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Thread: 5 year girl congenital scoliosis

  1. 05-08-2006, 04:46 PM #1
    1spud
    1spud is offline Registered User
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    Unhappy 5 year girl congenital scoliosis

    my daughter is 5yrs old and has a hemivertebre and has been told by two different doctors that she needs surgery. i don't know what questions to
    ask or how to know if the surgen we found is good. i would love some advise.

    i live on long island, NY. the doctors that i have found so far are

    Wesley V. Carrion- Stonybrook
    Ronald Lewis-East Meadow
    David Feldman-NYU
    Last edited by 1spud; 05-08-2006 at 05:13 PM.
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  2. 05-08-2006, 05:01 PM #2
    mom2cole
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    You should probably let us know the Dr's name and see if someone on here sees him already. Where do you live? I live in CA and my son who is 12 yrs old with severe congenital scoliosis goes to Childrens Hosp Los Angeles. Very good Dr's. Also, what type of surgery? My son has had two spinal fusions when toddler and rods inserted also and a Halo. If we know more details then can be specific on which type of questions. You also might want to get a 2nd opinion depending on circumstances,etc...
    Hang in there!

    STacey
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  3. 05-08-2006, 05:03 PM #3
    mom2cole
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    oops-I just noticed you said 2 different Drs so must have got 2nd opinion-sounds like you are doing good so far and your on the right track!
    Stacey
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