was 6. i always think the same thing like why am i not straight. But i have a 20 degree curve in my lumbar. but i have a slight curve in my upper spine too. But i have to wear a brace. it's awful!! don't worry about surgery because my little cousin has a 65 degree curve and thats about what degree that your spine has to be. But they probably will brace you because where i go they brace when you have a 20 degree curve!!! Good luck!!!!!

squid626
11-19-2010, 08:29 PM
first of all, dont wish for surgery. i am a 12 year old girl that has to have sugery in 25 days.not fun. plus i know how you feel with your spine. try having veryone laughing becouse of it. my friends told EVERYONE.:mad::(
now i am missing my winter band concert, 2 weeks of school and last but not least one of my friends. i hate having the idea that i will have metal in my back. i have cried everyday for 3 weeks now.:eek: but i do get where your coming from. just skiming over your message i can tell that you really hate it... i can not go on roller coasters for a while. just think theres always someone else worse off from you! thats my words of wisdom. plus bracing sucks, lemme tell ya. 6 months in a brace i didnt even need...
:D its all good now though... no more brace
:D:D

Elisa
04-01-2011, 11:49 AM
Get a life idiot.

Elisa
04-01-2011, 12:33 PM
Clarification for people reading through after the spam was deleted, the preceding post was in response to since-deleted spam.
Thanks hdhugger for the clarification. I thought that moron's account was deleted already so was surprised to see him at it again. >_<