Well I'm new and excited to be here. I need support. My daughter Allana is 13 months old. I had mentioned to her doctor that I thought her back looked "off". He said she was developing and it would probably work itself out. For her 12 month checkup he said he thought she might have a case of scoliosis. We did x-rays and it was confirmed that she had scoliosis. Today we went to a spinal specialist and took more x-rays. The results were, she has a 50 degree curve laying down and a 62 degree curve sitting up!! She has been officially diagnosed with "idiopathic infantile scoliosis". She will have an MRI done to examine the base of her brain stem and will soon be fit for a custom brace. We were told that he wanted to delay surgery as long as possible so were gonna start with a brace that she might have to wear until shes 13-14 or we are looking at an operation if things don't get better fast. My heart is broke and I am looking for any advice to help. I am glad to have found people also dealing with these issues.
thanks-
thanks-
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