About 10 am this morning my DD care specialist from shriner's tampa called and said that My DD has Syringomyelia.
She cannot have her scoliosis surgery until this is taken care of. She is at 57. I am waiting to hear when the appt is with the neurosurgeon which will be in St Pete.
We live in Mary Esther, Florida at the top of Florida near Pensacola and Mobile, Al. and all our appt are in Tampa and St Pete. This is 8+ hour drive for us.
When it was decided that surgery was the next step we never realized that we would find other things in her body.
I thank God that she doesn't understand everything. She is slightly mentally disabled and has the best attitude. She just goes with the flow. If it has to be then it is.
Yes, I am a Christian. The past few months I have really come to realize that God gave me this precious child to make my life better. Even when she is driving me crazy, and she does, I can look at her smile and know that she is here for a reason.
Thanks for letting me vent
Rose
She cannot have her scoliosis surgery until this is taken care of. She is at 57. I am waiting to hear when the appt is with the neurosurgeon which will be in St Pete.
We live in Mary Esther, Florida at the top of Florida near Pensacola and Mobile, Al. and all our appt are in Tampa and St Pete. This is 8+ hour drive for us.
When it was decided that surgery was the next step we never realized that we would find other things in her body.
I thank God that she doesn't understand everything. She is slightly mentally disabled and has the best attitude. She just goes with the flow. If it has to be then it is.
Yes, I am a Christian. The past few months I have really come to realize that God gave me this precious child to make my life better. Even when she is driving me crazy, and she does, I can look at her smile and know that she is here for a reason.
Thanks for letting me vent
Rose
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