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  • Scoliosis Camp

    I think that scoliosis camp would be a great opportunity for all of us who have to deal with scoliosis, especially bracing. I know that our friends don't understand what we're going through, because no one can, unless they have had to deal with it. I know that I, like many other girls wearing a brace, often worry about how people are going to think, say, or act when they realize that we have scoliosis and wear a brace. I really hope that we can have a camp, because it would be a place where we could be ourselves and not have to worry about hiding our brace under piles of clothing or worrying about what others will think. A place where we can come together as scoli patients.. anyone agree?

    Leave Any Thoughts Below... =]
    S...My name would be Lauren
    ..P...I was diagnosed with scoliosis in August of 2005
    ....I...Wore a Milwaukee brace from July of 2006 until April of 2007
    ..N...Now wearing a spinecor brace
    E...LOVE IT
    .C...T 42*
    ..O...I Love To Competitive Cheer!
    .R...I Try My Hardest To Live For Christ


    I believe that Scoliosis doesn't show how weak we are, but truly how strong we are

  • #2
    Hey Lauren,

    I tried to PM Joe, but his mailbox was full. I think camp is a great idea. My daughter, Rachel, would love it. She also loves Jesus! I love Jesus, too!
    God is so good. He makes all the difference in everthing!
    God has used scoliosis to strengthen and mold us. He's good all the time!On this forum these larger curves have not held forever in Spinecor,with an initial positive response followed by deterioration. With deterioration, change treatment.The first year she gained 4 or 5 inches and was stable at around 20/20 in brace, followed by rapid progression the next year.She is now 51/40 (Jan2008)out of brace (40/30 in Spinecor) and started at 38/27 out of brace(Jan2006.) Now in Cheneau.

    Comment


    • #3
      Try sending him a direct email..
      My name is Rotem
      I am 13 and in 7th grade
      Started with 2 curves:
      34º Therotical
      50º Lumber
      I currently wear a Cheneau Brace
      Got my 1st on Nov. '06
      Got my 2nd on Nov. '07
      Just got my 3rd one today (May7 '08)
      and im still trying to get used to it
      Hoping I won't need surgery
      I live in South Florida
      3rd check on November 17,2007,
      Got an X-ray done Feb. 5th, with EXCELLENT news!
      30º Theoratical
      37º Lumber
      4th check on May 7, 2008

      Comment


      • #4
        by the way.. his direct email is : pobrien@scoliosis.org
        My name is Rotem
        I am 13 and in 7th grade
        Started with 2 curves:
        34º Therotical
        50º Lumber
        I currently wear a Cheneau Brace
        Got my 1st on Nov. '06
        Got my 2nd on Nov. '07
        Just got my 3rd one today (May7 '08)
        and im still trying to get used to it
        Hoping I won't need surgery
        I live in South Florida
        3rd check on November 17,2007,
        Got an X-ray done Feb. 5th, with EXCELLENT news!
        30º Theoratical
        37º Lumber
        4th check on May 7, 2008

        Comment


        • #5
          Summer Camp- Important!!

          Anyone Interested In This Summer Camp Program, Please Email Dr. Joe O'Brien. He Wants To Know How Much Interest There Is And By That He Will Know If He Should Open A Camp Or Not!! His Email Is: jpobrien@scoliosis.org!
          My name is Rotem
          I am 13 and in 7th grade
          Started with 2 curves:
          34º Therotical
          50º Lumber
          I currently wear a Cheneau Brace
          Got my 1st on Nov. '06
          Got my 2nd on Nov. '07
          Just got my 3rd one today (May7 '08)
          and im still trying to get used to it
          Hoping I won't need surgery
          I live in South Florida
          3rd check on November 17,2007,
          Got an X-ray done Feb. 5th, with EXCELLENT news!
          30º Theoratical
          37º Lumber
          4th check on May 7, 2008

          Comment

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