[I]Ok,so today was Dairriens Post op appoinment at Shriners..They told me that Dairriens Kyphosis was a 92 degree curve...
She said it is pretty bad and began to tell us that he would have spinal fusion with hardware..didn't really give alot of detail..she was kinda brief..We then saw the Pediatrician...Before this Dairrien had a EKG...
And I seen some Blips and Decels,and had a feeling something was up..
So when she came in she goes on to ask if he ever had any heart problems..I told her that he had some chest pain before but we chalked it up to gas...NOW..Dairrien also has Klippel Feil Syndrome...NO ONE EVER made it a big deal,never talked to me about it, I ONLY found out about the diagnosis just a few months ago,and he has been diagnosed with this for YEARS ...SO,she begins to tell me Kids Like dairrien who have this ,one of the effects is HEART MALFORMATION !!! WHATTTTTTT?????
NO ONE ever told me this...NO one ever said he needed to be tested..SO today they say,He needs to see a cardioligist before they continue with surgery....I am soooooooo MAD!!!!!! All this time,my son could have had serious heart problems and they are just now telling me this??
My heart is aching...Now I have to watch him like a Hawk..Knowing all of this,is driving me mental...Im just so mad that no one cared to share this information with me..Until Now !!!!
**Heavy Sigh**I]
She said it is pretty bad and began to tell us that he would have spinal fusion with hardware..didn't really give alot of detail..she was kinda brief..We then saw the Pediatrician...Before this Dairrien had a EKG...
And I seen some Blips and Decels,and had a feeling something was up..
So when she came in she goes on to ask if he ever had any heart problems..I told her that he had some chest pain before but we chalked it up to gas...NOW..Dairrien also has Klippel Feil Syndrome...NO ONE EVER made it a big deal,never talked to me about it, I ONLY found out about the diagnosis just a few months ago,and he has been diagnosed with this for YEARS ...SO,she begins to tell me Kids Like dairrien who have this ,one of the effects is HEART MALFORMATION !!! WHATTTTTTT?????
NO ONE ever told me this...NO one ever said he needed to be tested..SO today they say,He needs to see a cardioligist before they continue with surgery....I am soooooooo MAD!!!!!! All this time,my son could have had serious heart problems and they are just now telling me this??
My heart is aching...Now I have to watch him like a Hawk..Knowing all of this,is driving me mental...Im just so mad that no one cared to share this information with me..Until Now !!!!
**Heavy Sigh**I]
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