What really gets my goat about Scoliosis SOS and their "miraculous" treatment is the amount of publicity they are able generate within the UK.
They have a very prominent publicist on board - I don't think they're paying him as he would be v expensive. I understand that this publicist has a daughter who had surgery for scoliosis some years ago. It appears that his misplaced feelings of guilt are driving this thing. I may be being too kind, perhaps he does have one eye on the balance sheet...
It makes me mad that anytime there's anything written about scoliosis in the UK it's always about Scoliosos SOS or some rubbish seeking sympathy for 'brave' disabled kids. I'm frequently sent newspaper cuttings by well meaning friends who are then shocked when I don't rush off to Scoliosis SOS, cheque book in hand.
I have written to both the publicist concerned and the Healthcare Commission, but have had no reply to date.
Helen, as I undertand it, Scoliosis SOS originally started as a provider of Schroth Therapy. For some reason they seem to have dropped any mention of Schroth. And they don't brace. Reading between the lines (actually have seen some evidence, but forget where) it seems that Scoliosis SOS have been prevented from using the Schroth name. Schroth is something else entirely, particulary when combined with bracing - an altogether more reputable form of treatment!
Last edited by RugbyLaura; 01-19-2009 at 09:01 AM.
Reason: Embarassing spelling mistakes!
UK based Mum of Imogen, 38 degree curve at 9 years old. SpineCor since 15/6/07, 31 degrees in brace.
10th December 07 - 27 degrees, 23rd June 08 - 26 degrees, Feb 09 - 24 degrees, Aug 09 - 35 degrees, Jul 10 - 47 degrees, Dec 10 - 50+ degrees.
Surgery due to take place early December 2011 at the RNOH, England.