I am at my end of my rope, but after reading some of the other postings; I guess it could be worse.
I was diagnosed with scoliosis at the age of 14 with a 20 degree curve to the age of 16 with at 75 degree curve, fused from T-1 to L-3. I was unable to wear my brace, because my mother had Lupus and was unable to tighten it for me.
It has been 20 years to the date, and not sure what my options are now. I have been in pain since 2000. I have been through pain management, physical therapy, steroid injections, to time release morphine, and I have just about given up.
I usually have an episode about 1 a month and can usually take muscle relaxers and stay in bed for 3 days and I am fine and can walk again. However, I am now going on three weeks, unable to stand straight up, tilted to the left and unable to walk without a limp in my right hip. I hope I am making sense.
I have had several tests CT's, no MRI's of course, X-ray’s, however I have now developed an allergic reaction to the contrast dye. I developed chemical meningitis from a myelogram and went into shock from a CT scan. There seems to be no other test that they can do to see what is going on.
I had an epidural steroid injection and trigger point injections done. Hopefully they will kick in and work at this point not sure what else to do.
No doctor will deal with me, the original Dr. at Scott and White is not longer available, but I was referred to another spine Dr. who said I was too young, and he did not suggest taking my rods out. I don’t think it is my rods that are bothering me; I think it is the other 3 disc that are wearing out.
I have been out of work now for 3 weeks, and out of time. And I have run into the fact that people are not very considerate when it comes to anything dealing with the back. I don’t know what I am asking for, just looking for some advice and glad to have others to talk to. Reading some of the post, I am illiterate to scoliosis.
Kristi
I was diagnosed with scoliosis at the age of 14 with a 20 degree curve to the age of 16 with at 75 degree curve, fused from T-1 to L-3. I was unable to wear my brace, because my mother had Lupus and was unable to tighten it for me.
It has been 20 years to the date, and not sure what my options are now. I have been in pain since 2000. I have been through pain management, physical therapy, steroid injections, to time release morphine, and I have just about given up.
I usually have an episode about 1 a month and can usually take muscle relaxers and stay in bed for 3 days and I am fine and can walk again. However, I am now going on three weeks, unable to stand straight up, tilted to the left and unable to walk without a limp in my right hip. I hope I am making sense.
I have had several tests CT's, no MRI's of course, X-ray’s, however I have now developed an allergic reaction to the contrast dye. I developed chemical meningitis from a myelogram and went into shock from a CT scan. There seems to be no other test that they can do to see what is going on.
I had an epidural steroid injection and trigger point injections done. Hopefully they will kick in and work at this point not sure what else to do.
No doctor will deal with me, the original Dr. at Scott and White is not longer available, but I was referred to another spine Dr. who said I was too young, and he did not suggest taking my rods out. I don’t think it is my rods that are bothering me; I think it is the other 3 disc that are wearing out.
I have been out of work now for 3 weeks, and out of time. And I have run into the fact that people are not very considerate when it comes to anything dealing with the back. I don’t know what I am asking for, just looking for some advice and glad to have others to talk to. Reading some of the post, I am illiterate to scoliosis.
Kristi
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