Hi there,
I don't have any advice for you - my son was older when we had to treat his scoliosis. But I wanted to wish you the best of luck with everything you're going through. I know the Shriner's system does great work for kids and it sounds like you found the kind of treatment that, I've read, can actually help straighten the spine with the aid of the child's growth.
Take care,
Laurie
Mother of Alexander & Zachary:
Alex is 16 years old and in the 11th grade. He has congenital scoliosis due to a hemivertebrae at T10. Wore a TLSO brace for 3 1/2 years. Pre-op curves were T45 & L65; curves post-op are approx. T31 & L34. Had a posterior spinal fusion from T8 to L3 on 7/12/07 at age 12. Doing great now in so many ways, but still working on improving posture.
Zach is 13 years old and very energetic.