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  • Update!!! sorry kind of long

    It has been a while since i have logged on to these forums but i have an update on my scoliosis.I went to see a new doctor about foot pain and he sent me for more tests MRI,Xrays,Bone scan.The results are kind of disturbing,Here is a run down about everything found.
    These are from Xray results
    -Scoliosis upper thoracic spine to mid thoracic spine
    -Hemivertebra in T1 and T2 and C7
    -Scoliosis convexity left(lumbar spine)
    -block vertebra L1,L2
    -L3 is larger than normal
    -L1-L3 spinal fusion
    These are MRI results
    -Sacrum is hypoplastic
    -Tethered cord at the S1 to S2 level(associated with lipoma)
    -Syrinx is noted
    -Degenerative disc disease
    -Lumbar nerve damage
    -Osteoarthritis in my back,Right knee,Left foot
    Iam seeing a Neurosurgeon on October 20,We will see how it goes....

    I currently do not have copies of my bone scan results at home with me
    Last edited by angelic00; 08-09-2008, 07:54 PM.

  • #2
    late reply to old member

    Angelico this is WAY overdue and I didn't know you (and you probably won't get this) but I hate to see unanswered threads, especially one like yours.

    It's as if no one cares , but I'm sure they do. Probably, this sub-forum is just less frequented. I care, and I don't even know you by name! But I know you as a suffering human being,

    Be well, and write again - maybe the same post, updated and put on another forum. Sometimes we have to shout to be heard but it's just because there's so much other noise - not because no one is interested!

    Best,

    Amanda
    Not all diagnosed (still having tests and consults) but so far:
    Ehler-Danlos (hyper-mobility) syndrome, 69 - somehow,
    main curve L Cobb 60, compensating T curve ~ 30
    Flat back, marked lumbar kyphosis (grade?) Spondilolisthesis - everyone gives this a different grade too. Cervical stenosis op'd 3-07, minimally invasive

    Comment


    • #3
      For that matter just look - well over a thousand views to your thread! That's extraordinary. Guess no one wanted to take the initiative!
      Not all diagnosed (still having tests and consults) but so far:
      Ehler-Danlos (hyper-mobility) syndrome, 69 - somehow,
      main curve L Cobb 60, compensating T curve ~ 30
      Flat back, marked lumbar kyphosis (grade?) Spondilolisthesis - everyone gives this a different grade too. Cervical stenosis op'd 3-07, minimally invasive

      Comment


      • #4
        I agree, I am sure people do care, we're all in the same boat. But some of us are in deeper water and when I see a post like that, I cringe and wish I could help but don't have the knowledge or experience. I too, hate to see unanswered posts.

        I hope Angelicoo got the help she needed.
        Surgery March 3, 2009 at almost 58, now 63.
        Dr. Askin, Brisbane, Australia
        T4-Pelvis, Posterior only
        Osteotomies and Laminectomies
        Was 68 degrees, now 22 and pain free

        Comment

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