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  1. #1
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    Quote Originally Posted by RitaR View Post
    I also am faced with severe Sagittarius imbalance. I’ve also got at least couple herniated discs, severe nerve problems. Pain,is beyond belief! Laying down a lot. Wonder, has anyone had this kind of revision surgery? We’re talking about removing all my hardware and starting anew. I have got to do something or I’m gonna be in bed permanently!
    Hi Rita...

    You posted this message to someone else's thread, so I moved your post to a new thread.

    Assuming you mean sagittal imbalance. :-)

    It's a relatively common condition amongst the group. If you're interested, do a search on flatback (which is one type of sagittal imbalance). I had surgery for it in 2011. I ended up with some medical complications, but it solved my back and leg pain.

    --Linda
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation

  2. #2
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    Thank you Linda. Yes, Sagittal imbalance. Silly word correct. I’m seeing a Dr at John’s Hopkins in Baltimore. He said my back is so bad only thing he would even recommend is total hardware removal and imbalance fixing. I’m having soooo horrible pain and nerve problems, pain in legs. Have fallen numerous times due to imbalance. Cant sleep at night. Laying down 5-6 times a day just to make it thru the day.
    Rita Thompson
    Age 46
    Milwaukee Brace wearer for 3 years in childhood
    Surgery Mar 1st - 95 degree thoracic curve
    Surgery by Dr. Lenke, St. Louis, MO
    Post-surgery curve 25-30 degree

  3. #3
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    Quote Originally Posted by RitaR View Post
    I’m seeing a Dr at John’s Hopkins in Baltimore. He said my back is so bad only thing he would even recommend is total hardware removal and imbalance fixing. I’m having soooo horrible pain and nerve problems, pain in legs. Have fallen numerous times due to imbalance. Cant sleep at night. Laying down 5-6 times a day just to make it thru the day.
    Wow Rita, you have really been struggling....

    Have they found any broken hardware? Are you leaning forward?

    Are you flying out to Johns Hopkins for diagnostics and tests?

    Ed
    49 yr old male, now 63, the new 64...
    Pre surgery curves T70,L70
    ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  4. #4
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    Quote Originally Posted by RitaR View Post
    Thank you Linda. Yes, Sagittal imbalance. Silly word correct. I’m seeing a Dr at John’s Hopkins in Baltimore. He said my back is so bad only thing he would even recommend is total hardware removal and imbalance fixing. I’m having soooo horrible pain and nerve problems, pain in legs. Have fallen numerous times due to imbalance. Cant sleep at night. Laying down 5-6 times a day just to make it thru the day.
    Hi Rita...

    Implant removal and osteotomies to restore balance is essentially the only appropriate treatment. Dr. Bridwell wrote an article a long time ago, that describes the condition and treatment. You might find it helpful. https://www.spineuniverse.com/condit...ttal-imbalance

    --Linda
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation

  5. #5
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    Topeka, KS
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    Surgery

    Quote Originally Posted by LindaRacine View Post
    Hi Rita...

    You posted this message to someone else's thread, so I moved your post to a new thread.

    Assuming you mean sagittal imbalance. :-)

    It's a relatively common condition amongst the group. If you're interested, do a search on flatback (which is one type of sagittal imbalance). I had surgery for it in 2011. I ended up with some medical complications, but it solved my back and leg pain.

    --Linda
    Who did your surgery Linda? I just spent 2 months seeing dr in Baltimore and he dumped me today. I’ve got to have something done. My pain is horrible! I can’t do anything. Wakes me up at night. Some nights I never sleep. I need help.
    Rita Thompson
    Age 46
    Milwaukee Brace wearer for 3 years in childhood
    Surgery Mar 1st - 95 degree thoracic curve
    Surgery by Dr. Lenke, St. Louis, MO
    Post-surgery curve 25-30 degree

  6. #6
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    May 2009
    Location
    Topeka, KS
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    From Rita T

    Well, Linda, who did your revision surgery in 2011? Just got dumped by another dr today. I’m in terrible pain and no one wants to do anything to help me. I was talking with Dr in SannFrancisco but he stopped communication. I consulted dr in Baltimore. He dumped me today. I’m in terrible pain. Can’t do anything without horrible pain. I lay down 4-5 times a day. I appreciate any assistance.
    Rita Thompson
    Age 46
    Milwaukee Brace wearer for 3 years in childhood
    Surgery Mar 1st - 95 degree thoracic curve
    Surgery by Dr. Lenke, St. Louis, MO
    Post-surgery curve 25-30 degree

  7. #7
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    Quote Originally Posted by RitaR View Post
    Well, Linda, who did your revision surgery in 2011? Just got dumped by another dr today. I’m in terrible pain and no one wants to do anything to help me. I was talking with Dr in SannFrancisco but he stopped communication. I consulted dr in Baltimore. He dumped me today. I’m in terrible pain. Can’t do anything without horrible pain. I lay down 4-5 times a day. I appreciate any assistance.
    Hi Rita....

    There's only so much any surgeon can do remotely, so I think you should try to find someone local. If that's not possible, start thinking about who you can travel to see. The fact that multiple surgeons have "dumped" you might be because you're not local to them, or that you're not communicating effectively. The fact that Dr. Lenke did your last surgery may be intimidating for surgeons. If they think that he can't fix you, they may feel they don't stand a chance to help you out. My advice would be to sit down and write a summary of your history and your current issues. Try not to catastrophize what you're going through. I know from my own history, that symptoms can change quickly. You don't need to talk about pain you've had in the past, as it's probably irrelevant.

    My 2011 surgeon was Sigurd Berven at UCSF.

    --Linda
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation

  8. #8
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    May 2009
    Location
    Topeka, KS
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    From Rita R

    You have no idea how miserable I am. I have sooooo terrible pain. Nerve pain in both legs. Numb right foot. Falling plenty of times. Wakes me up at night. Plenty of nights I get no sleep because of pain and muscle spasms. Just got dumped by dr at John’s Hopkins. He has nothing to offer me but good luck. I just do not know what to do. I’m getting worse and the pain is worsening, which I already can’t imagine.
    Rita Thompson
    Age 46
    Milwaukee Brace wearer for 3 years in childhood
    Surgery Mar 1st - 95 degree thoracic curve
    Surgery by Dr. Lenke, St. Louis, MO
    Post-surgery curve 25-30 degree

  9. #9
    Join Date
    May 2009
    Location
    Topeka, KS
    Posts
    444
    I had communicated with Dr Berven and then he stopped calling one day. I’ve never heard from him since. He ordered many tests and I obtained all he asked for.
    Rita Thompson
    Age 46
    Milwaukee Brace wearer for 3 years in childhood
    Surgery Mar 1st - 95 degree thoracic curve
    Surgery by Dr. Lenke, St. Louis, MO
    Post-surgery curve 25-30 degree

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