My 14 year old son has SMA, Type 3, a neuromuscular disorder, and scoliosis. I would like to hear from anyone who also has the same. Did you require surgery? Did the surgery affect your SMA?
Thanks for your input.
L.J.
Registered User
My 14 year old son has SMA, Type 3, a neuromuscular disorder, and scoliosis. I would like to hear from anyone who also has the same. Did you require surgery? Did the surgery affect your SMA?
Thanks for your input.
L.J.
Registered User
I know of several children with SMA who have had VEPTR rods placed for severe scoliosis. Let me know if you are interested in emailing them. Most I know are younger than your son.
Carmell
mom to Kara, idiopathic scoliosis, Blake 19, GERD and Braydon 14, VACTERL, GERD, DGE, VEPTR #137, thoracic insufficiency, rib anomalies, congenital scoliosis, missing coccyx, fatty filum/TC, anal stenosis, horseshoe kidney, dbl ureter in left kidney, ureterocele, kidney reflux, neurogenic bladder, bilateral hip dysplasia, right leg/foot dyplasia, tibial torsion, clubfoot with 8 toes, pes cavus, single umblilical artery, etc. http://carmellb-ivil.tripod.com/myfamily/
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