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19 Year Old Male. Scoliosis Progressing.

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  • Some pain is to be expected . As john has had 2 major surgeries, he is aware that he would have pain to some degree. But as others have said, excess pain robs
    you of the chance to do anything
    Last edited by mabeckoff; 11-14-2011, 03:27 PM.
    Melissa

    Fused from C2 - sacrum 7/2011

    April 21, 2020- another broken rod surgery

    Comment


    • Originally posted by LindaRacine View Post
      You need to expect some pain. There's nothing quite like a big surgery to put perspective on what you thought was bad pain before surgery, huh? :-)
      I’m sure, those who “know” will dwell on this statement.

      Brings back memories....

      Hang in there John. Your going to make it.

      Ed
      49 yr old male, now 63, the new 64...
      Pre surgery curves T70,L70
      ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
      Dr Brett Menmuir St Marys Hospital Reno,Nevada

      Bending and twisting pics after full fusion
      http://www.scoliosis.org/forum/showt...on.&highlight=

      My x-rays
      http://www.scoliosis.org/forum/attac...2&d=1228779214

      http://www.scoliosis.org/forum/attac...3&d=1228779258

      Comment


      • Hope your surgery goes well tomorrow
        Melissa

        Fused from C2 - sacrum 7/2011

        April 21, 2020- another broken rod surgery

        Comment


        • Good luck tomorrow, John. You are due for a good recovery. Positive thoughts coming your way! Janet
          Janet

          61 years old--57 for surgery

          Diagnosed in 1965 at age of 13--no brace
          Thoracic Curve: 96 degrees to 35 degrees
          Lumbar Curve: 63 degrees to 5 degrees
          Surgery with Dr. Lenke in St. Louis--March 30, 2009
          T-2 to Pelvis, and hopefully all posterior procedure.

          All was posterior along with 2 cages and 6 osteotomies.

          Comment


          • Okay, I am totally confused. John just had last Friday a revision surgery he's been researching and planning for a couple of years, then he comes out and he's having huge pain and he reports problems with his hardware that will necessitate another surgery and a lower fusion, etc., then he posts that he's suggesting tactics for his surgeon to go back in and implement, and the last thing I saw him post was that he was waiting for x-rays, and now everyone is wishing him good luck with a surgery tomorrow? Is he having surgery tomorrow? I never saw him post this.

            Can someone clarify this for me, from what he's posted?
            Stephanie, age 56
            Diagnosed age 8
            Milwaukee brace 9 years, no further treatment, symptom free and clueless until my 40s that curves could progress.
            Thoracolumbar curve 39 degrees at age 17
            Now somewhere around 58 degrees thoracic, 70 degrees thoracolumbar
            Surgeon Dr. Michael S. O'Brien, Baylor's Southwest Scoliosis Center, Dallas TX
            Bilateral laminectomies at L3 to L4, L4 to L5 and L5 to S1 on April 4, 2012
            Foramenotomies L3 through S1 in August 2014

            Comment


            • Originally posted by Mojo's Mom View Post
              Okay, I am totally confused. John just had last Friday a revision surgery he's been researching and planning for a couple of years, then he comes out and he's having huge pain and he reports problems with his hardware that will necessitate another surgery and a lower fusion, etc., then he posts that he's suggesting tactics for his surgeon to go back in and implement, and the last thing I saw him post was that he was waiting for x-rays, and now everyone is wishing him good luck with a surgery tomorrow? Is he having surgery tomorrow? I never saw him post this.

              Can someone clarify this for me, from what he's posted?
              I was kinda wondering the same thing. Thought I missed an update along the way... wouldn't be the first time, heh.
              Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
              Halo Traction & 1st. surgery on March 22nd. 2011
              Spinal Fusion on April 19th. 2011

              Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



              http://tinyurl.com/Elias-Before
              http://tinyurl.com/Elias-After

              Comment


              • Good luck John, with the hopefully final surgery, the pain, and the recovery. Thanks also for your encouraging words pages back. Three, maybe four opinions are underway, and w research & the info and experiences everyone has shared here on the forum, I feel we are well on the way to making a much more informed decision than we might have otherwise. ps - the dr we're seeing tmrw trained under Dr. Lenke, so if we can't get the very best, well, he's a good second. We'll see.
                But all the best, and don't rush your recovery this time!
                Mom of 14yo son diagnosed Oct 2011
                Surgery 1/3/12 w Dr. Geof Cronen,
                Tampa General Hospital T3 to L1
                Jacob's pre surg curves: T58 & L31 12/28/11
                photos & xrays in "First-Time Surgery" thread "Before & After"

