Did I actually finally find other parents out there with children with congenital scoliosis? I have been feeling quite isolated and confused. I have a 11 mon. old son with many spinal abnormalities including several curves at the lumbar/thoracic/cervical levels caused by hemivertebrae, fused ribs, fused vertebrae, spinal bifida occulta. My son is behind in gross motor development. I am really worried about his future.