Take some deep breaths
Welcome to the NSF forum. You will find a lot of help and support here. If you've read around the forum much you will have come across a common phrase: Scoliosis is rarely life threatening. That means that you usually have time to absorb the shock and information, and you have time to figure out the best course of action before rushing into surgery!! So take some deep breaths and then get to work trying to learn as much as you can so that you can help your son by knowing what questions to ask and how to understand the responses from the docs.
Also, as I've said in other posts, the first part of this is always the hardest because you don't really know what is going on or how bad things really are. And it seems the docs are not much help. Usually, that is because the docs have to do some testing before they can tell you anything and waiting for the results is sometimes excruciatingly hard. Fortunately, the tests for most scoli issues are a couple of x-rays, and maybe an MRI. So you can get the results pretty quick. When you do get the information, you may want to consult with another doc, either to get a second opinion, or maybe even just your regular family doc so that he can help you understand what is going on.
We've all been there before so if you have questions, don't hesitate to ask them here. Usually, someone here has had something similar and can give you some good advice and encouragement.
So hang in there. Be strong!! You will make it through this. Just remember to take deep breaths if it gets overwhelming.
Spencer's Dad
11 year old boy with PMD Luekodystrophy
Nonambulatory, nonverbal, nonweight bearing
VRO and Pemberton hip reconstruction at age 5
Nissen fundo at at age 7
Subdermal spinal drug pump at age 9
Complete Spinal Fusion Jan. 9, 2007 at age 10.
118 degree curve before surgery - less than 25 after!!