Hi
Just wanted to let ya all know we got to come home yesterday, 5 days after the surgery. The surgery itself took only 5 hrs as they thought could be 7 hrs long. He was off the vent by the time he got to ICU after surgery and had some oxygen then off that quickly too. Spent two days in ICU tho cuold have went to the floor after one day but no rooms were available. Then spent two days in regular room so 5 days total in Hospital. He was in a bit more pain last nite as only had pain med (oxycodone) and no morphine or valium like in Hosp plus first few days he had pain ball (OnQ) that was attached to site giving continuos numbing med to it. Today seems like it is going a bit better.
The PT had him walk Fri and Sat and I had him walk a little with my help of course today but mostly in bed and sleeping on and off. He uses ice packs for the pain also. He got two new rods (this is his 10th surgery). I havent seen xrays yet so am anxiious to see them as they say that his back looks so good, Drs are very happy with results. Luckily we have a wheelchair and walker from halo surgery when he was 5 yrs old so have used it (wheelchair) to move to bathroom and room to room. PT said that he could use but not get dependant on. I know he wont as he is one determined kid. He amazed us when he had a halo on and ended up learning to walk without even using the walker after awhile so I know he will again. Hoping each day gets better with pain.
Oh also I noticed today when he walked that his left hip was sticking out to the side (it did not do this prior) so I will watch to make sure he eventually stands straighter. He cant really stand fully upright yet so hoping it is just adjusting. I read some other posts and seems other kids had some posture issues after surgery too. We return in one wk to Dr so will discuss with them if need be too. Does this sound familiar to anyone else? Thanks
Stacey
Mom to Cole, 13 yrs old
California
Just wanted to let ya all know we got to come home yesterday, 5 days after the surgery. The surgery itself took only 5 hrs as they thought could be 7 hrs long. He was off the vent by the time he got to ICU after surgery and had some oxygen then off that quickly too. Spent two days in ICU tho cuold have went to the floor after one day but no rooms were available. Then spent two days in regular room so 5 days total in Hospital. He was in a bit more pain last nite as only had pain med (oxycodone) and no morphine or valium like in Hosp plus first few days he had pain ball (OnQ) that was attached to site giving continuos numbing med to it. Today seems like it is going a bit better.
The PT had him walk Fri and Sat and I had him walk a little with my help of course today but mostly in bed and sleeping on and off. He uses ice packs for the pain also. He got two new rods (this is his 10th surgery). I havent seen xrays yet so am anxiious to see them as they say that his back looks so good, Drs are very happy with results. Luckily we have a wheelchair and walker from halo surgery when he was 5 yrs old so have used it (wheelchair) to move to bathroom and room to room. PT said that he could use but not get dependant on. I know he wont as he is one determined kid. He amazed us when he had a halo on and ended up learning to walk without even using the walker after awhile so I know he will again. Hoping each day gets better with pain.
Oh also I noticed today when he walked that his left hip was sticking out to the side (it did not do this prior) so I will watch to make sure he eventually stands straighter. He cant really stand fully upright yet so hoping it is just adjusting. I read some other posts and seems other kids had some posture issues after surgery too. We return in one wk to Dr so will discuss with them if need be too. Does this sound familiar to anyone else? Thanks
Stacey
Mom to Cole, 13 yrs old
California
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