                Comment


                • i believe two surgeries were scheduled before John went into the hospital...
                  i don't know from his posts if what will be done has been changed in some way based on what the surgeon
                  found during the first surgery on Friday...

                  jess

                  Comment


                  • Okay, I get it, it's on page 53 of this thread. I had missed that post, where he explained his revision would involve 2 separate surgeries. Now, what is XLIF?
                    Stephanie, age 56
                    Diagnosed age 8
                    Milwaukee brace 9 years, no further treatment, symptom free and clueless until my 40s that curves could progress.
                    Thoracolumbar curve 39 degrees at age 17
                    Now somewhere around 58 degrees thoracic, 70 degrees thoracolumbar
                    Surgeon Dr. Michael S. O'Brien, Baylor's Southwest Scoliosis Center, Dallas TX
                    Bilateral laminectomies at L3 to L4, L4 to L5 and L5 to S1 on April 4, 2012
                    Foramenotomies L3 through S1 in August 2014

                    Comment


                    • From the side.
                      49 yr old male, now 63, the new 64...
                      Pre surgery curves T70,L70
                      ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
                      Dr Brett Menmuir St Marys Hospital Reno,Nevada

                      Bending and twisting pics after full fusion
                      http://www.scoliosis.org/forum/showt...on.&highlight=

                      My x-rays
                      http://www.scoliosis.org/forum/attac...2&d=1228779214

                      http://www.scoliosis.org/forum/attac...3&d=1228779258

                      Comment


                      • XLIF from the side
                        PLIF from the back
                        ALIF from the front.

                        This will explain. I had an A/P an ALIF 1st then 2 days later a PLIF. Each surgeon decides which method to use, and stage dates, which can vary.

                        http://www.scoliosisassociates.com/s...-tlif-alif-041

                        Ed
                        49 yr old male, now 63, the new 64...
                        Pre surgery curves T70,L70
                        ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
                        Dr Brett Menmuir St Marys Hospital Reno,Nevada

                        Bending and twisting pics after full fusion
                        http://www.scoliosis.org/forum/showt...on.&highlight=

                        My x-rays
                        http://www.scoliosis.org/forum/attac...2&d=1228779214

                        http://www.scoliosis.org/forum/attac...3&d=1228779258

                        Comment


                        • Wasn't his second surgery today? The 15th? I hope is doing ok..

                          Comment


                          • I just got out a few hours for my final surgery. Things weren't as easy as planned unfortunately. The first surgery on the 11th, surgeon found a lot of problems going on. He noticed that the L1-L3 were just as predictable and we figured. L1-L2 had no bone of them, then L2-L3 was worse, because they had no bone, but the bolts that were 6mm, where grinding the holes and ended up creating larger holes than L6. So that was a waste of time. I talked to my surgeon and said he that that the bolts caused the holes to be too large, and they showed in my X-Rays from today and that that my best option might be that I might need to go to L4 secure a solid fusion without running the risk of having loose L3 screws. More info coming tomorrow.

                            Comment


                            • Originally posted by JDM555 View Post
                              I just got out a few hours for my final surgery. Things weren't as easy as planned unfortunately. The first surgery on the 11th, surgeon found a lot of problems going on. He noticed that the L1-L3 were just as predictable and we figured. L1-L2 had no bone of them, then L2-L3 was worse, because they had no bone, but the bolts that were 6mm, where grinding the holes and ended up creating larger holes than L6. So that was a waste of time. I talked to my surgeon and said he that that the bolts caused the holes to be too large, and they showed in my X-Rays from today and that that my best option might be that I might need to go to L4 secure a solid fusion without running the risk of having loose L3 screws. More info coming tomorrow.
                              So sorry to hear this, John. Do they know why your bolts loosened? Was it from the pseudoarthrosis or some other cause? Sorry for the questions, I know you don't feel well. So this means yet another surgery? I sure hope you can get this done and over with soon, so you can put it all behind you and just heal and be well and enjoy the rest of your 20's. Take care.
                              Last edited by rohrer01; 11-16-2011, 01:54 AM. Reason: bad grammar!
                              Be happy!
                              We don't know what tomorrow brings,
                              but we are alive today!

                              Comment


                              • i am so sorry to hear this, John...
                                i guess this means today's surgery is postponed and what was planned for that surgery must be changed...
                                you were correct when you believed things were not right and when you refused to accept any doctor
                                trying to tell you otherwise!
                                i know you were hoping not to have to go to L4...but if it sounds like the surgeon believes it is absolutely
                                necessary, and that to do less than that would leave your spine too vulnerable....

                                you remain in my thoughts and prayers for a successful outcome...
                                and relief from pain....

                                jess

                                Comment

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