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  • I let Rachel stay out of her brace for her cousin's wedding and reception last month. She was happy.
    I am glad I'm not the only one that occasionally does that.
    God has used scoliosis to strengthen and mold us. He's good all the time!On this forum these larger curves have not held forever in Spinecor,with an initial positive response followed by deterioration. With deterioration, change treatment.The first year she gained 4 or 5 inches and was stable at around 20/20 in brace, followed by rapid progression the next year.She is now 51/40 (Jan2008)out of brace (40/30 in Spinecor) and started at 38/27 out of brace(Jan2006.) Now in Cheneau.

    Comment


    • Immy rarely takes hers off... She wore it at her birthday party on Sunday, even though I said she could take it off. I expect because it's newer to her & the novelty has not worn off - or maybe she's just lazy!!
      UK based Mum of Imogen, 38 degree curve at 9 years old. SpineCor since 15/6/07, 31 degrees in brace.
      10th December 07 - 27 degrees, 23rd June 08 - 26 degrees, Feb 09 - 24 degrees, Aug 09 - 35 degrees, Jul 10 - 47 degrees, Dec 10 - 50+ degrees.
      Surgery due to take place early December 2011 at the RNOH, England.

      Comment


      • I think it's really good that she likes to wear it. Rachel has a strap that twists lately. I think she will be more comfortable if we get a new one.
        Last edited by cherylplinder; 06-27-2007, 08:19 AM.
        God has used scoliosis to strengthen and mold us. He's good all the time!On this forum these larger curves have not held forever in Spinecor,with an initial positive response followed by deterioration. With deterioration, change treatment.The first year she gained 4 or 5 inches and was stable at around 20/20 in brace, followed by rapid progression the next year.She is now 51/40 (Jan2008)out of brace (40/30 in Spinecor) and started at 38/27 out of brace(Jan2006.) Now in Cheneau.

        Comment


        • I think the reason she was so happy was the thrill of playing water games with her peers and not having to worry about getting her brace wet. In general, she prefers wearing it all the time.

          Canadian eh
          Daughter, Deirdre born Oct 2000. Diagnosed with 60 degree curve at the age of 19 months. Serial casting by Dr. Hedden at Sick Kid's Hospital. Currently being treated by Dr. Rivard and Dr. Coillard in Montreal with the Spinecor brace and curve is holding at "2" degrees. Next appointment 2008

          Comment


          • Hi all,

            I have noticed that Immy's brace moves a bit when she wears it, not much, but enough to mean than she has a rubbed patch. The whole bottom part of the brace moves round so that when you're looking from the front the plastic bit is off centre by about 1cm. This has caused a red mark just above her (left) thigh but more importantly - does this mean it's less effective?!

            Any help gratefully received...

            Laura
            ps - I'm glad Deirdre had a lovely day!
            UK based Mum of Imogen, 38 degree curve at 9 years old. SpineCor since 15/6/07, 31 degrees in brace.
            10th December 07 - 27 degrees, 23rd June 08 - 26 degrees, Feb 09 - 24 degrees, Aug 09 - 35 degrees, Jul 10 - 47 degrees, Dec 10 - 50+ degrees.
            Surgery due to take place early December 2011 at the RNOH, England.

            Comment


            • You can tighten the base a bit more so it doesn't slip. If it slips, it cannot correct the rotation as well.Call your doc and get specific instructions.
              God has used scoliosis to strengthen and mold us. He's good all the time!On this forum these larger curves have not held forever in Spinecor,with an initial positive response followed by deterioration. With deterioration, change treatment.The first year she gained 4 or 5 inches and was stable at around 20/20 in brace, followed by rapid progression the next year.She is now 51/40 (Jan2008)out of brace (40/30 in Spinecor) and started at 38/27 out of brace(Jan2006.) Now in Cheneau.

              Comment


              • laura, you are seeing mr mills after one month anyway I assume, he can adjust if necessary. Some movement is inevitable anyway. Rubbing at certain area's can be a problem. We use zinc/castor oil for minor skin irritation, elastoplast type of dressings for smaller abrasions and something called mepilex if a larger area needs protecting for a bit

                Comment


                • That's good to know, Gerbo. Rachel has some areas that get irritated from time to time. I don't know what elastoplast and mepilex are. Can you describe them. I know there is nothing by those names on the shelves in the US.
                  God has used scoliosis to strengthen and mold us. He's good all the time!On this forum these larger curves have not held forever in Spinecor,with an initial positive response followed by deterioration. With deterioration, change treatment.The first year she gained 4 or 5 inches and was stable at around 20/20 in brace, followed by rapid progression the next year.She is now 51/40 (Jan2008)out of brace (40/30 in Spinecor) and started at 38/27 out of brace(Jan2006.) Now in Cheneau.

