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Thread: Success! Down to 24 degrees!

  1. #46
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    Quote Originally Posted by txmarinemom View Post
    Have you considered a dermatologist vs. a chiropractor?
    Okay if I didn't already nominate a post of the month I would nominate this.

    I sometimes think I'm in the minority on this group in classifying the chiros with the faith healers and crystal worshippers when it comes to scoliosis.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  2. #47
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    Aug 2007
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    Kid 15, Good Luck! I hope you continue to get great news-is the plan still to go a week without bracing before this xray? That should be fun. Let us know how it goes.
    daughter, 12, diagnosed 8/07 with 19T/13L
    -Braced in spinecor 10/07 - 8/12 with excellent in brace correction and stable/slightly decreased out of brace curves.
    -Introduced Providence brace as adjunct at night in 11/2011 in anticipation of growth spurt. Curves still stable.
    -Currently in Boston Brace. Growth spurt is here and curves (and rotation) have increased to 23T/17L

  3. #48
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    Aug 2007
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    Sharon, I think you might have misinterpreted txmarinemom's post (i.e. when she asked if avishenderson had considered a dermatologist vs. Chiro). I believe Pam was sincerely was suggesting that a dermatologist might be able to help more with the sensitive skin issue than a chiro or orthopedic surgeon (in this particular case, avishenderson said they are seeing an orthopedic surgeon in Manitoba, not a chiro).

    Then again, I could be wrong about her intent (and/or your intent in the previous post). It's happened before and is sure to happen again!
    daughter, 12, diagnosed 8/07 with 19T/13L
    -Braced in spinecor 10/07 - 8/12 with excellent in brace correction and stable/slightly decreased out of brace curves.
    -Introduced Providence brace as adjunct at night in 11/2011 in anticipation of growth spurt. Curves still stable.
    -Currently in Boston Brace. Growth spurt is here and curves (and rotation) have increased to 23T/17L

  4. #49
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    Smile

    to avishendrson i had a promblem like that to my shorts got to tight and i wore boxer brief underwear for girls thanks to all who have wished me good alll and to all of you in any situation my advice is to be positive thank you
    Diagonosed:age12
    and im still alright

  5. #50
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    Quote Originally Posted by jillw View Post
    Sharon, I think you might have misinterpreted txmarinemom's post (i.e. when she asked if avishenderson had considered a dermatologist vs. Chiro). I believe Pam was sincerely was suggesting that a dermatologist might be able to help more with the sensitive skin issue than a chiro or orthopedic surgeon (in this particular case, avishenderson said they are seeing an orthopedic surgeon in Manitoba, not a chiro).

    Then again, I could be wrong about her intent (and/or your intent in the previous post). It's happened before and is sure to happen again!
    Hey maybe you are right!

    I took it as a comment on the willingness to use alternative medicine over mainstream medicine especially given that chiro has claimed to cure everything and anything, not just bone-related issues.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  6. #51
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    Quote Originally Posted by avishenderson View Post
    Hi I am a mother of a 20 yr old girl. She was diagnosed with Scoliosis at 17 1/2 yrs. She seen a Orthapedic Surgeon in Winnipeg, Manitoba, Canada. He told her that since her curvature was only 20 degrees and that she was done growing, there wasn't anything he could do for her. She had very severe pain. Her pain was a 10 and she would get a numbing feeling from her waist down to her feet during her menstral period and slept quite often. A freind of mine seen the article in the MaClean's Magazine for the Spine Core Brace and she contacted me. I let Alacia read the article and she wanted to go to Montreal to see the Chiroprator, Dr. Loiuse Marcotte who specialises with this brace. This friend and others in the community raised funds to send us and pay for the brace. She had it on for only 2 months and her pain went down from a 10 - 2 and she no longer gets a numbing feeling. This Dr. Loiuse also found out that Alacia's left leg was quite shorter than her right leg. So she gave her an insert for her shoes. Dr. Loiuse had to cut off an inch of elastic on all 4 elastics to tighten it up for Alacia. Her curve is from a 20 degree down to a 12 as soon as Dr. Louise put it on. She will be measuring Alacia again when she goes back in March 2010.

    There is only one problem though, Alacia has sensitive skin and she is getting raw and her skin is getting that black from the shorts. She says it is worse while on her period. Dr. Loiuse knows that this happens, but so far can't seem to find a solution.

    Re-read the post and let me know if I misunderstood, Jill: It doesn't sound like Alacia is *currently* seeing a MD.

    And regardless of what I personally think of chiropractors, skin disorders are definitely outside their scope. "Dr. Louise" has good reason to be stumped.

    Regards,
    Pam
    Fusion is NOT the end of the world.
    AIDS Walk Houston 2008 5K @ 33 days post op!


    41, dx'd JIS & Boston braced @ 10
    Pre-op ±53°, Post-op < 20°
    Fused 2/5/08, T4-L1 ... Darrell S. Hanson, Houston


    VIEW MY X-RAYS
    EMAIL ME

  7. #52
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    Smile Welcome Avice & Congrats Alacia!

    Quote Originally Posted by avishenderson View Post
    Hi I am a mother of a 20 yr old girl. She was diagnosed with Scoliosis at 17 1/2 yrs. She seen a Orthapedic Surgeon in Winnipeg, Manitoba, Canada. He told her that since her curvature was only 20 degrees and that she was done growing, there wasn't anything he could do for her. She had very severe pain. Her pain was a 10 and she would get a numbing feeling from her waist down to her feet during her menstral period and slept quite often. A freind of mine seen the article in the MaClean's Magazine for the Spine Core Brace and she contacted me. I let Alacia read the article and she wanted to go to Montreal to see the Chiroprator, Dr. Loiuse Marcotte who specialises with this brace. This friend and others in the community raised funds to send us and pay for the brace. She had it on for only 2 months and her pain went down from a 10 - 2 and she no longer gets a numbing feeling. This Dr. Loiuse also found out that Alacia's left leg was quite shorter than her right leg. So she gave her an insert for her shoes. Dr. Loiuse had to cut off an inch of elastic on all 4 elastics to tighten it up for Alacia. Her curve is from a 20 degree down to a 12 as soon as Dr. Louise put it on. She will be measuring Alacia again when she goes back in March 2010.

    There is only one problem though, Alacia has sensitive skin and she is getting raw and her skin is getting that black from the shorts. She says it is worse while on her period. Dr. Loiuse knows that this happens, but so far can't seem to find a solution.

    But all and all Alacia and her family and friends are just so happy with the results so far. She can't thank people enough for all their help.
    Avis Henderson
    Hi Avis - Congrats to you and your daughter - Great News! A very heartwarming story also of how the community rallied around Alacia in her time of need. Dr. Louise Marcotte is well known for her expertise. That McLean's article is posted on the Spinecor manufacturer's web site under "news", I remember reading that also. I have corresponded a bit with Sharon Dunn who wrote it, her son completed his Spinecor bracing as a young adult. I asked her how he was fairing as far as pain these days - she said he is fine and that occasionally his back will bother him with heavy exertion (like anyone in the general population), during such a time he will put the brace on for a day and be fine. Here's a web link to the entire article, and in it Joe O'Brien (President & CEO of the National Scoliosis Foundation) also speaks of his Spinecor experience with one of his children: http://www.macleans.ca/science/healt...8_55198&page=1 Joe also shares a little bit about his Spinecor experience here: http://www.scoliosis.org/forum/showt...ecord+straight

    Regarding the chafing problem, is Alacia using the adolescent model or the Adult model that was introduced in April of this year? Is the color of her brace black? Either way I think Kid15 came up with a good solution - I used a boy cut bathing suit bottom my first month (with the adolescent model) but don't need it now - today I'm using the Spinecor bodysuit, long leg design.

    All the best to you and Alicia and best wishes for her continued success!

  8. #53
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    Quote Originally Posted by txmarinemom View Post
    Re-read the post and let me know if I misunderstood, Jill: It doesn't sound like Alacia is *currently* seeing a MD.

    And regardless of what I personally think of chiropractors, skin disorders are definitely outside their scope. "Dr. Louise" has good reason to be stumped.

    Regards,
    Pam
    Maybe "Dr." Louise should read this treatise...

    http://www.jbpub.com/catalog/9780763761578/
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  9. #54
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    By the way, as chiros are NOT allowed to use the "Dr." title in the U.K., and Canada is part of the U.K., then I wonder if chiros are allowed to call themselves "Doctor" in Canada.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  10. #55
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    A chiropractic doctor is given the title based upon education in the US - I don't know about other countries. Everyone understands this is not the same title as MD. Many Spinecor patients (like myself) include their orthopedic specialists in their Spinecor treatment. Personally, I think that is a great thing to do!

    Some chiropractic doctors in the US (like mine) are not only Spinecor certified but have trained with Rivard and Colliard (the surgeons who invented this brace, one of whom is an SRS member) and maintain a professional relationship with them. The doctors I see have also conducted studies and have published work in the Scoliosis Journal which duplicate the results of Rivard and Colliard. There is an orthopist from the US who has also duplicated these results and is published in the Scoliosis Journal but his name escapes me at the moment.

    Becoming Spinecor certified is not a quick study, or an out of the box kind of treatment - those who are certified to apply this technique (unsupervised) are listed on the manufacturer's web site.

    I don't think is is right to disrespect the chiropractic profession - or the Spinecor doctors who are having success with this bracing method - or the patients who see them.

    Just my opinion ;-)

  11. #56
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    Quote Originally Posted by mamamax View Post
    I don't think is is right to disrespect the chiropractic profession - or the Spinecor doctors who are having success with this bracing method - or the patients who see them.

    Just my opinion ;-)
    I don't think it's right for these CLEAR chiros to lie through their teeth or ignorantly spread bullcrap about surgery trigger angles.

    On this video, they claim surgery is immediately recommended for any curve over 40*...

    http://www.youtube.com/watch?v=srtbzJmED8I

    3:52 - Our buddy Stitzel is either lying or ignorant. Either way he is MISLEADING innocent people.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  12. #57
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    Well - this is a Spinecor thread - ok a little bit hijacked - but an originally intended Spinecor thread. If you want to open a separate thread about other things - I'll join you :-)

  13. #58
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    Quote Originally Posted by mamamax View Post
    Well - this is a Spinecor thread - ok a little bit hijacked - but an originally intended Spinecor thread. If you want to open a separate thread about other things - I'll join you :-)
    I do not thanks.

    These CLEAR chiros are reprehensible.
    Last edited by Pooka1; 12-03-2009 at 07:06 PM.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  14. #59
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    Quote Originally Posted by Kid_15 View Post
    to avishendrson i had a promblem like that to my shorts got to tight and i wore boxer brief underwear for girls thanks to all who have wished me good alll and to all of you in any situation my advice is to be positive thank you
    Good post Kid15! I used boy cut bathing suit bottoms for the first month I was bracing - and I use the adolescent model with pelvic base & thigh bands. I think Alacia may be using the adult model which has a long tight short kind of thing on the bottom half - and maybe her brace color is also black. Not sure, waiting for her mum to answer. I'm using the long cut Spinecor bodysuit these days and love its comfort - have you tried them?

  15. #60
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    Quote Originally Posted by mamamax View Post

    I don't think is is right to disrespect the chiropractic profession - or the Spinecor doctors who are having success with this bracing method
    I ask this sincerely, not sarcastically.....outside of studies published by the inventors of the brace, where is the proof that Spinecor, or any brace for that matter, has been successful in permanently correcting curves?

    It is my understanding (and I believe it is also the belief of most of the top doctors in the field) that no brace has ever been proven to do that.

    If there has been proof of this, and it is published somewhere, I would truly be interested in seeing it.

    Thanks.
    mariaf305@yahoo.com
    Mom to David, age 17, braced June 2000 to March 2004
    Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)

    https://www.facebook.com/groups/ScoliosisTethering/

    http://pediatricspinefoundation.org/

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