My son is 5 years old and we just found out he has scoliosis. He also has NF2 (neurofibromatosis 2) which is linked to scoliosis. He has a 35 - 40 degree curve. We saw Dr. Emans at Children's Hospital Boston and he said that Connor is going to need surgery. They are going to put growth rods in. This is a 4 hours surgery and a 4-5 day hospital stay. Then every 6 months he will have to go back for another surgery to adjust the rods.
Has anyone been thru this with themselves or their kids???? I am very concerned. I am a nurse and sometimes it is not good to be in the field and know so much.
Has anyone been thru this with themselves or their kids???? I am very concerned. I am a nurse and sometimes it is not good to be in the field and know so much.
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