Thank you all for posting so much information about your families on the Forum. It is so reassuring to know that we are traveling a path with others in this world. About one week ago, Amaya, the 16-month old daughter of my niece was diagnosed with congenital scoliosis. Polly, my niece, has been struggling to obtain information and direction. Polly took Amaya to Dr. Paul Sponseller’s office 01/15/2010 - the date she was diagnosed.
Polly has only interacted with Kristen Venuti, Dr. Paul Sponseller’s nurse practitioner, but she has only been able to obtain vague information. Although Polly has tried to talk directly with Dr. Sponseller, he has not returned her phonecalls. The exact anomalies were difficult to confirm on x ray. There may be a lumbar unsegmented bar and wedge hemivertebra, and possibly something thoracic. Polly and Amaya were told that the only course now is to monitor progression by returning in six months. But Polly is left not knowing the range of options for the future, or when/why any treatment shouldn't occur now before Amaya's spine becomes more fixed.
My niece and her family are in Frederick, Maryland, and Polly would travel anywhere to get things on the right track. Amaya and her family need to understand better the anomalies and find someone who can help them understand both the merit of the immediate plan to monitor and the scope of future options. Please let us know your physician recommendations and your experiences. Thank you deeply, Aunt Darlene
Polly has only interacted with Kristen Venuti, Dr. Paul Sponseller’s nurse practitioner, but she has only been able to obtain vague information. Although Polly has tried to talk directly with Dr. Sponseller, he has not returned her phonecalls. The exact anomalies were difficult to confirm on x ray. There may be a lumbar unsegmented bar and wedge hemivertebra, and possibly something thoracic. Polly and Amaya were told that the only course now is to monitor progression by returning in six months. But Polly is left not knowing the range of options for the future, or when/why any treatment shouldn't occur now before Amaya's spine becomes more fixed.
My niece and her family are in Frederick, Maryland, and Polly would travel anywhere to get things on the right track. Amaya and her family need to understand better the anomalies and find someone who can help them understand both the merit of the immediate plan to monitor and the scope of future options. Please let us know your physician recommendations and your experiences. Thank you deeply, Aunt Darlene
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