                  Comment


                  • oh, you americans, do we have to spell everything out , anyway; elastoplast are just the sticky dressings you put on all common open wounds, and i am sure you will have put those on your childrens knees, elbows over the years. These days they come in many varieties and different thickness and size so you must be able to find one which suits the purpose.

                    Mepilex is a more specialist dressing and is described as "absorbent soft silicobe dressing with polyurethane foam film backing". It comes in 10-10 size, hardly sticks to the skin (very easily removed) and is about 3-4 mm thick, so gives some padding.

                    can you work it out from there??

                    with many good wishes as always

                    gerbo

                    Comment


                    • Originally posted by Gerbo
                      elastoplast are just the sticky dressings you put on all common open wounds, and i am sure you will have put those on your childrens knees, elbows over the years. These days they come in many varieties and different thickness and size so you must be able to find one which suits the purpose.
                      Cheryl, I think you'll find that's a man's way of saying "Bandaid"

                      Thanks both for your help. The red patch really doesn't appear to be painful so I'm just letting it heal naturally. I still haven't heard from Mr Mills regarding the follow up so may chase him today. I know there have huge problems in Sheffield with flooding so this may be affecting things. I am keen to get to see him soon though as the brace does not seem very tight and my paranoia is setting in again, imagining daily progression.....

                      Laura
                      UK based Mum of Imogen, 38 degree curve at 9 years old. SpineCor since 15/6/07, 31 degrees in brace.
                      10th December 07 - 27 degrees, 23rd June 08 - 26 degrees, Feb 09 - 24 degrees, Aug 09 - 35 degrees, Jul 10 - 47 degrees, Dec 10 - 50+ degrees.
                      Surgery due to take place early December 2011 at the RNOH, England.

                      Comment


                      • Originally posted by RugbyLaura
                        Cheryl, I think you'll find that's a man's way of saying "Bandaid"

                        I enjoyed reading Gerbo's description It brought tears to "me eyes" LOL!!! He sounds like such a sweet man!

                        *

                        Canadian eh
                        Daughter, Deirdre born Oct 2000. Diagnosed with 60 degree curve at the age of 19 months. Serial casting by Dr. Hedden at Sick Kid's Hospital. Currently being treated by Dr. Rivard and Dr. Coillard in Montreal with the Spinecor brace and curve is holding at "2" degrees. Next appointment 2008

                        Comment


                        • Celia, you're up early!
                          He sounds like such a sweet man!
                          Not wishing to embarrass him too much but Gerbo and his family have been the most enormous source of strength for me (and my family). I thank this forum, and this thread in particular, for all the amazing support you've given.
                          Last edited by RugbyLaura; 07-05-2007, 02:41 PM.
                          UK based Mum of Imogen, 38 degree curve at 9 years old. SpineCor since 15/6/07, 31 degrees in brace.
                          10th December 07 - 27 degrees, 23rd June 08 - 26 degrees, Feb 09 - 24 degrees, Aug 09 - 35 degrees, Jul 10 - 47 degrees, Dec 10 - 50+ degrees.
                          Surgery due to take place early December 2011 at the RNOH, England.

                          Comment


                          • BandAid??That's Bob Geldoff doing his bit for mankind, isn't it?

                            Laura; protocol for spinecor requires checkup after 1 month, 3 months and every three months after. Make sure you chase it!!

                            Comment


                            • Gerbo, thank goodnes I have you and Cheryl nagging me! I have phoned Helen this morning and she says that she's "almost certain" we'll be seen on 13th July (weather permitting!!!). She just needs to clear this with Mr Mills on his return from USA on Tuesday.
                              UK based Mum of Imogen, 38 degree curve at 9 years old. SpineCor since 15/6/07, 31 degrees in brace.
                              10th December 07 - 27 degrees, 23rd June 08 - 26 degrees, Feb 09 - 24 degrees, Aug 09 - 35 degrees, Jul 10 - 47 degrees, Dec 10 - 50+ degrees.
                              Surgery due to take place early December 2011 at the RNOH, England.

                              Comment


                              • Hi everybody!
                                I am just missing you all. No one has posted in a while. What's everybody up to?
                                God has used scoliosis to strengthen and mold us. He's good all the time!On this forum these larger curves have not held forever in Spinecor,with an initial positive response followed by deterioration. With deterioration, change treatment.The first year she gained 4 or 5 inches and was stable at around 20/20 in brace, followed by rapid progression the next year.She is now 51/40 (Jan2008)out of brace (40/30 in Spinecor) and started at 38/27 out of brace(Jan2006.) Now in Cheneau.

                                Comment

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