Results 1 to 2 of 2

Thread: Scoliosis and Spinal Muscular Atrophy, Type 3

  1. #1
    Join Date
    Nov 2009

    Scoliosis and Spinal Muscular Atrophy, Type 3

    My 14 year old son has SMA, Type 3, a neuromuscular disorder, and scoliosis. I would like to hear from anyone who also has the same. Did you require surgery? Did the surgery affect your SMA?

    Thanks for your input.


  2. #2
    Join Date
    Oct 2003
    I know of several children with SMA who have had VEPTR rods placed for severe scoliosis. Let me know if you are interested in emailing them. Most I know are younger than your son.
    mom to Kara, idiopathic scoliosis, Blake 19, GERD and Braydon 14, VACTERL, GERD, DGE, VEPTR #137, thoracic insufficiency, rib anomalies, congenital scoliosis, missing coccyx, fatty filum/TC, anal stenosis, horseshoe kidney, dbl ureter in left kidney, ureterocele, kidney reflux, neurogenic bladder, bilateral hip dysplasia, right leg/foot dyplasia, tibial torsion, clubfoot with 8 toes, pes cavus, single umblilical artery, etc.

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts