My one yr old son has progressive infantile scoli and chiari I malformation. I am a member on ISOP and a chiari group. I am wondering how many others out there have children with both conditions that are very young. My son is having decompression surgery Wed Aug 19th. He will then be placed in a Mehta cast Sept 29th. I just want to know how many there are out there because i firmly believe they are linked to each other. Any advice or comments?